Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain Question

k2626

By k2626
in Coping with Celiac Disease

Recommended Posts

k2626 Explorer
k2626
Posted

Hi guys, patiently awaiting my results. I was wondering if you can describe your joint pain to me. I have two different kinds, one that is like a stinging and deep pain that hits from a few seconds to minutes and mainly smaller joints like in my finger or toes, foot, sometimes ankle. Does anyone get these? It feels like a cross between a quick bee sting and deep bone pain.

The other pain I get is loose joint pain, when my joints grind...

All my symptoms seem to come in waves and with different degrees of severity. At its worst, I was getting hundreds of muscle twitching per day, as well as hundreds of joint cracks, and I had the stinging/zapping pains hopping around my joints all day. However, that was when I was undergoing serious stress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

Check out the following link..

Mtndog Collaborator
Mtndog
Posted

Hi guys, patiently awaiting my results. I was wondering if you can describe your joint pain to me. I have two different kinds, one that is like a stinging and deep pain that hits from a few seconds to minutes and mainly smaller joints like in my finger or toes, foot, sometimes ankle. Does anyone get these? It feels like a cross between a quick bee sting and deep bone pain.

The other pain I get is loose joint pain, when my joints grind...

All my symptoms seem to come in waves and with different degrees of severity. At its worst, I was getting hundreds of muscle twitching per day, as well as hundreds of joint cracks, and I had the stinging/zapping pains hopping around my joints all day. However, that was when I was undergoing serious stress.

Ugh....joint pain is the WORST! The stinging pain sounds like it might be nerve pain which is awful. I've had neuropathy off and on and the only thing that helps me is ketoprofen (it's an anti-inflammatory my doctor prescibes- for some reason it works on nerve pain).

For muscle twiching/spasming, I take a magnesium supplement and that helps. Make sure you stay hydrated as well.

Hope you get your results soon. Going gluten-free should help! You may want to ask your doctor about an anti-inflammatory until then.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,205
    • Most Online (within 30 mins)
      7,748
    pinetopgarden
    Newest Member
    pinetopgarden
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.