Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Grains Tested Postive For Gluten


minamoo

Recommended Posts

minamoo Newbie

Very interesting article regarding Gluten found due to contamination in grains such as Rice, Millet, Soy and Sorgum.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kathleen Smith Contributor

Thats a great article. I guess I always thought in the back of my mind this could of course happen, but to read that samples analyzed actually had enough of an amount to make celiacs sick is upsetting. Is this true for rice as well?

thanks for posting

quincy Contributor

Thats a great article. I guess I always thought in the back of my mind this could of course happen, but to read that samples analyzed actually had enough of an amount to make celiacs sick is upsetting. Is this true for rice as well?

thanks for posting

this is just depressing. We are fighting something we cannot see and this is frustrating. I feel like I cannot trust anything or anyone but me right now. I miss eating without worrying...

I finally found Bob's Red Mill Gluten free oats. If anyone has any objections or advice on this let me know. I am only gluten free for 1 month and I am getting tired of Rice Chex for b'fast. I can't seem to tolerate anything with corn in it so my cereal choices are limited...

irish daveyboy Community Regular

Thats a great article. I guess I always thought in the back of my mind this could of course happen, but to read that samples analyzed actually had enough of an amount to make celiacs sick is upsetting. Is this true for rice as well?

thanks for posting

Released for publication June 1, 2010

Gluten Contamination of Grains, Seeds, and Flours in the United States: A Pilot Study. J Am Diet Assoc. 2010;110:937-940).

What follows is a summary of study findings.

In the FDA

WheatChef Apprentice

Well, on the bright side they only mention one whole grain in that list while all the other's are flours which means it's most likely that the contamination is occurring during the milling process. The whole grain was Millet, so looks like that one's another thing to add to the oat list.

Smith: they found 1 rice flour that had gluten in it but it was at 8.5 ppm which means technically it's gluten-free, they tested an additional rice flour that did not measure any gluten and they tested a number of rice grains that did not measure any gluten.

Quincy: You should just give up on grains for breakfast, heavy fats are much healthier for you to eat in the morning than any grains. Go with bacon and eggs or milk (whole fat) and a veggie or two. This will provide you with a much longer lasting steady stream of energy for the rest of your morning as well as priming your body for proper fat metabolism for the whole day.

quincy Contributor

Well, on the bright side they only mention one whole grain in that list while all the other's are flours which means it's most likely that the contamination is occurring during the milling process. The whole grain was Millet, so looks like that one's another thing to add to the oat list.

Smith: they found 1 rice flour that had gluten in it but it was at 8.5 ppm which means technically it's gluten-free, they tested an additional rice flour that did not measure any gluten and they tested a number of rice grains that did not measure any gluten.

Quincy: You should just give up on grains for breakfast, heavy fats are much healthier for you to eat in the morning than any grains. Go with bacon and eggs or milk (whole fat) and a veggie or two. This will provide you with a much longer lasting steady stream of energy for the rest of your morning as well as priming your body for proper fat metabolism for the whole day.

thanks Wheat Chef, not sure what trac to take as my lipid ratio of HDL to LDL is competely inverted for the worse. My ldl is high and my hdl is very low, so not sure about eating high fats. I understand many are grain free completely.

I did a modified atkins diet about 10 years ago (I never ate cheese or bacon/eggs), but lean meats and veggies and oatmeal in the am and completely reversed my cholestrol numbers.

any further thoughts appreciated.

sb2178 Enthusiast

Quincy-

One of the best ways to raise HDL is through exercise. I agree that a good shot of fat is important for breakfast, but go for avocado, fish, olive oil, or canola oil over animal fats most of the time.

Other possible breakfasts:

-salad (homemade olive oil dressing) with nuts and plenty of fruit OR hardboiled egg and other chopped veg

-beans... however you like them but with olive oil... with fruit or veg and milk

-fish and vegetables

-soup (honestly, I love leftover soup for breakfast. Clam chowder, black bean, lentil, even chicken vegetable would all be good.)

-avocado with tuna and fruit or veg

Ack. I've been eating millet for breakfast and lunch a lot. Guess I should do some research... but I can see how easily it could become contaminated in our silly food system.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

Consumption of cholesterol is not linked to heart disease, neither is animal fat. There were some poorly put together studies a while ago that started that whole scare which were denounced as being misleading by the alternative health movement and it wasn't until this year that mainstream journals finally started admitting studies showing the complete lack of correlation that had been assumed this whole time.

Whatever you do don't eat canola oil on purpose, lard is healthier than that one (but not lard with nitrites or rancid lard).

Open Original Shared Link

Open Original Shared Link

quincy Contributor

Consumption of cholesterol is not linked to heart disease, neither is animal fat. There were some poorly put together studies a while ago that started that whole scare which were denounced as being misleading by the alternative health movement and it wasn't until this year that mainstream journals finally started admitting studies showing the complete lack of correlation that had been assumed this whole time.

Whatever you do don't eat canola oil on purpose, lard is healthier than that one (but not lard with nitrites or rancid lard).

Open Original Shared Link

Open Original Shared Link

thanks for the info. to confirm your point WheatChef, I had a lipid profile done before I knew I had celiacs in February. By the time I had my follow up panel done in late April, my numbers came down off their highs so that total cholesterol was below 200 for the first time I can remember. I was on a basic diet of filet mignon, chicken, eggs, potatoes, and bananas. so go figure that my LDL actually dropped by almost 30 points. I understand that free range meats are the best but am having a hard time finding them other than in the organic stores which cost a fortune.

I am hoping this gets better folks. The frequent trips to the bathroom are getting tiresome... some people complain the opposite. at least most of my trips have normal results with the rest being a bit messed up.

sb2178 Enthusiast

Well, I guess that was a waste of a graduate degree... The mediterranean diet with lots of produce, mono-unsat fats, and small amounts of animal protein (much like the Okinawa diet) really is one of the best diet profiles in the world. ;-)

Honestly, I cannot endorse eating the vast majority of the animal products grown in the US. I don't recommend them partly because I cannot believe that human health does not depend on the health of the food animals we are consuming. It's not healthy these days, and the wider health and environmental impacts are horrifying.

For anyone not growing their own, or making a high five figure salary, it's not feasible to buy meat for three meals a day that meets the standard you would need for it to have a positive fat profile. Totally grass-fed (not grass-finished or grass-fed with grain-finish), just fine if your body tolerates it well and you eat a variety of cuts. Yes, those organ meats are pretty good for you.

Most of us can only afford it for once a week, at most. So we eat alternatives. Beans have lots of great nutrients, are cheap, easy to cook, and plenty of soluble fiber (like oatmeal).

If your total calories went down during a diet, that will also bring down blood lipids. So, yes, moderation in all. Cut out excess calories and trim down any "tummy fat" and that will help more than any tweaking with nutrient intake.

quincy Contributor

Well, I guess that was a waste of a graduate degree... The mediterranean diet with lots of produce, mono-unsat fats, and small amounts of animal protein (much like the Okinawa diet) really is one of the best diet profiles in the world. ;-)

Honestly, I cannot endorse eating the vast majority of the animal products grown in the US. I don't recommend them partly because I cannot believe that human health does not depend on the health of the food animals we are consuming. It's not healthy these days, and the wider health and environmental impacts are horrifying.

For anyone not growing their own, or making a high five figure salary, it's not feasible to buy meat for three meals a day that meets the standard you would need for it to have a positive fat profile. Totally grass-fed (not grass-finished or grass-fed with grain-finish), just fine if your body tolerates it well and you eat a variety of cuts. Yes, those organ meats are pretty good for you.

Most of us can only afford it for once a week, at most. So we eat alternatives. Beans have lots of great nutrients, are cheap, easy to cook, and plenty of soluble fiber (like oatmeal).

If your total calories went down during a diet, that will also bring down blood lipids. So, yes, moderation in all. Cut out excess calories and trim down any "tummy fat" and that will help more than any tweaking with nutrient intake.

yes, thank you. so true. I am going to the library to check out the mediterranean diet book. I have been thinking that for awhile. I think it will be the best for me. If anyone reading has had success on it please chime in.

Thanks!!

WheatChef Apprentice

Okinowan's (sp?) eat a lot of pork and use animal fats for cooking. Mediterranean cuisines feature plenty of organ meats with ample amounts of fat and cholesterol. Yes the fat profiles of our grain fed animals are completely off balance but at this point the research points to the ratio being more important than the amounts meaning that if you are consuming the bountiful amounts of omega-6s in cheap meats you can easily offset this with fish oil supplementation (which is awesome).

One fantastic thing about the Cretan diet (where the Mediterranean diet specifically comes from) is the notion of replacing all of your polyunsaturated cooking oils with the monounsaturated cooking oil from olives.

The actual cause for the decrease in heart disease in the Crete/Greece area is most likely closely related to the relaxed work environment of those two regions, a relationship that has been found across almost all countries.

Crud... another thread hijacked.

thleensd Enthusiast

Thats a great article. I guess I always thought in the back of my mind this could of course happen, but to read that samples analyzed actually had enough of an amount to make celiacs sick is upsetting. Is this true for rice as well?

thanks for posting

After I saw the abstract of this article the other day, I decided my grains needed a little more research. I emailed Lundburg farms, and they test their products for gluten contamination (I don't know if they test their plain rice, though...) They did say they don't have much control over what happens before it gets to their factory, but are very strict within their factory. Probably one of the safer companies, though. Bob's Red Mill also tests for presence of gluten.

That being said, the companies that are aware and do test are the ones that will get my money, even though they're generally a bit more expensive.

I wish the article gave specifics - company names and products!

I hope the FDA is carefully considering their new rules. ...."Millet: a naturally gluten free food ...but not really if you're sensitive. Or if you're not sensitive and we weren't very careful. Whatever. Here's a coin to flip"

<_<

quincy Contributor

Okinowan's (sp?) eat a lot of pork and use animal fats for cooking. Mediterranean cuisines feature plenty of organ meats with ample amounts of fat and cholesterol. Yes the fat profiles of our grain fed animals are completely off balance but at this point the research points to the ratio being more important than the amounts meaning that if you are consuming the bountiful amounts of omega-6s in cheap meats you can easily offset this with fish oil supplementation (which is awesome).

One fantastic thing about the Cretan diet (where the Mediterranean diet specifically comes from) is the notion of replacing all of your polyunsaturated cooking oils with the monounsaturated cooking oil from olives.

The actual cause for the decrease in heart disease in the Crete/Greece area is most likely closely related to the relaxed work environment of those two regions, a relationship that has been found across almost all countries.

Crud... another thread hijacked.

have you tried the coconut oil, cold pressed etc. not sure if the medium chain stuff is good. i have tried it recently and it made me sick, but then everything other than H20 or purple carrot juice makes me ill. soy milk yuk, coconut milk, yuk.

i am going to try bobs red mill gluten free oats and see the result. cautious though as contaminated oats and high grain cereals got me here in the first place...

WheatChef Apprentice

I absolutely love all coconut products. Coconut kefir is my go to drink when I want a delicious libation.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.