Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Enterolab Tests Reliable?


Lori2

Recommended Posts

Lori2 Contributor

How reliable are test results from EnteroLab? I tested negative on the blood test for Celiac. Here are my EnteroLab results:

Fecal Anti-gliadin IgA 219 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 86 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 285 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Enterolab measures what they claim, but the interpretation of the tests is a case of "buyer beware".

If eliminating fruit helps, you may have a condition called fructose malabsorption where fructose stays in the gut if you eat too much. The symptoms are bloating, gas, cramping, stomach upset, and diarrhea. A doctor can test for hydrogen produced by gut bacteria in your breath, sort of like a lactose intolerance test. You would go on a low FODMAP diet if that's your problem.

Open Original Shared Link explains it pretty well.

Ahorsesoul Enthusiast

I suggest you cut out all gluten, dairy and soy for a few months to see if you improve. Since you have been gluten free for such a short time your intestines may need to heal before you see more improvements. Dairy and soy seem to hinder intestinal healing. I was able to add them back without problems. Made a major difference.

Lori2 Contributor

I really don't use any soy in my diet and according to the EnteroLab results, dairy should not be a problem. Or would the high-normal testing indicate a possible problem.

Fecal Anti-casein (cow

burdee Enthusiast

How reliable are test results from EnteroLab? I tested negative on the blood test for Celiac. Here are my EnteroLab results:

Fecal Anti-gliadin IgA 219 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 86 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 285 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow

Skylark Collaborator

Food allergy tests will not be helpful if the problem is fructose malabsorption.

ravenwoodglass Mentor

How reliable are test results from EnteroLab? I tested negative on the blood test for Celiac. Here are my EnteroLab results:

Fecal Anti-gliadin IgA 219 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 86 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 285 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lori2 Contributor

Thanks for your responses. In reading through the forum, I realize that I am much more fortunate than most of you. I am 80 years old and have lived most of my life without major health problems

ksymonds84 Enthusiast

My Gastro doctor (who is a Celiac expert) believes Dr. Fine has an excellent tool in screening probable celiac patients and used it for himself (he has suffered IBS for years with negative blood work and endoscopy for celiac) and his children. Since Dr.Fine hasn't published for peer view my doctor does not use the test to diagnose. He did look at my results from enterolab and took them seriously but still of course had me do the challenge and scope me. If you are not going to do further testing then do the diet and see if it helps. I also have fructose malabsorption along with my celiac and know my threshold for fructose intake, as long as I don't go over I do fine.

Skylark Collaborator

I think maybe I understand why Dr. Fine is not publishing. He has a little data on his website showing that he has sacrificed specificity in order to have high sensitivity on his tests, and he pretty much says as much in the accompanying test. I'm not sure the way he has defined the reference ranges would survive a peer review.

  • 4 weeks later...
starla Newbie

Hi. I have the same 303, 602 as you. I just wanted to tell you that gluten had me constipated for two years (among a slew of other symptoms). Within a few days of taking it out of my diet (prob no more than a week or so) my stool turned to diarrhea. My sister suggested taking corn out of my diet because she successfully cleared everything up by doing that. Once I was gluten/corn/dairy free - my life literally changed.

Corn is way worse than gluten as far as avoiding it. I'm just going to go ahead and say that and the main reason why is because it's in everything. Literally. It's also not a Top 8 Allergy in the US so manufacturers don't have to list it. It's in food, makeup, lotions, on stamps, in perfumes/fragrances, cleaning supplies (especially eco friendly), it's sprayed on fruit (to ripen at the right time), and doused over meat (preservative), it's in almost every juice/soda (citric acid), anything fortified (vitamins in cereals, milk, etc), coated on rice (enriched) to add nutrients, and in almost everything boxed or bagged (salt... iodine is connected to salt via a corn derivative).

With having the same genes as me - - I just had to throw this out there. I really wish I just had a gluten problem. Not to be dismissive of the difficulty of following a gluten free diet - gluten is in a LOT of products/foods out there. But, when I layered on the corn issue - almost no gluten free foods are safe (Namaste is my saving grace). I can a lot of my foods... sauces, condiments, salsa's, jelly's.... It takes a lot of work and research. If you decide it may help you - I have tons of links to forums and sites. There is a google spreadsheet that a corn avoiders forum maintains with safe brands and there are so many people gluten sensitive as well (and dairy) that it also specifies those options.

Traveller Rookie

I think maybe I understand why Dr. Fine is not publishing. He has a little data on his website showing that he has sacrificed specificity in order to have high sensitivity on his tests, and he pretty much says as much in the accompanying test. I'm not sure the way he has defined the reference ranges would survive a peer review.

Skylarks's point is a good one. If by "reliable" you mean "truthful", no test will be reliable. Even serologic tests for celiac have what I consider to be a high false negative rate (report negative results when subject has celiac). However, if by "reliable" you mean "helpful in decisionmaking", I consider the test reliable.

I don't believe my Enterolab test was dead on truthful, but it aided me in deciding to give up gluten. Other factors that aided the decision included family history, children diagnosed by biopsy, the subsequent dietary response, and response when gluten is unexpectedly reintroduced (i.e. "glutened").

Untimately, the preponderance of evidence is what counted for me. For someone who is a silent celiac, however, the answer may be different.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.