Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take You To Get The Diet Right?


Shannonlass

Recommended Posts

Shannonlass Apprentice

So I've been gluten free for about 11 weeks. Most times I feel I get the diet right but on occasion I know I've been glutened though I cannot always tell from where. So my question is how long do you feel it was before you had gotten to grips with the diet and were avoided getting glutened 99% of the time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kayo Explorer

Mmmm, let's see.... gluten free for about 10 months and still coming to grips with it. ;)

I'm at a point where 3-4 weeks will pass with no CC issues. I have a good handle on it at home but it's eating out and eating at other people's homes where the risks get me.

MagpieWrites Rookie

Ummm.... I'm at just about the one year mark and am finally thinking I'm okay with keeping things on an even beam - most of the time. Had a moment of moron this last week (two bags of oats in the cupboard - one gluten-free, one just Bob's Red Mill NOT gluten-free. Guess which one I grabbed, make cookies from, and ate? Yeah. That bag... is now at my inlaws house and with it - no more gluten anywhere in my home!) but beyond that? When I got the celiac diagnosis, I pretty much purged the house. Scrapped any suspect pans, picked up a new toaster, etc - so all I have to do is keep what comes in on the safe side and I don't have to worry about it all that much. I'm lucky that my NON-gluten-free husband decided to go gluten-free at home, so there isn't any worry about cc.

The biggest thing I've had to learn is to travel at all times with snacks. I keep dried fruit, cheese sticks, homemade crackers, etc in my purse at all time, along with a refillable water bottle. This keeps me from just grabbing things when I'm out that I "think" are gluten-free and lets me be sure.

Cross Contamination still happens occasionally, but all in all, I think I'm in a really healthy place at last.

ciavyn Contributor

Honestly, the only time you risk CC is when you eat out (unless you have a bag of gluteny oats hiding somewhere in the pantry...;)). If you've cleaned out your kitchen, regularly wipe down your counters and you are careful, you should be okay. Most of it is habit. Once you get used to eating this way, you simply do. It isn't as hard as it is in the beginning. For the most part, I have no issues, except a once in a while drive-by glutening at a restaurant. :)

Skylark Collaborator

I had it down after a few months. A subscription to the Clan Thompson software really helped me learn. After five years of eating gluten-free I've become much more sensitive (or maybe my health has improved to the point that I notice a glutening more) and am having to learn all over again. :blink: Suddenly the "may be manufactured on equipment used to process wheat" line has become a concern where it wasn't before.

Northern Celiac Newbie

Hi, It took me 6 months to get it right. And then it was almost by accident that I got it right. I had real bad insomnia during the bad time as I call last yr. I was watching 30 minute meals and started cooking mediterranean style almost by accident. I make my own hummus and bake my own crackers. The meals I make are from scratch and the only thing I use that is packed is gluten-free pasta, tomatoes, and vegetables from a jar, when they aren't in season. Occasionally I will have a gluten-free pizza, or a glutino meal(pad thai) but not very often.

Rachel ray is right it doesn't take that long to make something from scratch.

sandsurfgirl Collaborator

Do you think maybe you are just still healing? I would get symptoms when I knew I wasn't glutened because I had cooked all my food. I have a gluten free house too.

My kids were glutening me with their crumbs so they are on gluten free stuff in the home.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

It depends on how sensitive you are. I'm very sensitive and it took me around 2 years. I still play Russian roulette every time I decide to try to add something new to my diet. The only way for me to tell if I can eat it is to give it a try. Just because some other celiac can eat it, does not mean I can!

Shannonlass Apprentice

I am fairly confident our home is gluten free. I bring my own lunch to work and eat it on clean napkins to ensure I don't pick up crumbs from the tables. I do cook a lot of meals from scratch now. Have really gone back to basics. Only tonight I made chili con carne and it actually tasted really good. We eat out maybe once a week and so far I haven't gotten any severe glutenings. Normally we eat at reputable restaurants who understand the condition and are very willing to discuss the ingredients and cooking processes with me. I know lots of folk on this forum are extremely anti-buffets. I have eaten at them a few times and had no issues. (The chef has always come out and walked me through each dish's ingredients.) It will be interesting to see if I get more sensitive and cannot do buffets anymore. (They are really popular here in UAE!)

Skylark Collaborator

Ah, buffet roulette. I've seen people pick up a serving spoon and serve themselves from two or three dishes before replacing it. A scoop of mac and cheese, and then a scoop of that rice you thought was safe with the same spoon. Then a scoop of gravy from the back of the table that they manage to drip on everything else on the way to the plate . :blink:

buffettbride Enthusiast

I'd say a year before I was completely confident with it and we were going months without a glutening. We're down to about 3-4 glutens a year *knock on wood* that are usually restaurant cross-contamination related. Pretty good considering we eat out several times a month.

We keep our house gluten-free, so other than the one time I bought the wrong kind of cookies, no issues at home at all.

The first few months there was a glutening about once a week--then once a month--and it tapered off from there. It's tricky to get the hang off, especially cross-contamination.

Shannonlass Apprentice

Ah, buffet roulette. I've seen people pick up a serving spoon and serve themselves from two or three dishes before replacing it. A scoop of mac and cheese, and then a scoop of that rice you thought was safe with the same spoon. Then a scoop of gravy from the back of the table that they manage to drip on everything else on the way to the plate . :blink:

I'm not sure if it has to do with the establishments we eat at but I have never seen this happen. I have watched for it since I was diagnosed though because I had read the negative reaction towards them here. Buffets are a way of life here. They are a huge social outlet.

The buffet stations here are fairly large. There is a space between each dish. Each dish has it's own spoon that lives in a holder attached to it. Here the lids are always kept shut on the food so if you have your plate of food in one hand you have to put down the spoon before shutting the lid...if you get my drift! At our favourite buffet the bread is kept well away from all the food at another table which is good. I've been for about 4 buffets since I was diagnosed and I'm either totally insensitive to gluten or I have been very lucky. I've had no symptoms after them and have been monitoriing my body like a hawk as I was so paranoid

Skylark Collaborator

That's totally different from buffets here. I'd not worry either if all the dishes were covered with their own spoons and all. How nice that you have that!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.