Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crying Spells


Coolclimates

Recommended Posts

Coolclimates Collaborator

I have been diagnosed with celiac disease since May 4. Since then, I've had several (probably 5 or 6) days of crying spells. They don't generally last real long and they often times just come out of the blue (so to say). I've been stressed out with some other things in my life lately, too, so this might be part of it. And these crying spells generally don't happen before I get my period (although I also suffer from PMS). The first few weeks were the worst and I cried like every 2-3 days. Anyone else experiencing this? Does this go away after awhile? Maybe it's part of the withdrawal symptoms that I'm suffering because I've suddenly changed my diet drastically?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Oh Honey! The first 2 months, most of us are in mourning - Even if we see the benefit and are all for the gluten-free lifestyle. It's not just even the foods we can't eat (because with time we find alternatives) . It's the lose of spontaneity. We must think about and plan our food lives. We can't just meet at any old bar for dinner or when running errands stop for a quick bite.

So.... Cry - because you have the right to.

Know - that it gets easier and life becomes more automatic

Have fun- trying new foods and using this as the excuse to eat something no one else in the family likes

You can do it! And it's OK to feel.

conniebky Collaborator

Hey hon, I have had a really bad week, I'm surprised they haven't said I'm posting too much this week!

Have you all ever seen the movie Somethings Gotta Give with Diane Keaton and Jack Nicholson? Diane Keaton goes on and on crying and crying until it becomes comical. It's one of my favorite scenes ever.

That's what I've been doing all week, and let me tell you, I'm a tough one, I don't go around crying. This morning I was trying to pay my phone bill and they kept telling me push this button, push that one, and it reduced me to tears.

I cried and cried cuz I didn't feel like pushing buttons. Cry, hon, it's good for you! The way I look at it, it cleans ya out, get rid of it - cry until you feel better, seriously. (((HUGS)))

kareng Grand Master

Hey hon, I have had a really bad week, I'm surprised they haven't said I'm posting too much this week!

Have you all ever seen the movie Somethings Gotta Give with Diane Keaton and Jack Nicholson? Diane Keaton goes on and on crying and crying until it becomes comical. It's one of my favorite scenes ever.

That's what I've been doing all week, and let me tell you, I'm a tough one, I don't go around crying. This morning I was trying to pay my phone bill and they kept telling me push this button, push that one, and it reduced me to tears.

I cried and cried cuz I didn't feel like pushing buttons. Cry, hon, it's good for you! The way I look at it, it cleans ya out, get rid of it - cry until you feel better, seriously. (((HUGS)))

Yea, you've been posting too much. :). Me too.

I know I would get so overwhelmed and frustrated trying to follow the push 1 , etc and not getting where you need to be.

Coolclimates Collaborator

Thanks, both of you, for your kind replies. Yes, I've seen that movie and it is pretty funny, even when Diana Keaton won't stop crying...

  • 5 weeks later...
aldea-muchacha Rookie

hey. I have been gluten free for a year now. I go through those spells when I cry. For no reason at all. If i have been contaminated sometimes i just feel really overwhelmed by nothing at all and just start crying for no good reason. Sometimes it seems like my brain will make up an excuse about what I am crying about, just to have a reason, but in reality, its usually not something that would make me cry. I don't know if thats the same thing you are talking about that, but if it is, then yes it happens to me too. I find that I have a lot of emotional symptoms when I eat something with gluten in it. Hope that helps!!

charles76 Newbie

I don't know if this is exactly the same, but I used to get really emotional before and during when I was going off of gluten. I also got more sensitive to it, or at least more responsive to already being sensitive to the gluten. One thing I know, having been able to directly related gluten to responding emotionally, is that there is a real, physical link, so don't give up figuring it out, and know that when you do you'll be able to know you're being affected by something for real. I didn't get spells, but embarrassingly bad social anxiety - talking to random strangers, that has definitely gone away since I'm gluten-free, in general, unless I get gluted - and in that case my reaction is much more manageable.

And, sorry if this is more private, but there is definitely a connection between hormones and gluten. There is a reason why autoimmune disorders are treated with cortisone. And its probably online somewhere that immune reaction causes depletion of hormones or inhibition of release.

Don't give up! You'll find the reason!

Oh, and extra protein seems to help me after and attack.. Good Luck to you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coolclimates Collaborator

thanks, everyone. I'm doing much better emotionally than I was before. In fact, no crying spells for over a month! I'm sure I'll get more in the future, but I won't let that bother me. I do also have problems with PMS (certain months are worse than others) so often I get crying spells during those times. Anyway, I feel like I'm in a better state emotionally.

txplowgirl Enthusiast

Witin 24 hours of having dairy or soy I will get depression and start crying over nothing.

  • 1 month later...
sweeeeet Rookie

I want to add to this post, I have crying spells frequently, but they are not due to depression. The spell will come on suddenly with my other symptoms right after I have ingested a trigger food like gluten or wheat, and are accompanied by extreme fatigue, brain fog, a spinning head, shortness of breath, a jumpy stomach, cramps and excessive distention and bloat.

I've been this way for years, when I try to control it in public, I have to scrunch my face up and keep it all in and try breathing slow, and people look at me and say, Oh my God what the bleep is wrong? And I tell them it's nothing, I'm used to it but I can't control it. At home, I let it all out and it feels better.

Anybody else hear of this?

  • 2 weeks later...
TiffersAnn Apprentice

I have been eating gluten free for 5 years now and sometimes I still break down into tears when I am surrounded by people eating pizza or muffins. I feel soooo much better that I do not eat that nasty gluten, but still can't help myself sometimes. Go ahead and get it all out, but remember that it's ok to cry as long as you know that you ARE GOING to FEEL BETTER. It does get easier.

Coolclimates Collaborator

ok, i've been crying more lately. But it's not just the fact that I'm not feeling better from the gluten-free diet after 4 months. I'm also in real danger of losing my job and having trouble finding other work, plus I was a victim in a car accident a month ago and have not had a car since (except for the last week in whom a nice man has lent me one of his Range Rovers). My car was totaled and the insurance company for the girl who crashed into me still have not claimed liability. However, I got some money from my insurance group, but not enough to pay for a new car. I've just been a huge ball of stress lately, and I feel tired and depressed a lot, plus anxiety. My parents (particularly my mom) have really been on edge, too, and that has not helped at all. The stress is getting to them, too.

mushroom Proficient

Sometimes it seems like life just piles too much on to us to handle all at once. I feel your pain. Your own insurance company should pay out on your policy and then arbitrate against the insurance company for the party at fault. Have you talked to your own insurance agent?? He might be able to help you locate another vehicle even if it isn't equivalent to what you had. (It hardly ever is because of depreciation). Thankfully you seem to have no injuries from the accident - try to look on the bright side. :)

I'm sorry I can't help you with your job. Have your talked with HR or whatever passes for HR wherever you work, and discussed your health problems and asked for special dispensation until you can get your health problems resolved? It is much better to be up front about these things than let them linger - like letting your house go into foreclosure instead of contacting your lender and working out a different repayment schedule or negotiating a new loan. You could possibly negotiate some flex time to cover the days when you cannot drag yourself to work???

I have not been totally following your symptom/recovery journey so don't know what to advise on where you're at with the gluten free journey. For some of us it takes longer to see the positive results from giving up gluten; for many of us (and I seem to recall you are one) it takes giving up other things which are creating intolerances as well. Try to stay the course and listen to what your body is telling you.

It is easy to get into the "victim" syndrome (this is a word you have used) and not be proactive about things. Admittedly it is a lot harder to be proactive when you are depressed,, but looking upon yourself as a victim only leads to the 'poor me' kind of depression which does not get anything done. I don't want to come across as hard-hearted, because I know how difficult is to deal with all these things piled on top of one another, but the goal here is to start getting out from underneath.

Tell your parents to lay off, you have enough problems already without adding them to the list. See if you can find some subsidized counseling because it is starting to sound like you are entering into a depressive syndrome that is going to require some professional help. There is no shame in asking for help - that's what they are there for.

Try to take control of your life again by doing things that will advance your wellbeing, And do seek counselling from some source.

{{{{{hugs}}}}}

Coolclimates Collaborator

thanks for your suggestions. But I'm already seeing a counselor, who is very good, several times a month. I just still have trouble. And my insurance company has offered me some compensation for the accident. I'm just angry because the insurance company of the other driver have been such jerks. I will be buying a new car soon, and the money given to me by my insurance agent certainly helps, but doesn't completely pay for a new car. I'm not opposed to getting a used car, but my dad is. And he is the one that is buying the car (I cannot afford to buy one myself).

I think I'd be much less depressed if I could get more work. It's just a bad feeling to be (nearly) out of work and feel like your talents and skills are going to waste. But so many other people are dealing with this, too, and many have it so much worse. So I should not complain too much, I guess.

My parents are extremely supportive of me and they are certainly willing to do fun things with me (and we still do). It's just a difficult spell for all of us right now.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,471
    • Most Online (within 30 mins)
      7,748

    731049
    Newest Member
    731049
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.