Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Good Way To Get A Good Doctor


mushroom

Recommended Posts

mushroom Proficient

:rolleyes:

:unsure:

Get yourself admitted to the hospital where they have to call in specialists for consultation. I just got home from doing this (well, actually I was admitted kicking and screaming :lol: ).

I had already decided this summer to seek out a cardiologist, and the condition I was admitted for (atrial fibrillation) required the services of such a person. I was lucky that the hospital uses an association of cardiac physicians who take it in turns to cover the hospital consults. So I got to see four cardiologists during the course of my stay. Three of them were absolutely worthless, whilst the fourth (a woman :D ) is an absolute gem. I was watching baseball on TV and she came in wearing a baseball cap, and I liked her style. I talked to her about lectins and cardiac problems, prefacing my comments/questions with "You'll probably think I'm nuts, most doctors do, but..." and she said "No, I think there's very possibly a link. I would like to talk to you more about it." :wub: at first sight :) They are out there, but very hard to find. This way I got to find out about four of them without the appointments and one-hour consultations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Oh no, Shroomie! Glad your plan worked! :)

Hope you are doing better. Did you have to go "down the hill" or were you able to stay in the area?

jerseyangel Proficient

Sorry about the kicking and screaming part, but wow--that doctor sounds like a real peach! I hope she can help you sort this all out :)

Skylark Collaborator

Atrial fib? Wow, shroomie. I'm scared for you. :o I'm awfully glad you came out of the hospital OK. I hope you got onto some meds that have your heart rhythm under control.

mushroom Proficient

Well, it all turned out guys, that it was a lack of potassium after all, which is what I told them going in there. I told them about my prior a-fib and low potassium, and how I had been trying to penetrate the voice mail to get an "urgent" appointment with my PCP for an appt. and a prescription for potassium. Grrrrr -- I think I am going to tell my PCP that as much as I love her I am going to change physicians if she doesn't fire her P.A. This is the fourth time she has screwed me over, and she even did it again after I left the hospital, but that's another story. I was eating bunches of bananas through Tuesday on the advice of local pharmacist, trying to keep up my potassium levels, but when I went for the appointment that I finally got scheduled, she did an immediate EKG after listening to my heart and said I was in a-fib (I had been feeling lousy that morning) and was admitted through ER to ICU for three nights :o so they could monitor me. They tried all the standard heart drugs to bring me back to normal sinus rhythm, but none of them worked. I kept telling them I neeeded potassium but they said my potassium was normal on admission. I said it was just all the bunches of bananas I had been eating and I needed supplements. (May not ever eat another banana.)

Well, waddya know, they started me on IV potassium, and normal sinus rhythm returned within four hours :P . Then we had this big hassle over gluten free potassium supplements, no one could guarantee that there was no gluten in their product. So I set Dh to work on the computer and phone, and finally to our local compounding pharmacy. The pharmacist said, Forevvins sake, why don't they give her the elixir. That's how we always used to do it. So that's what got me out of there and back home. So yes, I am back at the lake, with the use of an overnight oxygenation machine for the rest of my stay, duly delivered at 7:00 p.m. (after the P.A. had failed to place the order :blink: even though she called me in the hospital and said she was doing it.) I had to call the company at 4:45 p.m. and they said they had no order. I hate that incompetent beotch. Four days of hospitalization, a cellulitis infection at an IV site (that's another story altogether), a take-home presriprtion of Keflex and probiotics plus the potassium and another heart med, which the pharmacy called and said said they can't fill untl tomorrow because it has to come from Sacto (along wth my potasium) Grrrr x 10 Stupid pharmacy clerk could not say they didn't have the stuff in stock when we dropped off the prescriptions. So will stuff down another banana tonight :rolleyes: And here I thought New Zealand medicine sucked :ph34r:

Anyway, all's well that ends well, I guess, and I have found my cardiologist :D Pity it took four days of my life :unsure: and I sure hope my insurance covers the ICU bill.:ph34r:

Skylark Collaborator

That's a hair-raising story. I'd be mad as hell at that P.A., and you might have the makings of a lawsuit for the amount of money your insurance doesn't cover from the ICU bills. If you had gotten through to your Dr. you could have avoided the hospitalization.

I'm so glad you got supplements sorted out. I'm really glad you found a good cardiologist in the process, even if it was under such terrible circumstances. I hope you recover from the cellulitis easily and your potassium stays good and steady now!

kareng Grand Master

Well, sorry to see that the practice of medicine at the lake has only gotten slightly better since I worked in P'ville. Do let the PCP know about his assistant.

For future reference, if you can take the sugar, apple juice and grape juice have lots of potassium. My oldest was haveing some problems last summer with 3 - 5 hour football workouts outside and then working at a fireworks tent. Gatorade doesn't have much Potassium.

Feel better so you can enjoy the beautiful location.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Well, sorry to see that the practice of medicine at the lake has only gotten slightly better since I worked in P'ville. Do let the PCP know about his assistant.

For future reference, if you can take the sugar, apple juice and grape juice have lots of potassium. My oldest was haveing some problems last summer with 3 - 5 hour football workouts outside and then working at a fireworks tent. Gatorade doesn't have much Potassium.

Feel better so you can enjoy the beautiful location.

Well, Kareng, don't be too quick to give the lake an undeserved bad rep - this was in Reno, at Renown Regional Medical Center where my doc practises :rolleyes: The docs at Incline Hospital gave me potassium on the first occasion and I converted quite quickly, so they got it right. :D

Interesting about the apple juice - will get some until the pharmacy gets their supplies from Sacto sometime today :ph34r:

Jestgar Rising Star

try here shroomie:

Open Original Shared Link

mushroom Proficient

try here shroomie:

Open Original Shared Link

Good link, Jess; thanks! It's a pity I can't eat a lot of those high potassium foods, but most of the high ones that are on the list that I don't have to avoid are in my diet. I have been on a different diuretic for about a year and that seems to have thrown the potassium out of whack, although I think??? they have been checking it pretty regularly. Don't have those records with me :(

Jestgar Rising Star

No chard or spinach? I thought those, at least, were on your 'ok' list. :(

mushroom Proficient

No chard or spinach? I thought those, at least, were on your 'ok' list. :(

Yeah, I eat lots of chard, but I think it is the oxalates in spinach that do a number on me :(

Skylark Collaborator

Good link, Jess; thanks! It's a pity I can't eat a lot of those high potassium foods, but most of the high ones that are on the list that I don't have to avoid are in my diet. I have been on a different diuretic for about a year and that seems to have thrown the potassium out of whack, although I think??? they have been checking it pretty regularly. Don't have those records with me :(

Diuretics can absolutely throw your potassium out of whack. Hypokalemia is a classic side effect of hydrochlorothiazide. There are combinations of diuretics designed to spare potassium. You might want to talk to your new cardiologist about changing the drugs you're on a little.

mushroom Proficient

Diuretics can absolutely throw your potassium out of whack. Hypokalemia is a classic side effect of hydrochlorothiazide. There are combinations of diuretics designed to spare potassium. You might want to talk to your new cardiologist about changing the drugs you're on a little.

Yeah, well that's what I did with a nephrologist when I was here last year and ended up in the ER with BP of 198/100 :unsure:

Had another nephrology consult in New Zealand and they concluded that what I was taking was probably the best way to go, but I am trying to think back about my potassium monitoring. Will have to send an email to my doc's nurse - those nurses in our clinic are great by the way, you can call them up and talk to them any day with no fricking voicemail and they will come in on the weekend to dress a wound or take care of cuts; they even make housecalls :wub:

P.S. I just got my prescriptions filled, and I am NOT going to take one of them - amiodarone. The contraindications for me are multiple and the side effects are horrendous, and it did not affect my arrhythmia when I was given it IV. :blink::wacko::o I will discuss it with the new heart doc as soon as I can get an appt. (she did not prescribe it).

Skylark Collaborator

I don't blame you for scrapping the Amiodarone if you're sure you have the potassium under control for the moment. I thought that stuff was a last-resort sort of medicine?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    2. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    3. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    4. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

    5. - sha1091a posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.