Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Issues


Mr.GF

Recommended Posts

Mr.GF Newbie

I have been looking into gluten free foods as my dear friend has been diagnosed. Some issues I see are a lack of "GOOD" food. There seems to be food out there but nothing very good. What issues do you folk face in your quest to control your diet? Price? Availability of food in a regular market where you shop for your family/non gluten-free? Taste/Quality? Labeling? What are your most important issues and what would you like see changed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Most food is gluten-free. Meat, veggies, fruit, etc. Lots of things I made before are gluten-free. I didn't add flour to chili or grilled chicken for example. I had to switch chili seasonings or use gluten-free pasta in a dish.

One trick is- don't eat gluten-free replacements for at least a month. For example, You forget what "real" pasta tastes like so the gluten-free tastes pretty good. You will also have to try different kinds to see what you like. Some love corn pasta but others prefer rice.

Jestgar Rising Star

Pretty much all food is gluten-free, it's the packaged stuff that we have come to believe is 'food' that's the problem. Ditch the boxes and bottles and eating gluten-free is not a problem.

Mr.GF Newbie

So we are better off eating gluten-free food such as whole foods (not the market) like eggs, chicken, steak, Veggies etc? What about the comfort food though....somethign fast like microwavable? Or even cookies? lol

Jestgar Rising Star

peanut butter cookies are easy to make - peanut butter, egg, sugar - and I know exactly what's in them. I microwave all of my home made, frozen meals. :)

Mr.GF Newbie

peanut butter cookies are easy to make - peanut butter, egg, sugar - and I know exactly what's in them. I microwave all of my home made, frozen meals. :)

Are a lot of the packaged gluten free items trustworthy? What about the gluten free certified stuff?????

Jestgar Rising Star

I just don't eat them. I'd rather eat real food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LDJofDenver Apprentice

I do eat some prepared foods and treats. However, I only buy the ones that are certified gluten free (dedicated bakery, etc.). I have been burned too many times by products that say Gluten Free on the front label, but on the back label they say "processed on equipment that also processes wheat...", etc.

These days there really are quite a few convenience items out there, including some gluten free frozen dinners. It's definitely better than it was 10+ years ago when my son was diagnosed. We didn't know (then) that gluten could be in lunch meat! Who'd have thought? Now, of course, we know better.

I wish, in product labeling, that they couldn't list anything vague like "natural flavors." That could be safe, but on the other hand it could contain barley malt. Anymore, if I'm reading ingredients and there's something like that I just put it back down. Not worth the risk.

ravenwoodglass Mentor

Are a lot of the packaged gluten free items trustworthy? What about the gluten free certified stuff?????

It depends on the company. A dedicated gluten free facility helps and it will normally say it is on the box or can. With baked goods companies like Kinnickinnick and Grainless Baker are good. There are a couple gluten free convience foods that I buy and haven't had an issue with. One is Hormel Beef Stew in a can. They also make a microwavable scalloped potatoes and ham. Both are marked as gluten free. Like most others I also choose to go mainly with stuff from fresh naturally gluten free foods but on a buzy day a can of stew or a Glutenfreeda burrito are good. If you have a health food store or a major grocery store with a gluten free freezer section more stuff is appearing every day. Amy's makes a lot of stuff gluten free but many are made sick by their products so think twice before using those.

If there is a Wegmans near by they mark all their gluten-free items with a circle G, I have never had an issue with those.

Mr.GF Newbie

this is such great information.

sb2178 Enthusiast

Honestly, for quick meals I go back to elementary school snacks. Like: rice cakes, PB, and fruit. Or carrots, cheese, and trail mix. Sort of assembling a couple of different food groups-- like I had leftover steamed veg mixed with cheese and canned white beans for lunch today. No cooking, but healthy and safe. (It was also a step in my exploration of what precisely will substitute for mac & cheese as comfort food. Pretty good and easy. I think I'll try the corn pasta next, but it's harder to find here than I'd like.)

Making your own peanut sauce and keeping that around could be a good way to have something to flavor asian rice noodles/tuna/veg...

Gluten free packaged foods (I've tried a grand total of about 6 things) are chancy. Amy's mac & cheese was AWFUL and I think it made me sick. Mary's Gone Crackers are weird, but definitely edible. Kinnikinick's "oreo" are pretty good. Annie's boxed mac & cheese was also gross. And there was some other cookie I tried that was not good... 123 Gluten Free's buckwheat pancake mix was good.

Tina B Apprentice

I have been looking into gluten free foods as my dear friend has been diagnosed. Some issues I see are a lack of "GOOD" food. There seems to be food out there but nothing very good. What issues do you folk face in your quest to control your diet? Price? Availability of food in a regular market where you shop for your family/non gluten-free? Taste/Quality? Labeling? What are your most important issues and what would you like see changed?

There is much more available in a regular market now then 18 years ago when I was diagnosed. Our regular supermarkets here in RI carry, gluten free pastas (my favorite is Bionaturae. Leave it to the Italians to get it right.) Rice Chex and Corn Chex for cereals as well as specialty brands. Glutino crackers etc. Some markets have them in a special section and some of our local markets group them with other like foods. One local chain has the gluten fre pasta with the regular and same for crackers etc. Here Wholefoods has the best bread from their own gluten free bakery but is in the freezer case because it has no preservatives. You just need to either ask the manager or scope out your local markets for where the gluten-free suff is.

Ahorsesoul Enthusiast

I feel the biggest issue is cross contamination. No one seems to realise with gluten, a tiny bit is dangerous. Using a cutting board that is contaminated with gluten can set some people into symptoms that can take weeks to clear up. It's the little things that seem unimportant that really mess us up.

Tina B Apprentice

I feel the biggest issue is cross contamination. No one seems to realise with gluten, a tiny bit is dangerous. Using a cutting board that is contaminated with gluten can set some people into symptoms that can take weeks to clear up. It's the little things that seem unimportant that really mess us up.

Wow, after reading all of this about cross contamination. I've been baking regular stuff for the family and co workers for years without a problem. I don't eat any of it and I wash all surfaces and pans. I consider myself one of the lucky ones.

Ahorsesoul Enthusiast

Unfortunately, just because someone does not display symptoms does not mean damage is not done.

Frances03 Enthusiast

I agree with Ahorsesoul. My GI doc told me right from the get-go, there is NO POINT in trying to have a mixed household with some eating gluten and some not. He told me we'd ALL have to go gluten free and that I could never bake with regular flour,etc, again. I know plenty will disagree with me, but he's a doctor and has done a lot of studying on Celiac Disease, in fact his ex-wife wrote a book about the diet he told me. He said there is no way to ever clean all the gluten up from your kitchen, and that the flour floats in the air for HOURS after you so much as measure it. I remember asking him "what about my husbands raisin bran?????" with PANIC in my voice, because my husband has eaten raisin bran every morning for as long as we've been married. He said it would have to go. SO, I came home, explained to the entire family we'd all be going gluten free, and no one complained AT ALL. And to this day no one has ever complained. Sure, my boys want pizza or a burger once in a while, and I make it gluten free at home! And once in a GREAT WHILE, we'll go out somewhere and let them get it and I'll just eat something else (along with one son who is also gluten-free now). If I could do ONE thing, it would be to go back and THANK that doctor for being so strict with me. He has made it SO MUCH EASIER on me in the long run. I never worry about cc in my home, EVER. I really owe him a LOT for that.

ravenwoodglass Mentor

I agree with Ahorsesoul. My GI doc told me right from the get-go, there is NO POINT in trying to have a mixed household with some eating gluten and some not. He told me we'd ALL have to go gluten free and that I could never bake with regular flour,etc, again. I know plenty will disagree with me, but he's a doctor and has done a lot of studying on Celiac Disease, in fact his ex-wife wrote a book about the diet he told me. He said there is no way to ever clean all the gluten up from your kitchen, and that the flour floats in the air for HOURS after you so much as measure it. I remember asking him "what about my husbands raisin bran?????" with PANIC in my voice, because my husband has eaten raisin bran every morning for as long as we've been married. He said it would have to go. SO, I came home, explained to the entire family we'd all be going gluten free, and no one complained AT ALL. And to this day no one has ever complained. Sure, my boys want pizza or a burger once in a while, and I make it gluten free at home! And once in a GREAT WHILE, we'll go out somewhere and let them get it and I'll just eat something else (along with one son who is also gluten-free now). If I could do ONE thing, it would be to go back and THANK that doctor for being so strict with me. He has made it SO MUCH EASIER on me in the long run. I never worry about cc in my home, EVER. I really owe him a LOT for that.

You have a really great doctor! Too bad he can't be cloned.

Marz Enthusiast

So we are better off eating gluten-free food such as whole foods (not the market) like eggs, chicken, steak, Veggies etc? What about the comfort food though....somethign fast like microwavable? Or even cookies? lol

Hmmm, missing the comfort food at the moment. Some ideas - if your friend isn't dairy intolerant, you can get yoghurt, custard or chocolate - just check the labels for any suspicious starch labels, or phone the manufacturing company to check. Otherwise there's nuts, peanut butter, gluten free cookies should be available somewhere if you hunt them down.

I microwave all my veges! It's pretty quick, like 5-10 minutes of zapping, and then sometimes throw them into the oven for a bit of roasting. With pumpkin I throw sugar/cinnamon on, with something like cauliflower I smother it with cheese. I've really learnt a lot about cooking the last few weeks!

Replacements for pasta - you can get vegetable, rice or maize pasta. Again, you'll need to check for contamination/made in a factory that handles wheat with these unfortunately.

BethM55 Enthusiast

I agree with others here who have said that most unprocessed foods are naturally gluten free. A bowl of fresh berries has become one of my all time favorite desserts. Add whipped cream, if you tolerate dairy, and there's an amazing gluten free treat!

I make my own gluten-free granola, which makes a great snack or meal, depending on time of day or additions to the plate.

Lately I've settled on Udi's bread as my favorite, although I still plan to try baking my own, one of these days.

I focus on what I CAN eat, rather than what I cannot eat. Some things I miss, like a sourdough bread bowl filled with steaming clam chowder... sigh. But mostly, it becomes ok because it has to. The alternative isn't pretty.

Thank you for exploring this for your friend.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748

    Chloelouise04
    Newest Member
    Chloelouise04
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.