Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Careful. But All This... Bah.

Lycopene

By Lycopene
in Coping with Celiac Disease

Recommended Posts

Lycopene Rookie
Lycopene
Posted

I'm sorry to make another thread. ): Just. I keep getting glutened. CC. Breathing in flour on accident. Finding out my cat's food has gluten in it (got her a handful of food and just wiped my hand off on my pants. Wiped my mouth because of a tickle a few minutes later). Ugh. I'm sick. Starting to get better and just be sapped of energy, but then I get glutened again and throw up more.

Friend is coming in less than two hours and who knows how much longer I'll be throwing up now... Ugh. No matter how much I clean my kitchen, with 5 other people cooking in it and all of them gluten eaters... it just can't get clean enough. Sigh. =.= This is too much. I can't handle being sick constantly like this... It just hurts so bad. =.=

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AKcollegestudent Apprentice
AKcollegestudent
Posted

I'm sorry to make another thread. ): Just. I keep getting glutened. CC. Breathing in flour on accident. Finding out my cat's food has gluten in it (got her a handful of food and just wiped my hand off on my pants. Wiped my mouth because of a tickle a few minutes later). Ugh. I'm sick. Starting to get better and just be sapped of energy, but then I get glutened again and throw up more.

Friend is coming in less than two hours and who knows how much longer I'll be throwing up now... Ugh. No matter how much I clean my kitchen, with 5 other people cooking in it and all of them gluten eaters... it just can't get clean enough. Sigh. =.= This is too much. I can't handle being sick constantly like this... It just hurts so bad. =.=

First off, I'm certain others have noted this, but are you positive that you don't have other intolerances? Secondly, I share a kitchen with no fewer than 25 gluten eaters (and possibly more like 40 or 50). I haven't been glutened because of my kitchen in months. And the trick is really, really simple: find some place--some place that is not your kitchen, and where the gluten eaters probably haven't used--where you can prepare everything.

For me? I'm a college student. I could risk the living room or the dining area. But I won't. I prepare everything in one corner of my dorm room. If it's a multi-stepped meal, I bring each stage back to my room. It saves my health and keeps the pain to a minimum.

Good luck. And it does get better.

Lycopene Rookie
Lycopene
Posted
  • Author

I really don't know if I have any other intolerances or not. I THINK soy might be one. I really can't afford to go to the doctor's either to be checked. But, I'm going to do what you do. Prepare my food elsewhere. That's a good idea. I can do it at my computer desk in my room. Thank you for that idea. That'll help, I'm sure.

Think I should just take out all 8 common allergens? Readd them one by one? I guess I'll have to try it that way. Going to take a longgg time, but better than nothing. I just seriously can't handle all this pain. It hurts so bad when I get sick, ugh. ~_~

sa1937 Community Regular
sa1937
Posted

Lcopene, I'm so sorry to hear you are so sick. Can you cancel your friend coming over today and just crawl back in bed?

Are you newly gluten free? I've only been gluten free for two weeks and feel so much better, although I didn't feel great a week ago after cleaning out my gluteny pantry. It's such a huge learning curve and I'm still astonished that companies seem hell-bent to put gluten in so many products.

I hope you feel better soon!

i-geek Rookie
i-geek
Posted
Think I should just take out all 8 common allergens? Readd them one by one? I guess I'll have to try it that way. Going to take a longgg time, but better than nothing. I just seriously can't handle all this pain. It hurts so bad when I get sick, ugh. ~_~

Probably. You might just need to give your gut time to heal. Sadly it doesn't happen overnight (I wish it had!); it took a while and a lot of damage to get to this point so it will take time to go back. I couldn't tolerate any dairy, even stuff that was essentially lactose-free (butter, hard cheese) for a couple of months after going gluten-free. Ditto for things like broccoli, bell peppers, and alcohol. I didn't have problems with soy but it's a really common trigger food. Ditto for eggs. Try it and see if you feel better after a couple of weeks, then add them in one at a time to see what happens. You might find that after giving your gut a break, you can handle more things. Or not, but at least you'll know what to avoid.

Sharing a kitchen with gluten-eaters is hard, too. My husband and I finally decided that our kitchen had to be gluten-free except for his homebrewing (and he has his own pans and supplies for that). But I like the suggestion for you to store and prepare everything in a separate place. If you can manage the cost, maybe pick up a cutting board, a pan or two, and a colander (if you make pasta) for your use only. Places like Target and Walmart usually offer some good deals on kitchen stuff.

Lycopene Rookie
Lycopene
Posted
  • Author

I've been diagnosed for a year, but only been steadily on the diet for 6 weeks. (Been on it for longer periods of time before, but I always cheated... never again!... on purpose, ugh).

Can't cancel though. =/ So it's gonna be hellish. D: She'll be here in about 2 hours... bah. )=

kareng Grand Master
kareng
Posted

Just a few thoughts for living with Gluten Eaters! I have these thin plastic "cutting boards". Got them at Bed bath & beyond but have seen at Walmart, etc. Usually a set of 4 is less then $10. I put one on the counter when preparing my food even if I have washed the counter or table. Could use for a place mat, too. Would give you a good surface if you want to prepare in another room. If you don't have your own plates, pans, knives, etc I would wash & dry with your own clean sponge & towel before use. I have to remind the kids that when pouring ketchup or BBQ on bread, don't touch the bread(good idea anyway). If you share these things, might want to get your own & some colored tape (Duct at Walmart in many colors) & cover it in tape to show them not to use it.

Also, I think you are new to this & my first 4 weeks or so, I felt better but had bad days or hours. I think that some foods are hard to digest & my intestines are not able to yet (popcorn bothered me but not now - maybe its scratchy).

Good Luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kayo Explorer
kayo
Posted

I hope this doesn't sound snarky but why would you scoop cat food bare handed?

We have a cat as well and keep her food in a tupperware container than we can shake out into her bowl. This way I never touch her food.

It's good practice for us gluten-free folks to be really wary of what we touch, wash our hands frequently and treat anything with gluten the same way we would handle raw chicken. If I'm suspicious of something I use my left hand. I'm right handed and typically would scratch my nose, for example, with my right. Same goes with door handles and accepting something handed to me. I always use the left. This way my right hand stays less contaminated.

Wow, that sounds so Howard Hughes (OCD) of me! B) I find it helps though.

Lycopene Rookie
Lycopene
Posted
  • Author

@Kayo

I dunno. I guess it's just laziness. She eats *SO* much, so I have to keep filling up her bowl. Bah, it was stupid. I wasn't thinking. I worry about MY food all the time that I didn't think to worry about HER food too. And yeah, I know what you mean. I'm left-handed so I do the exact same stuff, just opposite. [:

@i-geek

This is just so weird. Really unlike anything I've ever experienced. I'm going to only eat whole foods now. Nothing processed or packaged. No soy, dairy, and obviously no gluten. I am in UNBELIEVABLE pain today. My gut just hurts like it's never hurt before... I'm going to go lay down after this. ]:

It's sort of overwhelming. x_x

@kareng

Yeah. I'll be going out later today to get some of those plastic cutting boards. That's a great idea.

@everyone

I'm going to try to get her eating gluten-free cat food as well. I'll look into purchasing that later. Heh.

kareng Grand Master
kareng
Posted

Wow, that sounds so Howard Hughes (OCD) of me! B) I find it helps though.

:P:P:P

Reba32 Rookie
Reba32
Posted

why not just get the cat some gluten free food? Cats are carnivorous anyway, why would she need wheat, barley or rye in her food?

Open Original Shared Link

K8ling Enthusiast
K8ling
Posted

:P:P:P

I'm OCD about handwashing anyway, it probably helps the CC issues LOL

Lycopene Rookie
Lycopene
Posted
  • Author

I usually am too! I've just been so out of it from my previous glutenings that I just let it happen again. Ugh.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.