Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Anxiety

glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast
glutenfreegirl
Posted

I was just diagnosed and today is day 2 gluten-free. and I have this terrible anxiety, I want to cry all the time and feel so overwhelmed and sad. Is this normal??? I am so scared right now. Has this happened to anyone else, and why is it happening?? Should I not feel better gluten-free not worse??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kitgordon Explorer
kitgordon
Posted

If this is only your 2nd day gluten-free, it's probably too soon to be feeling much better physically, and emotionally you are going through a big change which is always stressful, perhaps mourning all the foods you can't eat. I think the way you are feeling is pretty natural, and will probably get better with time. Do you have a good support system of caring, supportive family and/or friends? Hope you feel better soon!

O.N. Rookie
O.N.
Posted

I was just diagnosed and today is day 2 gluten-free. and I have this terrible anxiety, I want to cry all the time and feel so overwhelmed and sad. Is this normal??? I am so scared right now. Has this happened to anyone else, and why is it happening?? Should I not feel better gluten-free not worse??

It seems to me that you may have an emotional reaction to the latest changes in your life. To get sick, then to go through all that tests to be diagnosed, then to accept the fact that you will never eat what you used to eat

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Thank you so much.

My son was diagnosed last year I had suspected gluten being the issue for a few years now. The dr just kept saying I was an anxious person and mom....give me a break..when your child is still fitting the same clothes for age 3 to age 8 there is a problem!!! so I pushed and finally he was diagnosed...YEH....then after I got him all settled I decided to test myself too as I had not felt well for about 4 years and bamb here we are.

I do not have a good support system aside from my wonderful children and husband, the rest of my family likes to pretend it is none existent and says that we are nuts and annoying with our food issues...nice right!!! so we pretty much do not bother with them.

We are new to the NY area how do I find a support group in my area? also you are right, I am very saddened by the lost of family that I am now seeing had gluten issues too but we did not know it then. 2 uncles dies from colon cancer, 1 from colitis/crohn's and my dad from inflammation of the intestines.....why don't people take this serious, why are we made to feel like we are crazy just looking for attention.

This is the hardest thing I have ever had to do. It was easy taking care of my son and getting him better, but I feeel so weak and overwhelmed in helping myself. I feel very alone and sad over what foods I have to give up. Crazy I know since logically Iknow it for the best and my health. But it is all so overwhelming and I really wish I had known then to have helped my dad....i also feel so overwhelmed with my food choices my GP said I was very malnourished and I do not know where to start, how to find a nutritionist I just feel very overwhelmed....I did not realize it until I started writing here today... So thank you for heloing the tears come out...it feels really good to get that off my chest with people that understand

conniebky Collaborator
conniebky
Posted

Hang in there, hon.

this is my third week gluten free and it's been my worst. I've had panic attacks, meanness, crying spells, I think it's all just part of the process. (((HUGS))) Maybe you are having yours early and getting it over with!

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Conniebky....Thank you...that is the first hug someone has given me since my diagnosis. I do not think people realize(or care for that matter) how hard this is....Phew it feels good not to feel alone any more..I am so glad I found this site today....

bluebonnet Explorer
bluebonnet
Posted

Conniebky....Thank you...that is the first hug someone has given me since my diagnosis. I do not think people realize(or care for that matter) how hard this is....Phew it feels good not to feel alone any more..I am so glad I found this site today....

it will get better and better each day. it is hard and you'll go through a withdraw! this site is full of encouragement and great tips ... hang in there and best wishes! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Bluebonnet, thank you...I really feel a sense of comfort here...funny I woke up this AM thinking how am I going to do this and then I found this site again...I had found it years back when I thought gluten was a problem but kept being told it was in my head by GP...thankfully that part is over, and I found you all again

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748
    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.