Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Neuropathic Pain Has Disappeared!

lucia

Recommended Posts

lucia Enthusiast
lucia
Posted

I realized today that my neuropathic pain formerly in my hands, forearms, lower legs, and feet is gone! At least for now, fingers crossed it won't come back. It seriously feels like a miracle!!! But, more accurately, I think it's a result of:

1) Being gluten-free now for 5 months

2) Eliminating corn (my symptoms were reduced immediately after I did this)

3) Having regular acupuncture (my symptoms were much reduced after sessions)

I'm so happy to share this with all of you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

That's great news! I'm so happy to hear you're feeling better.

AlysounRI Contributor
AlysounRI
Posted

Lucia:

I am SOOOOOOO happy to hear this!!!

I know that is plagued you for so long - I am sure it's a combo of all of those elements.

Yay!!!

~Allison

ravenwoodglass Mentor
ravenwoodglass
Posted

Great News!!!! It's amazing how much pain can go away after we get diagnosed.

adab8ca Enthusiast
adab8ca
Posted

WOW! I suffer from bad neuropathic pain as well, although i am not officially diagnosed yet (have biopsy on aug 31), so sill eating gluten

you gave me HOPE that i may see some relief. May I ask how you knew corn was a problem? And I am definitely going to looking into accupuncture as well!

This is great news!

ravenwoodglass Mentor
ravenwoodglass
Posted

WOW! I suffer from bad neuropathic pain as well, although i am not officially diagnosed yet (have biopsy on aug 31), so sill eating gluten

you gave me HOPE that i may see some relief. May I ask how you knew corn was a problem? And I am definitely going to looking into accupuncture as well!

This is great news!

I found acupuncture to be helpful also. It is definately worth a try. Also try some sublingual B12, that helped me even before I was at last diagnosed and gltuen free.

adab8ca Enthusiast
adab8ca
Posted

I found acupuncture to be helpful also. It is definately worth a try. Also try some sublingual B12, that helped me even before I was at last diagnosed and gltuen free.

[/quot

i have been taking 1000 mg subl. MB12 for months but it doesn't seem to help...maybe I need more? I do get a B12 shot once a month that seems to help my burning tongue somewhat...

any and all advice for neuro pain is greatly appreciated!

Thanks so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


India Contributor
India
Posted

Lucia, I'm really happy to hear this! Here's hoping for further improvements :-)

ravenwoodglass Mentor
ravenwoodglass
Posted

i have been taking 1000 mg subl. MB12 for months but it doesn't seem to help...maybe I need more? I do get a B12 shot once a month that seems to help my burning tongue somewhat...

any and all advice for neuro pain is greatly appreciated!

Thanks so much!

With the B12 shots and the sublinguals I wouldn't increase the dose without asking your doctor first. Hopefully once the biopsy is done and you can start the diet you will finally get some relief.

lucia Enthusiast
lucia
Posted
  • Author

WOW! I suffer from bad neuropathic pain as well, although i am not officially diagnosed yet (have biopsy on aug 31), so sill eating gluten

you gave me HOPE that i may see some relief. May I ask how you knew corn was a problem? And I am definitely going to looking into accupuncture as well!

This is great news!

It is great news! I'm so glad to share it.

I found out that corn was effecting my neuropathy when I cut it out (after it started giving me GI symptoms). I never in a million years would have dropped it otherwise. But it was a happy surprise when, after not eating corn for 3 days, I realized that my neuropathy had receeded.

Acupuncture was amazing for the neuropathy. Before I discovered that corn was a trigger, I would go in with so much pain that it hurt to walk even a step. When I'd come out, the pain would be gone. At first, the pain relief only lasted 5 - 10 minutes, but every week I was experiencing less pain and I soon had longer periods without pain. Highly recommended!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.