Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated :(


curlingfan

Recommended Posts

curlingfan Newbie

So I never got the official diagnosis, but I have a bunch of symptoms (low vitamin b12, d, and iron), joint aches, brain fog, slight nausea, fatigue, etc. So 2 months ago I just stopped eating it on a random day. Well right now, two months later, I feel a lot better I think. Unfortunately, my hair is still falling out, but I'm hopeful.

But the main problem is, I had near diareah for a few months now (and before that whenever I took vit. d for some reason). Not to be gross but it smelled like dirareah and was ALMOST soft enough to be diareah, but it wasn't completely. I thought it started to change back to solid brown poop last week, but I realized that I just ate a lot of dairy that week, so I think that might have been why it wasnt the diareah style. The last few days I'm back to the gross almost-diareah poop. Am I allergic to soy maybe? Do I need to just wait longer on the gluten-free diet? This is so frustrating :(

Any help is greatly appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

gluten-free cleared things up quite a bit, dairy-free helps too(I have clear lifelong issues with dairy) but I was still having urgent, loose stools most mornings, and GI distress the nights before even after 2 years gluten-free. The thing that helped mostly solve my problem was being allergy tested for foods and eliminating all that I tested positive to-quite a few. Soy was on the list as were several other top allergens and many others that I would not have suspected. I re-introduced eggplant this week, after avoiding it for several months and got D, who would have guessed?

Wolicki Enthusiast

I had the same problem with nightshades. That intolerance took the longest to go away. Giving up tomoatoes was WAY worse than giving up gluten. AFter about 6 months nightshades were once again ok. My only lingering issue is broccoli. I have decided that I just don't like it enough to eat it again and not feel well. I don't care if it's good for you :P

Wolicki Enthusiast

So I never got the official diagnosis, but I have a bunch of symptoms (low vitamin b12, d, and iron), joint aches, brain fog, slight nausea, fatigue, etc. So 2 months ago I just stopped eating it on a random day. Well right now, two months later, I feel a lot better I think. Unfortunately, my hair is still falling out, but I'm hopeful.

But the main problem is, I had near diareah for a few months now (and before that whenever I took vit. d for some reason). Not to be gross but it smelled like dirareah and was ALMOST soft enough to be diareah, but it wasn't completely. I thought it started to change back to solid brown poop last week, but I realized that I just ate a lot of dairy that week, so I think that might have been why it wasnt the diareah style. The last few days I'm back to the gross almost-diareah poop. Am I allergic to soy maybe? Do I need to just wait longer on the gluten-free diet? This is so frustrating :(

Any help is greatly appreciated!

Do you by chance get heartburn? The reason I ask is that I ended up with LOW stomach acid, thinking it was too much. One of the side effects, for me, of low stomach acid was soft unformed stools. Once I was diligent about taking HCL with every meal and enzymes after, bms are totally normal.

curlingfan Newbie

Do you by chance get heartburn? The reason I ask is that I ended up with LOW stomach acid, thinking it was too much. One of the side effects, for me, of low stomach acid was soft unformed stools. Once I was diligent about taking HCL with every meal and enzymes after, bms are totally normal.

Don't think I've ever had heartburn.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.