Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Considering Becoming A Consultant


JNBunnie1

Would you use a consultant?  

38 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

JNBunnie1 Community Regular

Thanks! I'm thinking about working as a gluten free transition helper, personal chef, and trainer for new people on the diet, and your feedback will help me very much to know if anyone would be interested.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

I've been toying with that idea, too. Let me know if you decide to go for it. I've put it on the backburner right now for other reasons, but I think there is a definite need. Around here anyway.

buffettbride Enthusiast

I think there is a small market and use for folks to help other folks transition to the gluten-free diet. I'm pretty resourceful, so I probably wouldn't have done it.

However, where I think the real niche is, and would bring the biggest benefit to those following the gluten-free lifestyle, is working with restaurants, food manufacturers, even health care professionals to help them understand. It's a harder place to break into, but Celiacs will be better served by a more educated public.

Bobbijo6681 Apprentice

I agree with buffettbride that education is important to our cause. However I think that it would be nice to have someone to go with me to the grocery store and help look at labels. I know all the "big" things to look for, but then I have to get out my "no no" list and check everything else. It is very time consuming to start with and VERY overwhelming. I am now getting used to it, but in the beginning it would have been a big help. Also someone that has been down the road to help with dr's visits and what to ask and when to question the dr's ideas. Kinda a personal advocate for Celiacs.

let us know how that works out for you!!

Nor-TX Enthusiast

I agree with buffettbride, but I think a better direction would be to form a company/organization who works with stores, vendors, food venues to present gluten-free product shows. I can visualize product companies paying for space in a product show. Customers like myself, could go to a product show to taste and be introduced to gluten free products.

I am new to the gluten free diet since October and would have eagerly attended a gluten free product show.. especially if there was the opportunity to actually taste products, receive coupons, watch cooking demonstrations, talk to reps from different companies, nutritionists...

I think it would be a great idea and probably be a business that could make lots of money in addition to helping educate lots of people and answer their questions and hopefully advertise all the wonderful gluten free products that now you have to order over the internet or search out at different stores.

I can see that lots of people would be interested in this.

Jestgar Rising Star

You could expand your skills to include other food issues as well, maybe throw in a bit of nutrition counseling and day care feeding tips.

JNBunnie1 Community Regular

I agree with buffettbride, but I think a better direction would be to form a company/organization who works with stores, vendors, food venues to present gluten-free product shows. I can visualize product companies paying for space in a product show. Customers like myself, could go to a product show to taste and be introduced to gluten free products.

I am new to the gluten free diet since October and would have eagerly attended a gluten free product show.. especially if there was the opportunity to actually taste products, receive coupons, watch cooking demonstrations, talk to reps from different companies, nutritionists...

I think it would be a great idea and probably be a business that could make lots of money in addition to helping educate lots of people and answer their questions and hopefully advertise all the wonderful gluten free products that now you have to order over the internet or search out at different stores.

I can see that lots of people would be interested in this.

Actually, I've read about a number of gluten free product shows and conventions in my area the past few years. I'm sure there's space for more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



masterjen Explorer

I agree there is a need for more (both in terms of number and level of expertise) knowledgeable services, in my area as well. I was sent initially sent to a dietician who was considered an "expert" in celiac disease, but I found her coverage of what to/what not to eat, shopping, cooking and dining-out issues to be very superficial, and sometimes even unsafe (ex. she said eating sushi was fine, but to avoid artificial crab . . .but what about when the sushi chef cuts the "safe" pieces of sushi with the same knife he used to cut the "unsafe" pieces, and what about the rolls that contain pieces of breaded sushi: she didn't even mention any of this), and when I tried to probe with more in-depth questions (ex. vanilla, according to her, was safe, but I had found out that only vanilla made in Canada or the US is safe: when I asked if this was true, she said she didn't know, and also she was unable to help me with determining if I should also try going lactose-free). So, everything I now know about celiac disease and being gluten-free has come from various websites but there is always the risk that someone may come across information that is misleading. So, long story short, I think if someone can provide very in-depth counseling/consulting services, and who is an expert in shopping/preparing meals that is specific to their clients' city of residence, would go a long ways to helping those newly diagnosed. Also, if the consultant is knowledgeable about navigating the internet in relation to celiac disease and gluten-free, this would also be a huge asset. My other thought is it would also be helpful if the consultant had some kind of certification (ex. already is a dietician, or is a certified personal trainer or counsellor), as this would increase the legitimacy of the service rather that just "Joe Smith, Celiac Disease consultant", or whatever.

T.H. Community Regular

You might be able to offer this service to companies as well as individuals. I was at a Whole Foods grocery store recently and they had just added a 'gluten free' consultant to their employees. She went through all the items in their store, knew what all their gluten free stuff was, gave a 'gluten free' tour once a month for the store - it was great, and it had a really high turn-out, every time.

  • 5 years later...
Celiac Nutritionist Newbie
On 2010-04-02 at 0:50 PM, JNBunnie1 said:

Thanks! I'm thinking about working as a gluten free transition helper, personal chef, and trainer for new people on the diet, and your feedback will help me very much to know if anyone would be interested.

Hi! I would LOVE to discuss this with  you and see if anything ever came of it!  (Being 6 years later, I wonder how things have changed...?)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    2. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    3. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.