Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Gluten Free And Need Some Tips


sfsassy

Recommended Posts

sfsassy Rookie

Hi everyone,

I am in the beginning stages of this process. I figured out the gluten intolerance after doing an elimination diet.

After that, my GI did a genetic test that confirmed I had one of the Celiac genes, but not necessarily the disease. He said the gold standard is to get a biopsy. I had a biopsy a year ago that found H Pylori (no Celiac) but all my major symptoms started 6 months after the H Pylori.

So question 1: Can H Pylori trigger Celiac Disease (if you have the gene)?

In any case, my body is reacting pretty well to a gluten free diet. I am about 3 weeks in now. I am also coming slowly off my elimination diet. I am adding some other things back in.

Question 2. Since adding dairy and soy back into my diet I have noticed some slight discomfort (nothing like eating gluten though). Are these good things to add in later? Should your body heal more before adding these back?

Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

I'll hit up question 2, and let someone else answer number 1. If you are having some discomfort, I would drop the dairy and soy back out of your diet, and add only one at a time after a few months. Some say 6 months. I added them back after about 4-5 month gluten free, and it's been hit or miss until recently. Now I can have a few ounces of dairy per day, and I'm fine. Soy -- there's all new debates and old about soy and whether or not it is good for us. I try to limit my exposure to it, as I make all my own food for the most part.

sfsassy Rookie

I'll hit up question 2, and let someone else answer number 1. If you are having some discomfort, I would drop the dairy and soy back out of your diet, and add only one at a time after a few months. Some say 6 months. I added them back after about 4-5 month gluten free, and it's been hit or miss until recently. Now I can have a few ounces of dairy per day, and I'm fine. Soy -- there's all new debates and old about soy and whether or not it is good for us. I try to limit my exposure to it, as I make all my own food for the most part.

Thanks for the info. I was thinking I needed to wait a bit longer. I have also heard recently that soy is under great debate too.

Skylark Collaborator

There is an association between celiac and H. pylori but I did a search and didn't turn up reports of H. pylori triggering celiac disease in the medical literature. That doesn't mean it didn't happen to you, of course.

It took me a full year eating gluten-free before I could tolerate soy and milk without GI symptoms.

sfsassy Rookie

There is an association between celiac and H. pylori but I did a search and didn't turn up reports of H. pylori triggering celiac disease in the medical literature. That doesn't mean it didn't happen to you, of course.

It took me a full year eating gluten-free before I could tolerate soy and milk without GI symptoms.

I did read somewhere that sometimes a traumatic event or illness sometimes triggers it. (Meaning you always had it, but without symptoms) I was trying to figure out how this all started. It's been a crazy year.

But from what I have seen, it sometimes takes a lot longer to figure out, so I am thankful. Both my reg Doc and GI looked at Celiac very quickly.

RideAllWays Enthusiast

I've been dairy free for 7 years(ish) and now after one year gluten free I am able to tolerate little bits of dairy here and there, like in chocolate. I'm scared to fully try a real milk product but I'm thinking of doing it soon just to see.. I assume it will be a different time frame for anybody and some people may not outgrow the intolerances as they heal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.