Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Anything I Can Eat?

Dancer9982

Recommended Posts

Dancer9982 Newbie
Dancer9982
Posted

I went gluten free, dairy free, soy free back in February due to Celiac. I got better but now I am back to being bloated constantly and constipated. I am also exhausted all the time and sleeping in the afternoons which isn't me. My doctor took me off of veggies (ugh!) to see if there was an intolerance with those, but nothing has changed. I look like I'm 3-4 months pregnant and it hurts... it's horrible!

What should I try now? Could it be fructose and fruit intolerance? I am only eating meat, fruit, rice cakes, and cereal right now. Should I try taking high fructose fruit out? I know apples are high in fructose and I eat 2 a day....

Any help would be greatly appreciated! I want to feel better and feel like myself again!

Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2sweetico Newbie
2sweetico
Posted

I know exactly how you feel! I looked preggers too! I went from 95 lbs to 140 lbs in about four days! I just found out that I might have candida so i eliminated all fruit as well. I only eat meat, eggs, and veggies. Make sure there's no yeast! Plus, make sure you take a lot of probiotics because you're not getting any. That should help with the constipation.

ravenwoodglass Mentor
ravenwoodglass
Posted

Try dropping the rice cakes and cereal. What are you putting on the cereal? If it is Rice Dream rice milk that is not safe for us. Add in rice, potatoes, well cooked veggies and fruits. Cream of buckwheat cereal is good if you have to have a cereal in the morning. The less processed foods the better for healing.

GFinDC Veteran
GFinDC
Posted

I agree, drop the cereal and rice cakes for a month. See if there is any improvement. Then try eliminating nightshades, potatoes, peppers, tomatoes. Try it for a month and see if it helps.

tina a Apprentice
tina a
Posted

hello---what is wrong with rice milk? i thought it was ok...

Try dropping the rice cakes and cereal. What are you putting on the cereal? If it is Rice Dream rice milk that is not safe for us. Add in rice, potatoes, well cooked veggies and fruits. Cream of buckwheat cereal is good if you have to have a cereal in the morning. The less processed foods the better for healing.

psawyer Proficient
psawyer
Posted

A few years ago, Rice Dream listed barley as an ingredient. Today, the manufacturer does not list barley and labels the product as gluten-free. Did the product change, or are they now hiding the barley and lying about it? You decide.

T.H. Community Regular
T.H.
Posted

On their website, it says this:

Is RICE DREAM Beverage a gluten free product?

Yes. Although RICE DREAM Beverage is processed using a barley enzyme, the barley enzyme is discarded after use. The final beverage might contain a minute residual amount (less than .002%) of barley protein.

I know that I stay away from the rice milk, big time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missceliac2010 Apprentice
missceliac2010
Posted

Rice Dream milk a no go...huh...who'd have thunk it.... ugh! I'm glad I read this now instead of finding out the hard way! Thanks Shauna!

I have been Loving almond milk! It's soy, lactose and gluten free! Tastes great too! Plus I live in the central valley of California, where almonds are a HUGE crop around here! Blue Diamond brand buys a lot of the locally grow almonds, and I buy their milk! See, I'm going local and green! :) Maybe not, but it makes me feel good...lol!

Feel better Dancer! That weight gain stuff from the bloated belly really messed with my head. I know how you feel! I have always struggled with weight, so I had gastric bypass surgery 3 years ago. Talk about drastic measures! Since then, any weight gain freaks me out more than the average person, because I have a strong "I won't go there again" inner voice. Once I figured out it was the gluten..not me, who put that beer belly gut on....I was thrilled to watch the scale drop...quickly!

It will get better. Sounds like some great advice has come before me. Good luck!

K8ling Enthusiast
K8ling
Posted

I drink vanilla silk, but I haven't had issues with Soy, and I only use it in my tea and the occasional cereal. I was surprised with the rice milk!

When I get wonky (stomach wise) I switch to strictly fresh foods, chicken breast, mashed (home made) mashed potatos, lots of fresh fruits and veggies...It gives me time to heal a little. Maybe switch to completely fresh with as little processed as possible.

I'm sorry you're having trouble!

ravenwoodglass Mentor
ravenwoodglass
Posted

For rice milk if you live near a Wegmans their rice milk is for sure safe. It is imported from Canada and Wegmans is very strict on the gluten issue. It is the one I use for chocolate milk as I don't care for any milk straight.

Dancer9982 Newbie
Dancer9982
Posted
  • Author

You all ROCK! I will give it a try.

I cut out bread and baked goods becasue those really make me sick. That is why I eat the rice cakes and cereal. But I will try not eating them for awhile. I don't put anything on my cereal except blueberries. No milk. I don't like the rice milk... it doesn't set well. :)

I go to a nutritionist in a few weeks and will check back in and let you all know what she says... She has celiac as well and works with the local CSA chapter.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.