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Is Fatigue Normal *after* Going Gluten Free?


mamarie

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mamarie Rookie

I've been gluten free 8 days now. My stomach has never felt better. But I've been SO tired. I have to take a nap during the day. I'm exhausted by 8:00 at night and just feel like going to sleep. I feel like sleeping in every morning. I'm not normally so tired. I'm wondering if it has anything to do with going gluten free? I don't quite understand it.


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Jestgar Rising Star

Think of it like getting over the flu, it takes a while for your body to heal the damage that's been done, and it takes energy to do that.

GlutenFreeManna Rising Star

I felt terrible for about the first two weeks. Some people call it detox or withdrawl symptoms. Think of gluten as a very dangerous drug your body got used to you ingesting. It takes a while to feel 100% better. One other thing, however, if you keep feeling tired after a couple months gluten free you might have to eliminate other foods to help your body heal. I get extremely tired and achy when I eat soy.

bluebonnet Explorer

i remember wanting to fall asleep a few hours earlier in the evening than i normally do. (that's saying a lot because i have insomnia). of course i'd wake up during the night rather than sleep all through it but i welcomed the sleepiness! i was more tired than usual the first couple of weeks but it tapered off. :)

my.oh.my Newbie

When I went Gluten Free I literally fell into bed every afternoon and slept fpr gppd few hours. And what worried me the most was that I didn't have trouble falling asleep again at night....

At first I couldn't figure it out but after few inquires I learnt that it's very usual for your body to react this way when geting used to a complete new diet.

MagpieWrites Rookie

I've been gluten free 8 days now. My stomach has never felt better. But I've been SO tired. I have to take a nap during the day. I'm exhausted by 8:00 at night and just feel like going to sleep. I feel like sleeping in every morning. I'm not normally so tired. I'm wondering if it has anything to do with going gluten free? I don't quite understand it.

Are you getting everything your body needs now that you aren't eating gluten? I ended up being told by my doctor to start taking B complex vitamins because I was so tired all the time - most Americans apparently get their B vitamins from enriched cereals and processed foods (not a whole lotta liver and shellfish being eaten! lol) and with those gone, it can whomp your body.

I've been taking just an over the counter B complex vitamin for about 8 months now, and it seems to really help my energy levels. YMMV

Fey Rookie

I'm on day 10 of being gluten free, and days 2 and 3 I had more energy than I could handle. Since then, however, I've been extremely fatigued during the day, and don't get my energy burst until the evening, and then at bedtime I can't sleep because it's like someone finally turned my brain back on and I get restless.

I bought some homeopathic supplements and vitamins yesterday, and will be experimenting with those some to see if I can find what works for me.


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Coolclimates Collaborator

I also had a rough first couple of weeks with this diet. I was extremely tired and was an emotional roller coaster. Since fatigue is one of my major symptoms, I noticed it got worse when I started this diet. Now I'm back to about the same level of fatigue that I had before, although my parents said that I seem to be more alert and brighter. Fatigue, restless legs, insomnia are some of my main issues. I never had all that stomach trouble, although I do have acid reflux and have lost a fair amount of weight recently. I've been on the gluten-free diet for about 6 weeks now and haven't felt much better. I've heard that it can take months to feel better, especially if you don't have the "classic" stomach problems.

rain Contributor

I like Jestgar's comment - that's exactly how I feel. Only with the flu there are more familiar and clear signals as to why and when I need rest. With this the unpredictability can be frustrating. I am 4 months gluten free and still have ups and downs with healing. My sense of it is that as my body go thru phases of recovering I need rest.

Jestgar Rising Star

....... still have ups and downs with healing. My sense of it is that as my body go thru phases of recovering I need rest.

I had that same sort of thing. The 'ups' got longer and longer, and the 'downs' got less down. Now, after four years, I still have days when I just feel tired, but I have no way of knowing if it's still my body healing, or that's the closest I get to getting a cold. :)

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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