Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Obsessive Compulsive Disorder/anxiety


lakegirl410

Recommended Posts

lakegirl410 Rookie

Hi!

I'm not sure how long I've been suffering from Celiac Disease, but I've had stomach issues since high school. I also have Obsessive Compulsive Disorder/Anxiety/Depression. That's been going on since I was about three. I was wondering if there is any type of link. I know OCD/Anxiety/Depression is caused by a chemical imbalance in the brain, but it seems to me that my stomach issues got much worse at the same time that I had an emotional meltdown and had to be put on SSRIs. This was around the time I graduated from college and was forced to look for a "real" job in the "real" world. (Art History just doesn't pay the bills.) I really don't know if there could be a link, but I was wondering if anybody has any ideas.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

There is a very strong link between gluten and at the very least anxiety and depression (would have to ask someone else about the OCD). For me my chronic anxiety went away quite quickly after going gluten free.

Wolicki Enthusiast

'Before going gluten free, as I got sicker and sicker, I was on Xanax 4 times a day. That went away within days :D

glutout Rookie

'Before going gluten free, as I got sicker and sicker, I was on Xanax 4 times a day. That went away within days :D

For 7 years I have been on disability due to anxiety, and neurological problems. I have only gotten worse. Meds nor therapy helped. Recently, I was diagnosed with Celiacs. I do not know if there is a connection. I have seen a lady who says I have had so much malabsorption issues for so long that I am depleted in all the nutrients required for my brain and body to function normally. I don't know how much scientific proof there is for this , but she has me on vitamins and minerals to help. I have tried to take supplements in the past, but they never really helped. She gives me "predigested" vitamins. Everything is powder or liquid that I have to drink because otherwise, I wouldn't absorb or digest them very well. Makes sense, but the results are yet to be seen. It's only been about 2 weeks.

So, I guess there could be a connection because of the other problems contribued BY the Celiac Disease.

MRM Apprentice

i believe gluten has caused my anxiety and depression issues all my life. by week 3 of being gluten free i felt so relaxed and happy. i got glutened last week and i could tell almost immediately because the panic feeling came back very quickly.

fitbunni Newbie

wow i am so glad i read this. i just posted a Q about celiac and bipolar and im thinking they are def. related. im having such a hard time going gluten free tho. im so exhausted trying to uncover all the traps and hidden gluten EVERYWHERE. i just lost my health insurance today, though, so i am sort of happy that i may be able to treat my bpd with diet alone.

StacyA Enthusiast

OCD has more of a hereditary link than general anxiety and depression (there's also a link between OCD and tourette's in families) - in other words, if you have true OCD you were born with it.

Celiac's could probably worsen OCD, but not cause it. SSRI's generally are the best treatment for OCD. Counseling techniques and self-help don't hold a candle to SSRI's for OCD. (Some people have tried St. John's Wort - but I haven't seen it work as well as a prescribed SSRI.)

As for depression and anxiety - see how a gluten-free diet effects those. For some people, anxiety is inherited and for some people anxiety is environmentally caused and for some people it's both. The same for depression.

And fitbunni - I commented on your post about bipolar. True bipolar disorder really can't be treated by a gluten-free diet. But see my reply.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

There seems to be some link between celiac and schizophrenia. I don't know if there is any link to OCD or other disorders. Probably depression is linked. Gluten ataxia is also linked to celiac. It seems to me that celiac can definitely affect the brain. I don't think there is really any doubt about that. There are also people who put their autistic children on a Gluten-free Casein-free diet. If you search on "celiac OCD" or any other condition name you can find lots of info on possible affects.

Schizophrenia / Mental Problems and Celiac Disease

  • 2 weeks later...
kimann79 Apprentice

This is an interesting thread. I was diagnosed with OCD after my first child was born. I've had pretty bad anxiety since I was about four, but it spun out of control after having my daughter. I'm not sure if I have "true" OCD, despite what my therapist said, or I just have a bizarre form of severe anxiety. Whatever it was, it was bad.

I've noticed a reduction of anxiety since switching from Synthroid to T3/HC though for my thyroid disease.

I wonder if going gluten free would further reduce my anxiety. That would be fabulous!

BTW, every book I've read on the subject (and I've read a ton!) suggested or plainly stated that behavior therapy and exposure and response techniques were the best course of treatment for OCD. Of course, I'm not a doctor, but I am fairly obsessive when it comes to learning about my health. ;)

Mtndog Collaborator

Hi!

I'm not sure how long I've been suffering from Celiac Disease, but I've had stomach issues since high school. I also have Obsessive Compulsive Disorder/Anxiety/Depression. That's been going on since I was about three.

I am so glad I popped into this thread. Your story sounds like mine- I had stomach/depression/anxiety issues from a very young age. There is definitely a link between celiac and psych issues. I don't have "true" OCD but my GAD (generalized Anxiety Disorder) has manifested as OCD several times.

I have been gluten-free for 5 years and that has gotten MUCH better. I still need to be on meds, but I have Lyme which causes a whole host of psych symptoms. Many people on this board have reported being able to go off or reduce depression/anxiety meds after going gluten-free!

For 7 years I have been on disability due to anxiety, and neurological problems. I have only gotten worse. Meds nor therapy helped. Recently, I was diagnosed with Celiacs.

I hope you feel better soon!

You might be interested in this article- many doctors regard the gut as the second brain Celiac And The Gluten Gut-Brain Connection Seen In Reversible Abnormal SPECT Brain Scans

It says, "SPECT brain imaging of the majority of the few celiac disease patients studied reveals abnormalities that are usually most severe in the frontal areas of the brain. Improvement of these abnormalities are seen on a gluten-free diet. The frontal area of the brain is important in brain function that controls attention, impulse control, organization, and problem solving. Problems in this area of the brain result in short attention span, disorganization, procrastination, short-term memory problems, anxiety and depression."

BTW, every book I've read on the subject (and I've read a ton!) suggested or plainly stated that behavior therapy and exposure and response techniques were the best course of treatment for OCD. Of course, I'm not a doctor, but I am fairly obsessive when it comes to learning about my health. ;)

Yes- behavior therapy is crucial with true OCD but meds can help that process.

passionfruit877 Apprentice

Very interesting. I wanted to say I have much more anxiety when I get glutened as well.

  • 4 weeks later...
Looking for answers Contributor

I had OCD back to my earliest childhood memory. It was debilating throughout my childhood and teenage years. I went through therapy, tried meds, neither helped. I read a really good book on the subject that helped me control some of the symptoms througout college and early adulthood so I could eliminate the compulsions, but the obessions continued. Then (THANK GOD) I stopped eating gluten in 2006. Good news, it went away. Today, I'm happy to report that I no longer suffer from it. I would still say that my personality is Type A/somewhat obessive, but the difference is I control what I'm obsessive about. Meaning, I only get obessive about things I ENJOY thinking about and doing - like learnign about health. :) I haven't since had an negative obession or compulsion. I have a feeling you'll find the same releif. Be sure to get on a good multivitamin/multimineral. Remember, our stomachs don't absorb a lot of nutrients, and this often causes or worsens the problem. I take a liquid one twice a day that is similar to blood plasma (AKA isotonic), so it is super easy to absorb, and I take it on an empty stomach.

I somewhat agree with another poster who said it is genetic (my grandmother, mom and brother have OCD too). However, I but if they went gluten free their symptoms who clear up as well.

  • 7 years later...
Guest anonymous4698873
On 4/6/2010 at 8:31 PM, StacyA said:

OCD has more of a hereditary link than general anxiety and depression (there's also a link between OCD and tourette's in families) - in other words, if you have true OCD you were born with it.

 

Celiac's could probably worsen OCD, but not cause it. SSRI's generally are the best treatment for OCD. Counseling techniques and self-help don't hold a candle to SSRI's for OCD. (Some people have tried St. John's Wort - but I haven't seen it work as well as a prescribed SSRI.)

 

As for depression and anxiety - see how a gluten-free diet effects those. For some people, anxiety is inherited and for some people anxiety is environmentally caused and for some people it's both. The same for depression.

 

And fitbunni - I commented on your post about bipolar. True bipolar disorder really can't be treated by a gluten-free diet. But see my reply.

I didn't develop severe OCD (yes, severe. I can actually say I was diagnosed) until shortly after my grandma died when I was 12. The OCD was triggered by trauma. Sure, you could have the genes for greater likelihood of having OCD, but you're making it seem like you either 100% develop it or 100% don't. That's like saying you will develop celiac if you were born with the genes. But this isn't true because 30% of the population has the celiac genes.

Plus, OCD is an anxiety disorder. It's a form of anxiety. OCD is a means to keep control just like anorexia. Both can be triggered by upsetting life events, which is what happened to me and lots of other people. I've been living with this cruel mental disorder for 10 years - trust me, I know what I'm talking about. I have been on at least three different types of SSRIs since I was 12. None of them worked. It was a waste of time and money. It was like taking a sugar pill for months on end. The only thing that has ever worked was CBT. But that takes a lot of time and effort for a lot of people, so many give up.

OCD can definitely be environmental. It's an anxiety disorder.

knitty kitty Grand Master
On 3/1/2018 at 5:33 PM, fletcher96 said:

I didn't develop severe OCD (yes, severe. I can actually say I was diagnosed) until shortly after my grandma died when I was 12. The OCD was triggered by trauma. Sure, you could have the genes for greater likelihood of having OCD, but you're making it seem like you either 100% develop it or 100% don't. That's like saying you will develop celiac if you were born with the genes. But this isn't true because 30% of the population has the celiac genes.

Plus, OCD is an anxiety disorder. It's a form of anxiety. OCD is a means to keep control just like anorexia. Both can be triggered by upsetting life events, which is what happened to me and lots of other people. I've been living with this cruel mental disorder for 10 years - trust me, I know what I'm talking about. I have been on at least three different types of SSRIs since I was 12. None of them worked. It was a waste of time and money. It was like taking a sugar pill for months on end. The only thing that has ever worked was CBT. But that takes a lot of time and effort for a lot of people, so many give up.

OCD can definitely be environmental. It's an anxiety disorder.

Again, always check the date.  This is an old thread.  You can start your own new thread.

I have some articles that you might find interesting and helpful.  

Open Original Shared Link

Vitamin B12 deficiency can cause OCD.  

And strange behavior

Open Original Shared Link

And other deficiencies

Open Original Shared Link

And what wheat and dairy can do to your brain.

Open Original Shared Link

Open Original Shared Link

Hope these help.

 

Guest anonymous4698873
10 hours ago, knitty kitty said:

Again, always check the date.  This is an old thread.  You can start your own new thread.

I have some articles that you might find interesting and helpful.  

Open Original Shared Link

Vitamin B12 deficiency can cause OCD.  

And strange behavior

Open Original Shared Link

And other deficiencies

Open Original Shared Link

And what wheat and dairy can do to your brain.

Open Original Shared Link

Open Original Shared Link

Hope these help.

 

I got my blood checked, and everything was normal. I'm at a loss of what to do. I'm beginning to think I am really just mentally ill even though I don't think I'm depressed or psychotic, but if the doctors think I am, it must be true! (sarcasm partially intended). I'm interested in what the last two studies have to say, though. It could be just food allergies. My brother gets them, too, especially with tree nuts (anaphylaxis). He sleeps all the time and always has. It's got to be the food. Maybe not gluten but a wheat allergy? Who knows. Thank you.

knitty kitty Grand Master

Open Original Shared Link

One more on NCGS, celiac disease, and mood disorders.  

There are lots of articles out there that connect wheat and dairy allergies to mental changes.  Have you done any tests for allergies? 

I believe subclinical vitamin deficiencies may still be present.  The RDA of certain vitamins are set too low.  The level of certain vitamins in the blood isn't an accurate measure of the vitamins inside the tissues where they're  used.  Taking a B-Complex vitamin may help.  The B vitamins are water soluble and any excess will be excreted in urine.  The B vitamins all work better together.  

When you begin a low carb or gluten free diet, you are no longer getting the vitamins that gluten containing flour is required to be enriched with.  Adding a B-Complex vitamin will help ensure you get those missing vitamins while your intestines heal.  

I had a horrible time getting doctors to believe me, so I know how you feel.  I cut out gluten and dairy and nightshades.  I followed the AutoImmune Paleo Protocol and a low histamine diet.  And I began to feel better over the following months.  

http://www.thepatientceliac.com/tag/histamine-intolerance-and-celiac-disease/

Hope this helps!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,289
    • Most Online (within 30 mins)
      7,748

    SarahZ
    Newest Member
    SarahZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.