Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Non Celiac Gluten Intolerance


AlysounRI

Recommended Posts

AlysounRI Contributor

Hello all:

For those of you who have much more research and have lived this for longer, can you tell me if those who are obviously gluten intolerant without being diagnosed celiac, face cancers and other health problems down the line

if they continue to eat gluten or become glutened?

Obviously celiac requires that you be gluten free for medical reasons or considerable health problems are bound to occur. But does gluten intolerance, aside from being a painful inconvenience in one's life, set you up for the same problems.

I was thinking about this yesterday after reading one of the posts on this board.

I'd be interested in hearing people's opinions.

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

In my opinion they are the same thing. Both are autoimmune but GI can attack other organs than the gut before the gut system is effected. Some would consider me GI because of my consistantly negative blood work but as you can see the effects on my body were just as bad. Most of my issues were in place long before the GI symptoms hit, like for almost 30 years if you are counting DH and ataxia which I had since childhoood.

AlysounRI Contributor

Thank you Raven.

I knew that you would have a good reply for me.

I appreciate your input.

~Allison

lynnelise Apprentice

I'm glad you asked, I have wondered this as well. My bloodwork was negative but I have very bad reactions to gluten and low B-12. A EGD done to check for ulcers showed my small intestines were very inflamed but no biospy was taken so it kind of leaves me clueless as to whether I'm at risk for the kind of problems affecting celiacs down the road!

Jestgar Rising Star

In my opinion they are the same thing.

Emphasizing the word opinion here, as there are no studies done on what we call gluten intolerance. I, however, am of the same opinion as RWG. I think they are two (multiple?) versions of the same thing.

Pac Apprentice

Emphasizing the word opinion here, as there are no studies done on what we call gluten intolerance. I, however, am of the same opinion as RWG. I think they are two (multiple?) versions of the same thing.

It depends on the definition of gluten sensitivity/intolerance. There are some articles about mortality risk in both celiac and gluten sensitivity, where gluten sensitivity means patient has anti-gliadin antibodies but not celiac antibodies. Defined like that, the risk of malignacies and over-all death rate is similar in both. One interesting fact that all studies seem to agree on is lower risk of breast cancer for gluten intolerant population.

Otherwise I'm also of the same opinion as Ravenwoodglass. It's easy to diagnose apparent celiac disease, but that doesn't mean it's the only or superior damage gluten can trigger in our bodies. From what I can watch in my body, gluten can damage nerves and other tissues directly, no vitamin deficiency via villous atrophy needed.

Jestgar Rising Star

what are you calling celiac antibodies? I'm not familiar with that term.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

He's most likely referring to tTG antibodies which are not needed for a gluten sensitivity.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,541
    • Most Online (within 30 mins)
      7,748

    Jacqueline Dee
    Newest Member
    Jacqueline Dee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.