Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Facebook


conniebky

Recommended Posts

conniebky Collaborator

Well, I'm still in a funk.

Anyway, I'm on facebook at clbgch@gmail.com and I know some of you have added me as a friend, but I can't tell who's who cuz I only know your alls names on here :huh:

Off I go to take my funky self to work.

Like my momma always says, "this too shall pass" :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hey Connie a sent you a friend confirmation for facebook. Facebook is awesome. Found several relatives I haven't seen or heard from in 20 years all in a matter of minutes.

Hope your feeling better.

Vicky

Skylark Collaborator

I wish I could be "me" and not Skylark and Facebook friend some of you. You can't be talking about bipolar on the Internet without being anonymous. Too many people Google your name for job searches. :(

I'll just have to stay friends with people around here.

GlutenFreeManna Rising Star

I wish I could be "me" and not Skylark and Facebook friend some of you. You can't be talking about bipolar on the Internet without being anonymous. Too many people Google your name for job searches. :(

I'll just have to stay friends with people around here.

I have this same problem. I have shared so much personal medical info on here I would rather not give my real name. I also struggle with trust issues and don't want to give my info to strangers on the internet.

I have thought about making up a fake facebook account with an alias, but I don't want to deceive anyone either. Everyone has been so nice. I'll just keep posting here. ;)

runningcrazy Contributor

I have this same problem. I have shared so much personal medical info on here I would rather not give my real name. I also struggle with trust issues and don't want to give my info to strangers on the internet.

I have thought about making up a fake facebook account with an alias, but I don't want to deceive anyone either. Everyone has been so nice. I'll just keep posting here. ;)

I do have a fake facebook though that i like to creep my friends out with! haha..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,563
    • Most Online (within 30 mins)
      7,748

    dilys.jones53
    Newest Member
    dilys.jones53
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.