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Lymphoma

fran641

By fran641
in Coping with Celiac Disease

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fran641 Contributor
fran641
Posted

This week a biopsy came back as stage 1 - B cell lymphoma. Further testing results are due this week to let me know if it is indolent (slow) or aggressive. That will determine course of treatment. I've read that lymphoma is not uncommon in celiac patients. I appreciate any info you'd like to share with your experiences with lymphoma. I was diagnosed with celiac disease December 08.

Have a great day.....fran

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luvs2eat Collaborator
luvs2eat
Posted

I'm so sorry! I have no experience but wanted to wish you the best! Please keep us updated.

ravenwoodglass Mentor
ravenwoodglass
Posted

I am so sorry that you are having to deal with this. I don't know alot about it but have found some resources for you to contact. The second link also provides a number of other places to contact. I hope they are able to get this under control for you.

Open Original Shared Link

Call 1-888-224-9457 any time to discuss treatment options if you or a loved one has been diagnosed with Lymphoma.

Open Original Shared Link

More information from your American Cancer Society

We have some related information that may also be helpful to you. These materials may be ordered from our toll-free number, 1-800-227-2345

sandsurfgirl Collaborator
sandsurfgirl
Posted

Oh no! Hugs and prayers for your recovery. Keep us posted and come here anytime for support.

fran641 Contributor
fran641
Posted
  • Author

I want to thank everyone for your responses. I appreciate your time and kind sentiments. I will go to those websites recommended and see what else I can find out. I want to be as completely informed about lymphoma as a non-medical personell can be. This is a wonderful website with caring informative people. Thanks again for your support. I'll let you know what the next stage is going to be for me.

Fran

mushroom Proficient
mushroom
Posted

So sorry about your diagnosis - as if there wasn't enough to deal with!. Do hope it is the indolent kind. Stick with us and let us know how you get on - we share your pain :(

Skylark Collaborator
Skylark
Posted

Oh, gosh. I hope it turns out to be indolent. Good luck. ((( hugs )))

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HappyGrandma Rookie
HappyGrandma
Posted

LOTS OF HUGSSSSSSSSSSS

Check in often so we know how you are doing. We are here for you.

fran641 Contributor
fran641
Posted
  • Author

Thanks again for all of your replies. I will let you all know what I hear from the genetic testing. I feel like I'm in limbo. When I was diagnosed with celiac I went home and got on the computer, bought books and found out a ton of info real quick. This waiting for the other shoe to fall makes me a little crazy. I can't seem to sleep more than 4 hrs. a night. I know I can handle anything once I know exactly what I'm dealing with (celiac will do that for you). Coping with celiacs taught me to speak up for myself and make major lifestyle changes. Since I focus on food a lot the first thought I had was "what can I eat or shouldn't eat" to get through this....nutty huh?

jerseyangel Proficient
jerseyangel
Posted

Hi Fran, I just wanted you to know that you are in my thoughts. :)

diane64 Apprentice
diane64
Posted

I hope everything works out for you!!!

Diane

Thanks again for all of your replies. I will let you all know what I hear from the genetic testing. I feel like I'm in limbo. When I was diagnosed with celiac I went home and got on the computer, bought books and found out a ton of info real quick. This waiting for the other shoe to fall makes me a little crazy. I can't seem to sleep more than 4 hrs. a night. I know I can handle anything once I know exactly what I'm dealing with (celiac will do that for you). Coping with celiacs taught me to speak up for myself and make major lifestyle changes. Since I focus on food a lot the first thought I had was "what can I eat or shouldn't eat" to get through this....nutty huh?

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