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How Do You Know? I'm Frustrated

Aphreal

By Aphreal
in Coping with Celiac Disease

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Aphreal Contributor
Aphreal
Posted

I am getting upset. I have had D and gas for 2 days now. I THINK it may have been from eating some corn tortilla chips fried in oil used for flour so CC. I was told they were gluten-free then learned I was supposed to specify gluten-free baked and not corn fried. In my defense the manager did tell me they were gluten-free! Liar. I was fine until this particular dinner Sat but about an hour after, I got that tell tale sign and here it is Monday. I still have it! So I get confused if this is my body reacting to that or something else I ate today or yesterday so now I am over analizing everything! Is this just a trial and error, do you ever stop overreading over analizing over worrying about everything. I am so fed up having to run to the bathroom in public during a great day out with a friend or something. *sigh*

Is this normal? Is it really REALLY gluten? I am starting to wonder. I can't seem to get it right and trust me, I take this very seriously, I read every single word on every label, I don't cheat ever! I don't have the *well just a little bit* mentality because I want to be better. Thankfully I am still migraine free and sleeping fine.

I am about in tears. I was doing better and now it seems cc oil threw me back DAYS!!!

sorry I needed to get that out.

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curiousgirl Contributor
curiousgirl
Posted

I am getting upset. I have had D and gas for 2 days now. I THINK it may have been from eating some corn tortilla chips fried in oil used for flour so CC. I was told they were gluten-free then learned I was supposed to specify gluten-free baked and not corn fried. In my defense the manager did tell me they were gluten-free! Liar. I was fine until this particular dinner Sat but about an hour after, I got that tell tale sign and here it is Monday. I still have it! So I get confused if this is my body reacting to that or something else I ate today or yesterday so now I am over analizing everything! Is this just a trial and error, do you ever stop overreading over analizing over worrying about everything. I am so fed up having to run to the bathroom in public during a great day out with a friend or something. *sigh*

Is this normal? Is it really REALLY gluten? I am starting to wonder. I can't seem to get it right and trust me, I take this very seriously, I read every single word on every label, I don't cheat ever! I don't have the *well just a little bit* mentality because I want to be better. Thankfully I am still migraine free and sleeping fine.

I am about in tears. I was doing better and now it seems cc oil threw me back DAYS!!!

sorry I needed to get that out.

I feel the same way!

Seems the more I don't eat gluten, the more "allergies" I get! For instance, I just had a few canned oysters from Trader Joe's. The ingredients are just oysters and olive oil. But, now I'm feeling a burning in my stomach that I haven't felt all day.

I'm off coffee as of this morning...my last cup a couple of hours ago with no problem. And, my first one this morning at 8:00....no problem!

So waaaassssuuuup??????

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

It takes me almost a week to get over a glutening. I think the shortest has been 4 days. I think it will take a while to learn what is "safe" when trying new foods. Stick with food you know you don't react to until you get over the glutening. Don't try anything new while you still feel bad.

Sorry your still suffering.

rdunbar Explorer
rdunbar
Posted

yes, it is so frustrating I know. i got glutened last week, after doing so well after shifting into ultra-hardcore, "i'm only eating at home, meat, fruit, veggies, and nothing processed/packaged" mode, about 5-6 months ago. I had a chai that they make from scratch in the kitchen at the health food store which also has a pizza oven! to make it more frustrating it was so unnessesary, and I knew better, I geuss i just got off of my guard and figured i could 'reward' myself, haa!

it's wierd how you forget how much better you were doing before, and just focus on how bad you feel now, and wonder if you are going to feel good again, ever. the ugly irritability and anxiety that resurfaces sure does'nt to help to put into perspective at the time, at least for me.

almost a week later, I'm feeling a lot better, and only have a little achiness, tingling, and horrible mood. no D this time, but I have gotten it badly in the past, before I quit dairy.

also, you might want to consider trying eating corn-free, too; from what i've heard, corn is all cross-contaminated, harvested with the same machinery, and stored in the same facilities as wheat.

Danyelle Demchock Newbie
Danyelle Demchock
Posted

Hello Aphreal!

I have compassion because I was there too and used to call my holistic doctor and sit on the phone with the assistant for hours because I was so frustrated!

Yes, the same thing used to happen to me when I ate any type of grains 4 years ago. Still to this day I don't do well on corn or any type of grains. I have a lot of gas when I eat corn. Corn is a very highly reactive food for many of my clients as well. I often, recommend they avoid corn as well if their symptoms include bloating and gas.

Do you happen to know if you have leaky gut syndrome? Because of leaky gut (undigested food particles leak in to the blood stream cause and autoimmune response) and the damage gluten has done to the intestinal wall, people who are gluten intolerant also find themselves reactive to other "common" foods such as dairy, corn, rice, soy, nuts.

With Compassion,

Danyelle Demchock

Aphreal Contributor
Aphreal
Posted
  • Author

You guys really are the best. Danyelle, the evening this *episode* occured, I ate a LOT of corn. baked corn chips (about 3 tortillas) Plus a flat corn with queso and 2 corn shell tacos. I do eat corn products without issue but I think maybe I overdid it that night. I hadn't had tex mex in a long time and I was tickled they had a gluten-free menu.

One more thing to watch out for I *spose. One thing that would devestate me is if I had to go dairy free. I think I am ok on that front. I eat yogurt every day. Milk and some cheese too.

I hate that any of you are suffering reactions too, On the same token, I am glad I am not alone and I hope one day when I get on the other side of this, I can help people too.

Tiff

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