Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain Question

k2626

By k2626
in Coping with Celiac Disease

Recommended Posts

k2626 Explorer
k2626
Posted

Hi guys, patiently awaiting my results. I was wondering if you can describe your joint pain to me. I have two different kinds, one that is like a stinging and deep pain that hits from a few seconds to minutes and mainly smaller joints like in my finger or toes, foot, sometimes ankle. Does anyone get these? It feels like a cross between a quick bee sting and deep bone pain.

The other pain I get is loose joint pain, when my joints grind...

All my symptoms seem to come in waves and with different degrees of severity. At its worst, I was getting hundreds of muscle twitching per day, as well as hundreds of joint cracks, and I had the stinging/zapping pains hopping around my joints all day. However, that was when I was undergoing serious stress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

Check out the following link..

Mtndog Collaborator
Mtndog
Posted

Hi guys, patiently awaiting my results. I was wondering if you can describe your joint pain to me. I have two different kinds, one that is like a stinging and deep pain that hits from a few seconds to minutes and mainly smaller joints like in my finger or toes, foot, sometimes ankle. Does anyone get these? It feels like a cross between a quick bee sting and deep bone pain.

The other pain I get is loose joint pain, when my joints grind...

All my symptoms seem to come in waves and with different degrees of severity. At its worst, I was getting hundreds of muscle twitching per day, as well as hundreds of joint cracks, and I had the stinging/zapping pains hopping around my joints all day. However, that was when I was undergoing serious stress.

Ugh....joint pain is the WORST! The stinging pain sounds like it might be nerve pain which is awful. I've had neuropathy off and on and the only thing that helps me is ketoprofen (it's an anti-inflammatory my doctor prescibes- for some reason it works on nerve pain).

For muscle twiching/spasming, I take a magnesium supplement and that helps. Make sure you stay hydrated as well.

Hope you get your results soon. Going gluten-free should help! You may want to ask your doctor about an anti-inflammatory until then.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Fluffy Coconut Banana Pancake—Baked, Gluten-Free, and Family-Style

    2. elisejunker44
      - elisejunker44 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Schar's products contain wheat!

      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free...
    3. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time. This makes it very hard for the body to absorb and utilize it. Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down. Thiamine Hydrochloride is great. Benfotiamine is wonderful, too. Retaining...
    4. Known1
      - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

      Thanks again, I'll keep pressing on. 🤞
    5. knitty kitty
      - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient". It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light. If not absorbed, excreted. Absorption of riboflavin will improve...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,597
    • Most Online (within 30 mins)
      7,748
    Caroline Alexandria
    Newest Member
    Caroline Alexandria
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • elisejunker44
      Schar's products contain wheat!

      By elisejunker44 · Posted

      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time.  This makes it very hard for the body to absorb and utilize it.  Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down.   Thiamine Hydrochloride is great.  Benfotiamine is wonderful, too.   Retaining water, edema, is a symptom of low thiamine.  I'd bloat up like a puffer fish.   The ingrown toenail problems I had that I attribute to Niacin deficiency and Vitamin C deficiency.  My toenails curled in and grew thick and yellow, thickened heels.  It was awful.   So glad you're going to give thiamine hydrochloride a try!   Let me know how it goes.  You may feel worse before you feel better, the thiamine paradox, but it does clear up.  It's like a car back firing if it hasn't been run for a while.   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • Known1
      Diagnosed Marsh stage 3C in January 2026

      By Known1 · Posted

      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      Diagnosed Marsh stage 3C in January 2026

      By knitty kitty · Posted

      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.