Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Relapse?


alissar

Recommended Posts

alissar Contributor

I stopped eating gluten completely about 3 months ago. Since then my GI issues basically stopped, my a.m. swelling has improved about 90%, my hair looks amazing, my energy is off the charts, I don't feel as anxious as I used to feel, and I am able to gain weight. I thought everything was looking up and I felt so happy.

For the past week and a half, however, I feel like all of my symptoms have come back..full force. I literally am sick every night (throwing up, GI upset) for hours. I have been sleeping all day. My a.m. swelling has come back a bit. I feel sicker than before I found out I have Celiac, everything I eat hurts my stomach. I saw so many doctors pre-diagnosis when I was having issues, and I was told too many times just to get over it (I was told "college life" was my problem). I just don't feel comfortable going to see a doctor anymore and I am starting to feel nervous about all of the vomiting.

So, I thought I would see if anyone had a similar experience after going gluten-free for a few months. I have been extremely careful about ingesting gluten, but maybe I have become hypersensitive since going gluten-free (is that possible?). Has going gluten-free made anyone hypersensitive to dairy? I am so confused....everything was going so well for a couple of months. Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Can you try to look back to see what may have changed right before you started feeling ill again? Some of us do become much more sensitive so do double check all toiletries, meds, supplements etc as well as looking at any processed or restaurant food you may have eaten.

I hope your feeling better soon.

lucia Enthusiast

It could also be secondary food intolerances (unfortunately). It's really common when you have celiac to lose the enzyme that allows you to digest lactose, so dairy intolerance is common. People also sometimes develop other intolerances while they are recovering. In my own case, I am reacting now to soy and to corn, in addition to gluten. I've been surprised at how powerful a reaction I have to dairy, soy, and - especially - corn.

I would suggest, as ravenwoodglass does, that you first look into hidden sources of gluten in your diet. If that doesn't work, try eliminating dairy. And if that doesn't work, then consider other sources for your reaction. Eventually, I had to go down to a very modified "elimination" diet.

Best to you.

Bettie Newbie

Gluten is in things you wouldnt imagine e.g. envelope glue, You will digest it if your licking down enverlopes. Gluten is in Lipstick, gloss and balms. Medications have gluten in. And I am sure there is lots more things out there with gluten. You could be just really sensitive to it now.

Good luck I hope you find out why your not well again soon x

CarbQueen Newbie

Other intolerances/sensitivities are probably rearing their ugly head.....after a year of trial and error I discovered I was GI, THEN I diagnosed myself with Oral Allergy Syndrome before allergist confirmed it.

I'm allergic to at least 77 items to varing degrees. The primary are dairy, wheat, raw vegatables and fruit, as well as nuts and tree nuts. Extremely sensitive to yeast. Cinammon is definitely a no-no.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.