Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Better But Still Itchy Skin


michaelkl1

Recommended Posts

michaelkl1 Rookie

Well I have been on a gluten free diet for 5 weeks now, and most of my GI Symptoms have either gone away or reduced significantly. I did have a couple issues of getting gluten inadvertently, and I found that it took about 3 or 4 days for my GI symptoms to go away after getting glutened. Now my only symptom that has not gone away is my itchy skin. I don't have any rash or bumps, but my skin just is itchy in different parts of my arms, legs, chest and feet. The itchiness comes and goes, but it seems I have some itchy skin in at some part of my body most of the time. What can I do to get rid of this? Is this something that will take longer to go away?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Well I have been on a gluten free diet for 5 weeks now, and most of my GI Symptoms have either gone away or reduced significantly. I did have a couple issues of getting gluten inadvertently, and I found that it took about 3 or 4 days for my GI symptoms to go away after getting glutened. Now my only symptom that has not gone away is my itchy skin. I don't have any rash or bumps, but my skin just is itchy in different parts of my arms, legs, chest and feet. The itchiness comes and goes, but it seems I have some itchy skin in at some part of my body most of the time. What can I do to get rid of this? Is this something that will take longer to go away?

Hi and welcome!

That happened to me--I had to switch to unscented, gentle personal care products and "free and clear" type laundry detergent.

missy'smom Collaborator

I too have to be careful with personal products and dishwashing liquid-not a gluten issue. With my son, allergy testing and dietary elimination and reintroduction has helped up pinpoint triggers for his eczema-itchy skin that shows no rash or visible sign until it is scratched.

Fey Rookie

A few days after going gluten free I also had awfully itchy skin, though mine was food/medication related, I believe. Hives and the whole nine yards.

To be safe, I did get gluten free shampoo, conditioner and soap. I'm still itchy occasionally, but it doesn't stick around.

mushroom Proficient

Well I have been on a gluten free diet for 5 weeks now, and most of my GI Symptoms have either gone away or reduced significantly. I did have a couple issues of getting gluten inadvertently, and I found that it took about 3 or 4 days for my GI symptoms to go away after getting glutened. Now my only symptom that has not gone away is my itchy skin. I don't have any rash or bumps, but my skin just is itchy in different parts of my arms, legs, chest and feet. The itchiness comes and goes, but it seems I have some itchy skin in at some part of my body most of the time. What can I do to get rid of this? Is this something that will take longer to go away?

My itchy skin turned out to be intolerances to both soy and potato starch.

linuxprincess Rookie

Despite the lack of bumps or blisters, you might still have Dermatitis Herpetiformis or DH. Keep in mind that the damage done to your intestines is going to take up to two years to fully heal. I know that sounds ridiculous, but it is true. I would wait about 6 to 9 months on a solid gluten free diet before eliminating other foods from your diet you feel might be causing problems. DH is commonly aggrivated by iodine (and therefore salt) and dairy, and many people who still itch after going gluten-free for several months will cut these out of their diet to see if this will help.

There are steroid creams that you can get from your doc (helpful for not scratching during the night or when you're trying to concentrate on something). Don't waste your time on the OTC stuff you find in the drug store, it won't work. The Rx is fairly cheap, too. I'm uninsured and get mine refilled about once a year for around $15 or so in Texas.

glutenfr3309 Rookie

i had the same problem. i've always had dry skin but as soon as i went gluten-free i couldn't stop itching. i just associated it with my body expelling the gluten. i immediately switched to dove sensitive skin bodywash and that seemed to do the trick for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rdunbar Explorer

I've heard that there is "invisable" DH that itches only, and doesn't blister, and is not apparantly to the eye.

There's no rash, just the signature insane itchiness of DH

Mari Enthusiast

I don't use any comercial skin products, shampoos or detergents. I have had itchy skin, lizard skin and other skin problems which slowly cleared up of the gluten-free/df diet. I was glutened last Nov. and the itchy lizard skin took a month to show up and it did not clear up until about Feb. and that's about the time when the antibodies finally were cleared from my body.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.