Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergy Testing


butterfl8

Recommended Posts

butterfl8 Rookie

So I went to the allergist to inquire about allergy testing for both foods and environmentals, and was told to think about what foods I wanted to be tested for. (uh, isn't that his job???)

Ok, so anyway, I have been avoiding soy, and just challenged it to be sure. Yep, heart racing, pounding, stomach hurting a bit.

Cumin is really evil.

I'd like to throw in corn, potatoes, rice.

Does anyone have any other suggestions? Something makes me salivate, and get really hungry, and I haven't been able to pinpoint that yet. I'm just hoping the testing will narrow that down a bit.

Thank you for any input!

-Daisy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Do you mind sharing what cumin does to you? I'm curious because cumin is on my avoid list because I tested pos. to it but haven't reintroduced it yet. I know sometimes reactions are hard to describe.

Our first allergist was like yours and didn't believe in his own tests much. I just asked for the top 8 or 10. Wasn't helpful. They dismissed kiddo's reaction to wheat. 2nd allergist gave us a list of about 100 and asked us to check all foods that we routinely ate. We have a fairly vaeried diet so ended up checking about 80 each. Those are what we got tested for and I'm glad it was done that way. I had NO idea that I could be allergic to the 26 that I reacted to. I could not have come up with that list on my own. When I eliminated all of them I felt remarkably better. That's what convinced me that there was something to this and that I needed to take the journey. I've been reintroducing them one by one. Still got quite a few to go. Reaction to individual ones weren't so strong but at least the total sum was making a significant impact on how I felt on a daily basis.

sa1937 Community Regular

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

missy'smom Collaborator

I'm curious to know just what type of test(s) your allergist ordered?

I'm still having problems and had a basic RAST test for food allergies (wheat, milk, soy, peanuts, etc) and everything came back negative. I just picked up the test results this week and notice it was for IgE allergies, which I suspect are "true" food allergies. I don't have an anaphylactic reaction or break out in hives, etc. from any of those basic foods. I am diagnosed as having celiac through a positive celiac blood panel followed by an EGD/biopsy (also positive).

Were your tests for IgG allergies or intolerances? I'd really like to know what types of foods are setting me off but honestly don't know where to start (yes, an elmination diet was discussed) but if there's an easier way, I'd sure like to know about it. Maybe I should ask for a referral to an allergist...

Looking forward to your responses.

Both allergists did skin testing. One was not helpful and the other was very so I wonder if there was any difference in the tests or not. I haven't asked yet. The results of the first time I was allergy tested(skin) everything came back neg. too. With this new set and elimination/challenge my symptoms have been primarily GI but a little mouth or other with a couple. I am recognizing that many of them give me this feeling of pressure and inflamation in the GI tract that I didn't have when I was not comsuming them. All was blissfully and strangely calm for the 4 weeks without. It was SO strange to not feel anything after a meal!

Yes, I would find an allergist who believes in eliminating foods even if you don't have an anaphalactic reaction and one who routinely runs large food panels.

StephanieL Enthusiast

If you take any allergy/antihistamines prior to testing it can cause false negatives. Allergy testing is NOT 100% accurate. Skin or blood! The only true test is an allergy trial. Many Dr's don't do these. Testing can give you an idea. Food logs can be really helpful too! Listing foods, times eaten and any reaction you feel you may be having. Good luck in your search!

GFinDC Veteran

Nightshades, tomatoes, potato, peppers, carrots, turnips, soy, dairy, oats, garbanzo beans, fruits, all the top 8 food allergens, celery, corn.

butterfl8 Rookie

Okay, now that I'm back!!

Missy's mom, cumin makes my stomach cramp up. Just feels like my stomach is turning inside out. My coworkers were telling me to go home all day! Not fun. The more I had, the worse. Just a little seemed to be less cramping, but still enough to avoid. :blink:

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." <_< The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? :angry:

StephanieL: Yep, I'm not looking forward to stopping my happy allegra, and flonase, and benedryl. It will be a miserable few days, but hopefully answer a few questions!

GFinDC Thanks! Those are great suggestions!

Any more?

-Daisy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



butterfl8 Rookie

GFinDC, did you find out you were uh, coffee intolerant (I love my coffee!!!) through testing or elimination? I wonder because I know if I avoid it for a few days it bothers me to go back to drinking it, but only for a day or two. Once I readjust to it, we get along again, and I can wake up in the morning. . . mostly. :P So if I were to eliminate coffee, then challenge it, I would seem to be reactive to it. I just wondered.

Thanks!

-Daisy

sa1937 Community Regular

sa1937: I'm not too excited about this dr. I was checked in by the nurse that does the testing, and she said the best way to test for foods was to eliminate and then challenge them. Then the Dr. came in and said, "oh great, you want to be tested for food allergies? ok, which ones?" I mentioned I have Celiac, and am probably intolerant to soy and cumin, and his response is that "ok, so you're allergic to gluten, soy, and cumin." dry.gif The sheet about the testing I got said they will send out for blood tests for food, but that doesn't seem to make sense if they are asking me which ones to test for???? mad.gif

I'll admit that I don't have a clue about allergy testing. Obviously the RAST test I had was not the right one. I'll be anxious to hear how everything turns out for you.

Is the Dr. you're seeing an allergist?

butterfl8 Rookie

The Dr. is an ENT, who was recommended by my GP. His office does allergy testing, which is handled by this one nurse. Unfortunately, I'm quiting work in three weeks to go back to school and get my master's, or I would look for a different Dr. Insurance coverage will run out at the end of August.

-Daisy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,193
    • Most Online (within 30 mins)
      7,748

    Loiswxm333
    Newest Member
    Loiswxm333
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.