Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know? I'm Frustrated


Aphreal

Recommended Posts

Aphreal Contributor

I am getting upset. I have had D and gas for 2 days now. I THINK it may have been from eating some corn tortilla chips fried in oil used for flour so CC. I was told they were gluten-free then learned I was supposed to specify gluten-free baked and not corn fried. In my defense the manager did tell me they were gluten-free! Liar. I was fine until this particular dinner Sat but about an hour after, I got that tell tale sign and here it is Monday. I still have it! So I get confused if this is my body reacting to that or something else I ate today or yesterday so now I am over analizing everything! Is this just a trial and error, do you ever stop overreading over analizing over worrying about everything. I am so fed up having to run to the bathroom in public during a great day out with a friend or something. *sigh*

Is this normal? Is it really REALLY gluten? I am starting to wonder. I can't seem to get it right and trust me, I take this very seriously, I read every single word on every label, I don't cheat ever! I don't have the *well just a little bit* mentality because I want to be better. Thankfully I am still migraine free and sleeping fine.

I am about in tears. I was doing better and now it seems cc oil threw me back DAYS!!!

sorry I needed to get that out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgirl Contributor

I am getting upset. I have had D and gas for 2 days now. I THINK it may have been from eating some corn tortilla chips fried in oil used for flour so CC. I was told they were gluten-free then learned I was supposed to specify gluten-free baked and not corn fried. In my defense the manager did tell me they were gluten-free! Liar. I was fine until this particular dinner Sat but about an hour after, I got that tell tale sign and here it is Monday. I still have it! So I get confused if this is my body reacting to that or something else I ate today or yesterday so now I am over analizing everything! Is this just a trial and error, do you ever stop overreading over analizing over worrying about everything. I am so fed up having to run to the bathroom in public during a great day out with a friend or something. *sigh*

Is this normal? Is it really REALLY gluten? I am starting to wonder. I can't seem to get it right and trust me, I take this very seriously, I read every single word on every label, I don't cheat ever! I don't have the *well just a little bit* mentality because I want to be better. Thankfully I am still migraine free and sleeping fine.

I am about in tears. I was doing better and now it seems cc oil threw me back DAYS!!!

sorry I needed to get that out.

I feel the same way!

Seems the more I don't eat gluten, the more "allergies" I get! For instance, I just had a few canned oysters from Trader Joe's. The ingredients are just oysters and olive oil. But, now I'm feeling a burning in my stomach that I haven't felt all day.

I'm off coffee as of this morning...my last cup a couple of hours ago with no problem. And, my first one this morning at 8:00....no problem!

So waaaassssuuuup??????

GlutenFreeManna Rising Star

It takes me almost a week to get over a glutening. I think the shortest has been 4 days. I think it will take a while to learn what is "safe" when trying new foods. Stick with food you know you don't react to until you get over the glutening. Don't try anything new while you still feel bad.

Sorry your still suffering.

rdunbar Explorer

yes, it is so frustrating I know. i got glutened last week, after doing so well after shifting into ultra-hardcore, "i'm only eating at home, meat, fruit, veggies, and nothing processed/packaged" mode, about 5-6 months ago. I had a chai that they make from scratch in the kitchen at the health food store which also has a pizza oven! to make it more frustrating it was so unnessesary, and I knew better, I geuss i just got off of my guard and figured i could 'reward' myself, haa!

it's wierd how you forget how much better you were doing before, and just focus on how bad you feel now, and wonder if you are going to feel good again, ever. the ugly irritability and anxiety that resurfaces sure does'nt to help to put into perspective at the time, at least for me.

almost a week later, I'm feeling a lot better, and only have a little achiness, tingling, and horrible mood. no D this time, but I have gotten it badly in the past, before I quit dairy.

also, you might want to consider trying eating corn-free, too; from what i've heard, corn is all cross-contaminated, harvested with the same machinery, and stored in the same facilities as wheat.

Danyelle Demchock Newbie

Hello Aphreal!

I have compassion because I was there too and used to call my holistic doctor and sit on the phone with the assistant for hours because I was so frustrated!

Yes, the same thing used to happen to me when I ate any type of grains 4 years ago. Still to this day I don't do well on corn or any type of grains. I have a lot of gas when I eat corn. Corn is a very highly reactive food for many of my clients as well. I often, recommend they avoid corn as well if their symptoms include bloating and gas.

Do you happen to know if you have leaky gut syndrome? Because of leaky gut (undigested food particles leak in to the blood stream cause and autoimmune response) and the damage gluten has done to the intestinal wall, people who are gluten intolerant also find themselves reactive to other "common" foods such as dairy, corn, rice, soy, nuts.

With Compassion,

Danyelle Demchock

Aphreal Contributor

You guys really are the best. Danyelle, the evening this *episode* occured, I ate a LOT of corn. baked corn chips (about 3 tortillas) Plus a flat corn with queso and 2 corn shell tacos. I do eat corn products without issue but I think maybe I overdid it that night. I hadn't had tex mex in a long time and I was tickled they had a gluten-free menu.

One more thing to watch out for I *spose. One thing that would devestate me is if I had to go dairy free. I think I am ok on that front. I eat yogurt every day. Milk and some cheese too.

I hate that any of you are suffering reactions too, On the same token, I am glad I am not alone and I hope one day when I get on the other side of this, I can help people too.

Tiff

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Dumped

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Dumped

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Dumped

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,792
    • Most Online (within 30 mins)
      7,748

    Mrs
    Newest Member
    Mrs
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Mari
      Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten  into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty about this. In 2007 you had more food issues. Many Celiacs have this development and I think it is because while they hadthe active celiac disease and damage to their small intestine food allergies were caused because of the damage  while you had the active disease and not identified until years later. It is necessary to eliminate those foods from your diet. Scott Adams wrote that some people can start eating those foods after their intestine has healed. I have not been able to add any foods I react to back to my diet.      
    • Jmartes71
      NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for some reason not acknowledging my digestive issues ive given copies of.As stated in pervious post I was given breath test which I was positive with that dr and prior to him a few months, still wanted me to do.
    • Mari
      Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems you had when you were in your 30s. The only cure for Celiac Disease is being strictly gluten free.  Your medical providers are correct in telling  you that you do not have active Celiac Disease. Do you understand that? You may have some other developing health problems and I can write  more if you  answer the question.                         the only cure for celiac disease is being  gluten gree.
    • Aretaeus Cappadocia
      Celiac is too common to be "rare" under the standard definition. Does this group do anything with Celiac?
    • Lotte18
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.