Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wish Me Luck


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

I thought I had a reaction to tapioca months and months ago so I cut it out of my diet. I am challenging it today. I had one bite of a thing with tapioca and waited about an hour. No reaction. Then I ate another bite and waited. Then about 4 bites.

So far no reaction.

Remind me of how I should proceed. When will I know for sure it's safe? It's been awhile since I did a food challenge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I thought I had a reaction to tapioca months and months ago so I cut it out of my diet. I am challenging it today. I had one bite of a thing with tapioca and waited about an hour. No reaction. Then I ate another bite and waited. Then about 4 bites.

So far no reaction.

Remind me of how I should proceed. When will I know for sure it's safe? It's been awhile since I did a food challenge.

I would still be on the lookout for any reaction for 2 days or so. I'm sensitive to tapioca, and the last time I tried it I had stomach cramps hours later in the middle of the night.

sandsurfgirl Collaborator

I would still be on the lookout for any reaction for 2 days or so. I'm sensitive to tapioca, and the last time I tried it I had stomach cramps hours later in the middle of the night.

I won't eat anymore today and see if anything comes up by tomorrow. I have salsa dance class tonight so my main hope is no gas! It's a partner dance. :lol::huh:

I had a scary reaction actually. My tongue was tingling and my nose got very stuffy, more like allergy than intolerance. But the thing I ate also had soy in it. Recently I tried something with soy again and got that same stuffy nose and tingly mouth so I'm thinking it was the soy, not the tapioca.

So I have no allery type reactions and it's been like 3 hours. I believe I'm in the clear for that. Now I have to wait for intolerance type of reactions.

I sure hope I can eat tapioca. It will broaden my horizons.

kareng Grand Master

I sure hope I can eat tapioca. It will broaden my horizons.

That's so funny. As I was reading I thought," that will increase her food choices.". :P

Have fun at salsa class.

sandsurfgirl Collaborator

That's so funny. As I was reading I thought," that will increase her food choices.". :P

Have fun at salsa class.

Thanks! It's two classes for only $10 plus dancing afterwards. A year ago I never thought I would be able to do this again. It's so amazing feeling good and getting my strength back.

kareng Grand Master

Thanks! It's two classes for only $10 plus dancing afterwards. A year ago I never thought I would be able to do this again. It's so amazing feeling good and getting my strength back.

I still couldn't do it! I have no sense of rhythm. B)

sandsurfgirl Collaborator

I still couldn't do it! I have no sense of rhythm. B)

LOL!

I danced for 3 hours with hardly any breaks tonight!!!! I'm so excited! Every week I get sstronger. Gluten free is my life!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.