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Frances03

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Frances03 Enthusiast
Frances03
Posted

Can you all recommend some way for me to STAY INFORMED?? I went to the celiac disease foundation website and I was NOT impressed. I dont quit understand what I get with my $35 membership. Some "handbook" that is not explained at all, like I have no idea if it's a 4 page pamphlet or a 300 page notebook or what? What I'm wanting is some thing I can join or sign up for or something, that will keep me informed of news regarding celiac disease, and also products that are new, and products that were gluten free but are no longer, etc. Can anyone recommend something? I feel like I'm just out of the loop, as I have 3 children and am newly pregnant with our 4th (for the 4th time, 3 miscarriages before my diagnosis), and I want to make sure I'm doing the best I can for this pregnancy, etc. I know I'm rambling but I guess I'm feeling upset at the moment and overwhelmed, so I'm sorry about that. Thanks much for any help!

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ravenwoodglass Mentor
ravenwoodglass
Posted

I know it's frustrating. One of the best places I have found to stay informed is right here. Scott is good about posting new articles in the publications and publicity section of the board as well as on the home page. I know this wasn't real helpful and hopefully some others will have some other ideas.

tictax707 Apprentice
tictax707
Posted

The CDF website IS pretty lame. But they do send you a newsletter on a regular basis which I find useful, mainly for the ads. It's realy chock full of gluten free food ads. Some are the same old standards, but they are good about getting new product ads in too. As for the articles in the newsletter, I have found that it's hit or miss in terms of usefulness for me, but it seems like there is a lot of stuff dedicated to raising kids with celiac disease, which may be relevant to you. Hope this helps a bit! Sorry to hear you are so frustrated.

lucia Enthusiast
lucia
Posted

What about "Living Without" magazine? Is that any good?

sa1937 Community Regular
sa1937
Posted

I have to agree with ravenwoodglass. This forum is the best place to learn about this disease. I've learned more here than anywhere else. Just ask a question and someone will respond who has already been there, done that.

Recently I subscribed to Living Without. Just got my second issue. Well worth the money and they have a lot of info and recipes on their website, too. I got an introductory rate of $19.95 for a year (don't recall if it was from their website or Facebook).

BethM55 Enthusiast
BethM55
Posted

I enjoy the Living Without magazine and website, although the print magazine is kinda pricey. I signed up for emails from the website, and get recipes. The website is helpful, you might want to check it out. (livingwithout.com)

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I second staying here and going with the Living Without magazine.

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Frances03 Enthusiast
Frances03
Posted
  • Author

Okay, thanks guys! I'll definitely check out the living without mag and website. I hadn't heard of it at all, so this is great info. Keep it coming if anyone has any more suggestions!

BethM55 Enthusiast
BethM55
Posted

Okay, thanks guys! I'll definitely check out the living without mag and website. I hadn't heard of it at all, so this is great info. Keep it coming if anyone has any more suggestions!

I know this is off topic, but what is your picture? I remember that cartoon character, but can't remember from what! :lol:

Jestgar Rising Star
Jestgar
Posted

Is it a shmoo?

BethM55 Enthusiast
BethM55
Posted

Yes, a shmoo! Thank you, you have a good memory.

"Drawn by Al Capp in his comic strip Li'l Abner in 1948. The Shmoo is a small lovable creature. It laid eggs, gave milk, and died of sheer extacy when looked at with hunger. The shmoo loved to be eaten and could taste like any food you desire. Shmoo hide, cut thin, made a fine leather. Even shmoo whiskers made excellent toothpicks. The shmoo had the power to supply the whole world with all of its' wants and needs. The shmoo reproduces asexually, and only requires air to stay alive." (urbandictionary.com)

Frances03 Enthusiast
Frances03
Posted
  • Author

Yep, it's the Shmoo!! My husband likes to go around driving me crazy by singing the song from the cartoon "The Incredible New Shmoo" and I like the Shmoo so I picked it. I would also like to be able to lay eggs and give milk, LOL (well I might be able to give milk in about 7 more months).

Yes, a shmoo! Thank you, you have a good memory.

"Drawn by Al Capp in his comic strip Li'l Abner in 1948. The Shmoo is a small lovable creature. It laid eggs, gave milk, and died of sheer extacy when looked at with hunger. The shmoo loved to be eaten and could taste like any food you desire. Shmoo hide, cut thin, made a fine leather. Even shmoo whiskers made excellent toothpicks. The shmoo had the power to supply the whole world with all of its' wants and needs. The shmoo reproduces asexually, and only requires air to stay alive." (urbandictionary.com)

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

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