Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take You To Get The Diet Right?


Shannonlass

Recommended Posts

Shannonlass Apprentice

So I've been gluten free for about 11 weeks. Most times I feel I get the diet right but on occasion I know I've been glutened though I cannot always tell from where. So my question is how long do you feel it was before you had gotten to grips with the diet and were avoided getting glutened 99% of the time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kayo Explorer

Mmmm, let's see.... gluten free for about 10 months and still coming to grips with it. ;)

I'm at a point where 3-4 weeks will pass with no CC issues. I have a good handle on it at home but it's eating out and eating at other people's homes where the risks get me.

MagpieWrites Rookie

Ummm.... I'm at just about the one year mark and am finally thinking I'm okay with keeping things on an even beam - most of the time. Had a moment of moron this last week (two bags of oats in the cupboard - one gluten-free, one just Bob's Red Mill NOT gluten-free. Guess which one I grabbed, make cookies from, and ate? Yeah. That bag... is now at my inlaws house and with it - no more gluten anywhere in my home!) but beyond that? When I got the celiac diagnosis, I pretty much purged the house. Scrapped any suspect pans, picked up a new toaster, etc - so all I have to do is keep what comes in on the safe side and I don't have to worry about it all that much. I'm lucky that my NON-gluten-free husband decided to go gluten-free at home, so there isn't any worry about cc.

The biggest thing I've had to learn is to travel at all times with snacks. I keep dried fruit, cheese sticks, homemade crackers, etc in my purse at all time, along with a refillable water bottle. This keeps me from just grabbing things when I'm out that I "think" are gluten-free and lets me be sure.

Cross Contamination still happens occasionally, but all in all, I think I'm in a really healthy place at last.

ciavyn Contributor

Honestly, the only time you risk CC is when you eat out (unless you have a bag of gluteny oats hiding somewhere in the pantry...;)). If you've cleaned out your kitchen, regularly wipe down your counters and you are careful, you should be okay. Most of it is habit. Once you get used to eating this way, you simply do. It isn't as hard as it is in the beginning. For the most part, I have no issues, except a once in a while drive-by glutening at a restaurant. :)

Skylark Collaborator

I had it down after a few months. A subscription to the Clan Thompson software really helped me learn. After five years of eating gluten-free I've become much more sensitive (or maybe my health has improved to the point that I notice a glutening more) and am having to learn all over again. :blink: Suddenly the "may be manufactured on equipment used to process wheat" line has become a concern where it wasn't before.

Northern Celiac Newbie

Hi, It took me 6 months to get it right. And then it was almost by accident that I got it right. I had real bad insomnia during the bad time as I call last yr. I was watching 30 minute meals and started cooking mediterranean style almost by accident. I make my own hummus and bake my own crackers. The meals I make are from scratch and the only thing I use that is packed is gluten-free pasta, tomatoes, and vegetables from a jar, when they aren't in season. Occasionally I will have a gluten-free pizza, or a glutino meal(pad thai) but not very often.

Rachel ray is right it doesn't take that long to make something from scratch.

sandsurfgirl Collaborator

Do you think maybe you are just still healing? I would get symptoms when I knew I wasn't glutened because I had cooked all my food. I have a gluten free house too.

My kids were glutening me with their crumbs so they are on gluten free stuff in the home.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

It depends on how sensitive you are. I'm very sensitive and it took me around 2 years. I still play Russian roulette every time I decide to try to add something new to my diet. The only way for me to tell if I can eat it is to give it a try. Just because some other celiac can eat it, does not mean I can!

Shannonlass Apprentice

I am fairly confident our home is gluten free. I bring my own lunch to work and eat it on clean napkins to ensure I don't pick up crumbs from the tables. I do cook a lot of meals from scratch now. Have really gone back to basics. Only tonight I made chili con carne and it actually tasted really good. We eat out maybe once a week and so far I haven't gotten any severe glutenings. Normally we eat at reputable restaurants who understand the condition and are very willing to discuss the ingredients and cooking processes with me. I know lots of folk on this forum are extremely anti-buffets. I have eaten at them a few times and had no issues. (The chef has always come out and walked me through each dish's ingredients.) It will be interesting to see if I get more sensitive and cannot do buffets anymore. (They are really popular here in UAE!)

Skylark Collaborator

Ah, buffet roulette. I've seen people pick up a serving spoon and serve themselves from two or three dishes before replacing it. A scoop of mac and cheese, and then a scoop of that rice you thought was safe with the same spoon. Then a scoop of gravy from the back of the table that they manage to drip on everything else on the way to the plate . :blink:

buffettbride Enthusiast

I'd say a year before I was completely confident with it and we were going months without a glutening. We're down to about 3-4 glutens a year *knock on wood* that are usually restaurant cross-contamination related. Pretty good considering we eat out several times a month.

We keep our house gluten-free, so other than the one time I bought the wrong kind of cookies, no issues at home at all.

The first few months there was a glutening about once a week--then once a month--and it tapered off from there. It's tricky to get the hang off, especially cross-contamination.

Shannonlass Apprentice

Ah, buffet roulette. I've seen people pick up a serving spoon and serve themselves from two or three dishes before replacing it. A scoop of mac and cheese, and then a scoop of that rice you thought was safe with the same spoon. Then a scoop of gravy from the back of the table that they manage to drip on everything else on the way to the plate . :blink:

I'm not sure if it has to do with the establishments we eat at but I have never seen this happen. I have watched for it since I was diagnosed though because I had read the negative reaction towards them here. Buffets are a way of life here. They are a huge social outlet.

The buffet stations here are fairly large. There is a space between each dish. Each dish has it's own spoon that lives in a holder attached to it. Here the lids are always kept shut on the food so if you have your plate of food in one hand you have to put down the spoon before shutting the lid...if you get my drift! At our favourite buffet the bread is kept well away from all the food at another table which is good. I've been for about 4 buffets since I was diagnosed and I'm either totally insensitive to gluten or I have been very lucky. I've had no symptoms after them and have been monitoriing my body like a hawk as I was so paranoid

Skylark Collaborator

That's totally different from buffets here. I'd not worry either if all the dishes were covered with their own spoons and all. How nice that you have that!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.