Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross-Contamination?


BrooklynFamily

Recommended Posts

BrooklynFamily Apprentice

Hello Again,

I'm going through the process of contacting many companies about whether or not their product is gluten-free. At this point, I'm mostly dealing with our personal products in the bathroom. I'm running into a lot of responses where they say that their product is gluten-free (i.e. contains no gluten ingredients), but they can't guarantee that the ingredients never met or were contaminated before they got to the factory by gluten ingredients. I feel like this is just their way of protecting themselves from lawsuits, but at the same time, I don't want to accidentally gluten my 2-year old son. Obviously if anything is showing up in their ingredient list, I'm tossing it out. But, how do I deal with the responses I'm getting? Are you throwing those items out as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I feel like this is just their way of protecting themselves from lawsuits

Yep.

The truth is that no company can make a guarantee that something they bought from a third party did not get contaminated while beyond their control. Not only do I not worry about these statements, I fully expect them from everybody.

BrooklynFamily Apprentice

Yep.

The truth is that no company can make a guarantee that something they bought from a third party did not get contaminated while beyond their control. Not only do I not worry about these statements, I fully expect them from everybody.

So, do you use the products where they make these statements?

psawyer Proficient

Yes, I do. As I said, I expect these statements from all manufacturers.

An honest guarantee will be qualified by the test used, so a maker could guarantee no more than, say, 20 ppm. The lowest level that can be tested for is 5 ppm. Most mainstream companies don't test at all, so they cannot make any guarantee.

scarlett77 Apprentice

I have found that the things hardest to figure out were the non-food items. There are some companies I would trust over others since some actually do care to make it a point to be brutally honest about their ingredients, factories, and production lines. I also Google search to see what other Celiacs have to say about products or product lines. Yes it is true no company can ever guarantee something like that. Which is why you will hear a disclaimer on everything. I recently went to Disneyland and they put out a list of places and items that are "safe" for those with wheat/gluten issues. They have a disclaimer at the bottom stating that it is YOUR responsibility to verify everything and that they take reasonable steps to prevent CC issues...but it cannot be guaranteed. Did that stop us from eating...no, but I did do research before I went about eating at Disney, and chose options that I believed would be less likely to be CC'd.

Like I said I usually use a 3 step system: 1) look at the ingredients, 2) contact the company, and 3) google it to see what others have to say about it.

BTW-My son is 2 also and was diagnosed just before his 2nd birthday. I know how overwhelming some of this can be. And don't get discouraged there will be set backs...I'm still learning some things. Last month I learned that wheat is a source for vitamin E and thus used in many beauty products.

nickim Newbie

What ingredient in soaps and bathroom supplies should I look for? Not sure what is not good for Celiacs in these products?

scarlett77 Apprentice

Look for things with Vitamin E (AKA Tocopheryl) or "tri" words such as "triticum" which means wheat. Not all "tri" words are wheat though so you do need to do some homework on them. Some brands are better at being up front with labeling by actually stating things like "wheat" on their labels. I tend to trust more in those brands along with user feedback.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nickim Newbie

Look for things with Vitamin E (AKA Tocopheryl) or "tri" words such as "triticum" which means wheat. Not all "tri" words are wheat though so you do need to do some homework on them. Some brands are better at being up front with labeling by actually stating things like "wheat" on their labels. I tend to trust more in those brands along with user feedback.

Do you know if they any of the regular cosmetics for ex. mabelline, loreal, cover girl, etc are gluten free?

scarlett77 Apprentice

CoverGirl will clearly list when ingredients on their labels and are very forthcoming about which products are safe/unsafe if you ask them. Neutragena is also pretty open. For face makeup I use Bare Minerals. Other than that I pretty much stick with CG & Neutragena.

I don't use Loreal or Mabelline products in general. I don't usually like their formulations anyway.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.