Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Grains - Sorting The Myths From The Truth


inmygenes

Recommended Posts

inmygenes Apprentice

There seem to be a lot of myths flying around and it's hard to know what to believe sometimes. Here are some of them:

QUINOA My natropath seemed to think quinoa contained some gluten. Actually it seems that quinoa is not even a grain but a seed related to leafy green vegetables like spinach. So it's totally gluten free, it makes me bloated, but maybe that's a contamination issue? Bobs Mill sell a gluten-free quinoa.

Millet I came across one website recently that was saying Millet contained gluten, another myth! Millet is a gluten free grain.

Oats Myth: oats are not gluten free. They contain no gluten it seems, as long as they are free from contamination, but they do contain a protein that is similar to gluten. I have eaten 'pure oats' and they definitely tend to upset my stomach if I eat too many, so I guess I'm sensitive to the protein they contain.

Have you come across other myths about gluten free grains? Do you eat oats and do you get a reaction from them?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Quinoa--I eat it all the time and love it. It is easy for me to eat too much. It has lots of fiber.

Millett--Love it too. No problems that I can tell.

Oats--I avoid the gluten free oats because I reacted horribly. I had heartburn, bloating, abdominal pain, constipation and a nice painful rash on my bottom. :o There are those who eat them without incident (I'm jelous! :lol: )

I would recommend not buying from bulk bins. The store that sells this in bulk around me had oat groats in the buckwheat! Sucks. How hard would it be to have the gluten grains separate from the gluten free ones?

inmygenes Apprentice

That's good that you love the quinoa and can eat it no problem. Yes I'm jealous of those that can eat oats too, I definitely get a bit of a reaction.

GFinDC Veteran

The CSA had an article about celiacs who react to oats a while back.

I seem to remember them saying there are something like 10 to 15% of celiacs who do react to oats. I used to eat oats all the time, but I can 't do them anymore.

Quinoa is supposed to be rinsed well before cooking as it has a natural coating on the seeds that can irritate some people's stomachs. So, that might be an issue. It needs to well rinsed to get rid of that coating.

VioletBlue Contributor

Buckwheat is not actually wheat, or even a grain. It is also a seed and is gluten free.

mushroom Proficient

There is a high degree of contamination with oats. Often they are harvested with the same equipment as wheat, stored in the same silos as wheat, and/or transported with the same equipment as wheat. But as was previously stated, even if the oats are certified gluten free and have been carefully handled, a certain percentage of celiacs will still react to them.

Roda Rising Star

Buckwheat is not actually wheat, or even a grain. It is also a seed and is gluten free.

Good info for those who are not aware that buckwheat is gluten free. My complaint with the bulk bins was with the oats. I don't eat oats, even gluten free ones and they were in the buckwheat that I wanted to purchase. It would be so simple to separate the gluten grains/seeds from the gluten free ones. They showed me the bulk bag they bought the buckwheat in and it stated gluten free on the bag, but they contaminated it the minute they put it out. Who knows even if they use the same scoops etc. for all of the grains. This is why I will never buy from bulk bins.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MagpieWrites Rookie

I've gotten sick eating Quaker oats (I know, I know, idiotic idea to sit down to a bowl! lol) but I DO eat Bob's certified gluten free Irish Oats and the rolled oats without any problems. Even went so far as to have a blind test with my husband (he was not thrilled with me doing it, but saw the value... or at least the value I put on knowing) to make sure I wasn't imagining an issue. (The first several months after being diagnosed it's easy to reach a point where every twinge/ache/stomach flutter "must be gluten" rather than simple things like: carsick, stressed, dealing with the inlaws.....)

Some folks CAN handle oats (certified gluten free) right off the bat, some seem to need a year or so to let their system heal, and some folks never will be able to eat them. (My poor nephew doesn't just have celiac - he's outright allergic to oats, rice and soy as well!)

Personally? I'm thrilled to pieces with the Bob's oats. I grew up eating oatmeal for breakfast almost every day and the first 6 months when I wasn't able to eat oats (couldn't find gluten free and my system was so wonky) were tough.

inmygenes Apprentice

That's interesting about the percentage that react to oats. I think I just have to be careful and not have them too often or in large amounts.

Yes it could be the outer coating on the quinoa that is irritating my stomach, thanks for the advice I'll make sure I rinse it better next time.

inmygenes Apprentice

It's an interesting flour too, very nutritious and I'd love to easily be able to get hold of some!

inmygenes Apprentice

Bulk bins are definitely best avoided. In one store when the manager asked if I wanted to get the gluten free flour I was buying from the bulk bin, as it was cheaper, I said it could be contaminated. He immediately asked if I have celiac disease and when I said I did, he said that it's best to get the gluten free packaged flour instead.

masterjen Explorer

I've read that the molecular structure of oats is quite similar to that of wheat, and the small intestine of some celiacs will therefore react to even g.f. oats for this reason.

  • 2 weeks later...
precious831 Contributor

There seem to be a lot of myths flying around and it's hard to know what to believe sometimes. Here are some of them:

QUINOA My natropath seemed to think quinoa contained some gluten. Actually it seems that quinoa is not even a grain but a seed related to leafy green vegetables like spinach. So it's totally gluten free, it makes me bloated, but maybe that's a contamination issue? Bobs Mill sell a gluten-free quinoa.

Millet I came across one website recently that was saying Millet contained gluten, another myth! Millet is a gluten free grain.

Oats Myth: oats are not gluten free. They contain no gluten it seems, as long as they are free from contamination, but they do contain a protein that is similar to gluten. I have eaten 'pure oats' and they definitely tend to upset my stomach if I eat too many, so I guess I'm sensitive to the protein they contain.

Have you come across other myths about gluten free grains? Do you eat oats and do you get a reaction from them?

Don't quote me but I heard that is typical for quinoa, I get gas too and so does my DD and I believe it's because it's high in fiber and also it has some coating to it that is supposed to cause GI distress. So I was told to soak it for a few hours and then rinse thouroughly before cooking. Before I would just rinse it til the water runs clear. Also it's weird, but I notice it all the time in my DD's stools, almost like she is not digesting it, she's 2 by the way.

About millet, one of my favorite flours, haven't had the grain by itself yet.

Oats, I can't tolerate, it's been a long time since I tried even gluten-free oats and I don't mind because I honestly can't stand oats and anything with oatmeal at all, lol. So I guess this worked for me.

  • 2 weeks later...
sunnybabi1986 Contributor

We buy Ancient Harvest Quinoa and I LOVE LOVE LOVE it! :) We eat it all the time, it's nice because it's prerinsed, no rinsing required and I've never had a problem with it! Red quinoa is my favorite.

I've had gluten free oats a handful of times since going gluten free and haven't had a problem yet! (Cross my fingers) I use it mainly in Apple Crisp, so I'm not eating a lot of it at a time. I'll have to try a bowl of it sometime, though. Haven't worked up the nerve yet, hearing others' stories of getting sick from gluten-free oats. Would make for a great breakfast, though, if I can handle a whole bowl of it :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.