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Frances03

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Frances03 Enthusiast
Frances03
Posted

Can you all recommend some way for me to STAY INFORMED?? I went to the celiac disease foundation website and I was NOT impressed. I dont quit understand what I get with my $35 membership. Some "handbook" that is not explained at all, like I have no idea if it's a 4 page pamphlet or a 300 page notebook or what? What I'm wanting is some thing I can join or sign up for or something, that will keep me informed of news regarding celiac disease, and also products that are new, and products that were gluten free but are no longer, etc. Can anyone recommend something? I feel like I'm just out of the loop, as I have 3 children and am newly pregnant with our 4th (for the 4th time, 3 miscarriages before my diagnosis), and I want to make sure I'm doing the best I can for this pregnancy, etc. I know I'm rambling but I guess I'm feeling upset at the moment and overwhelmed, so I'm sorry about that. Thanks much for any help!

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ravenwoodglass Mentor
ravenwoodglass
Posted

I know it's frustrating. One of the best places I have found to stay informed is right here. Scott is good about posting new articles in the publications and publicity section of the board as well as on the home page. I know this wasn't real helpful and hopefully some others will have some other ideas.

tictax707 Apprentice
tictax707
Posted

The CDF website IS pretty lame. But they do send you a newsletter on a regular basis which I find useful, mainly for the ads. It's realy chock full of gluten free food ads. Some are the same old standards, but they are good about getting new product ads in too. As for the articles in the newsletter, I have found that it's hit or miss in terms of usefulness for me, but it seems like there is a lot of stuff dedicated to raising kids with celiac disease, which may be relevant to you. Hope this helps a bit! Sorry to hear you are so frustrated.

lucia Enthusiast
lucia
Posted

What about "Living Without" magazine? Is that any good?

sa1937 Community Regular
sa1937
Posted

I have to agree with ravenwoodglass. This forum is the best place to learn about this disease. I've learned more here than anywhere else. Just ask a question and someone will respond who has already been there, done that.

Recently I subscribed to Living Without. Just got my second issue. Well worth the money and they have a lot of info and recipes on their website, too. I got an introductory rate of $19.95 for a year (don't recall if it was from their website or Facebook).

BethM55 Enthusiast
BethM55
Posted

I enjoy the Living Without magazine and website, although the print magazine is kinda pricey. I signed up for emails from the website, and get recipes. The website is helpful, you might want to check it out. (livingwithout.com)

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I second staying here and going with the Living Without magazine.

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Frances03 Enthusiast
Frances03
Posted
  • Author

Okay, thanks guys! I'll definitely check out the living without mag and website. I hadn't heard of it at all, so this is great info. Keep it coming if anyone has any more suggestions!

BethM55 Enthusiast
BethM55
Posted

Okay, thanks guys! I'll definitely check out the living without mag and website. I hadn't heard of it at all, so this is great info. Keep it coming if anyone has any more suggestions!

I know this is off topic, but what is your picture? I remember that cartoon character, but can't remember from what! :lol:

Jestgar Rising Star
Jestgar
Posted

Is it a shmoo?

BethM55 Enthusiast
BethM55
Posted

Yes, a shmoo! Thank you, you have a good memory.

"Drawn by Al Capp in his comic strip Li'l Abner in 1948. The Shmoo is a small lovable creature. It laid eggs, gave milk, and died of sheer extacy when looked at with hunger. The shmoo loved to be eaten and could taste like any food you desire. Shmoo hide, cut thin, made a fine leather. Even shmoo whiskers made excellent toothpicks. The shmoo had the power to supply the whole world with all of its' wants and needs. The shmoo reproduces asexually, and only requires air to stay alive." (urbandictionary.com)

Frances03 Enthusiast
Frances03
Posted
  • Author

Yep, it's the Shmoo!! My husband likes to go around driving me crazy by singing the song from the cartoon "The Incredible New Shmoo" and I like the Shmoo so I picked it. I would also like to be able to lay eggs and give milk, LOL (well I might be able to give milk in about 7 more months).

Yes, a shmoo! Thank you, you have a good memory.

"Drawn by Al Capp in his comic strip Li'l Abner in 1948. The Shmoo is a small lovable creature. It laid eggs, gave milk, and died of sheer extacy when looked at with hunger. The shmoo loved to be eaten and could taste like any food you desire. Shmoo hide, cut thin, made a fine leather. Even shmoo whiskers made excellent toothpicks. The shmoo had the power to supply the whole world with all of its' wants and needs. The shmoo reproduces asexually, and only requires air to stay alive." (urbandictionary.com)

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    • knitty kitty
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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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