Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New And Totally Confused


katievesledahl

Recommended Posts

katievesledahl Newbie

So I was just diagnosed about two weeks ago... I keep making food without gluten and still have pains, mainly after I eat. I get so afraid to eat that i have only been eating fruits lately. I have been keeping a food diary to keep track of what is not making me sick and what is..... could it be cooking with my old pots and pans? Also can I buy prepackaged seasons, or should I make my own mixes from scratch? Also all of the scientific terms on the ingredients lists are quite intimidating....any suggestions on how to deal with this would be more than welcomed! One more thing, does anyone know a good recipe book to buy! I am fine with having to cook but I am living really tight, so I don't want to buy a book I won't use!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiactapper Newbie

Many of us have been where you are now. The easiest way to approach this is to eat only natural foods--fruits, vegetables, meat, most dairy, and nuts. You don't need to understand complex ingredients yet, because you'll only be eating basic foods. As for seasonings, simply eat basic herbs for now. Cookbooks? You can use the ones you have! Simply substitute gluten-free ingredients where needed. When flour is called for, substitute with Bob's Red Mill Gluten-Free Flour (and if baking, also add 2-3 teaspoons of xanthan gum). Believe me--once you've eaten natural foods for a while, you'll lose your taste for processed foods. It's not scary...it's healthful eating.

Good luck!

GlutenFreeManna Rising Star

Welcome! Sorry you are still having pain. If you have non-stick or cast iron pans you definitely need to get new ones and dedicate them to gluten-free cooking. Gluten can get in the scratches of the pans and contaminate the gluten free food you are trying to cook. Colanders are really hard to clean with all those little holes and plastic or wooden utensils and cutting boards will have the same problem. I have read on here that the only way to get rid of gluten particles (beside really hard scrubbing) would be to burn it off by heating something to 600 degrees for at least 30 minutes. You can re-season a cast iron pan this way, but you can't do that with non-stick and you can't scrub a non-stick pan clean either.

ETA: there are safe and unsafe ingredients lists on the home page of celiac.com Print them out and take them tot he store so you can read the labels if you need to. But in the beginning of this diet it helps if you stick to mainly whole foods--meat, poultry, veggies, rice, potatoes, etc. and stay away from too many gluten free substitutes and other processed foods. You body will heal better and it will be easier to figure out if you have and additional intolerance besides gluten (many of us do).

WheatChef Apprentice

First step: toss any teflon pans. Not because yes, they are now unsafe for you as a celiac, but because they have always been unsafe for you as a mammal (and are merely coverups for poor cooking techniques).

While you're at it, toss your cast irons. Cast iron pans are probably on the very short list for absolute essentials in any kitchen (along with knives, a cutting board, salt and fats). They are simply put, amazing cookware. They are unfortunately also simply put, full of holes. Cast irons are severely porous and can gather all sorts of compounds, considering you are now trying to avoid a particular microscopic compound you'd be best off just replacing these to be on the safe side.

As far as other sorts of pots and pans go, scrub off any visible stains and scum from them and then if you want to be extra sure of their cleanliness, soak them in everclear (the "bad" gluten is alcohol soluble) and then scrub them again. This is probably slight overkill but you'll have some clean pans out of it at least!

I have a degree in food science and the scientific reading of ingredients labels intimidates me too! However this is mostly because at this point I can point out the ones that probably shouldn't be assumed fit for human consumption. A good general rule of thumb would be that the longer an ingredients list is and the more complicated it is, the less it is something you should put into your body. A lot of times all the complicated names are really just science speak for compounds found commonly in different plant or animal tissue but if you want to get a little more knowledgeable in your label reading I suggest you read up on antioxidants and emulsifiers, most often times these constitute the bulk of added ingredients as they either keep the product from going stale or make the compound thicker (no one pays for water unless they think it's coming from some magic stream somewhere).

Overall though I would highly recommend that you learn to make your own seasoning mixes. The stuff sold in the store is such absolute crap compared to what you could make at home with just some minimal practice. The ability to make your own spice rubs, currys and curing salts is not only impressive to others but liberating to yourself and your taste buds!

cassP Contributor

like the above posters have said- stick with all naturally gluten free foods.. meats, fish, veggies, rice, and some good fats too- like EVOO & nut butters...

everybody's different- but i find a cup of lightly cooked vegtables with butter or olive oil much easier to digest than fruit. i eat a little fruit- but if i was ONLY eating fruit- i would be doubled over in pain-

your body definitely needs more than sucrose, fructose, and fiber.. also read up on the daily threads on here- everyone has a lot of great advice! and dont get disheartened- it's only been 2 weeks- in the past when i would "try" gluten free- it would take me at least 3 weeks to feel like i was on the right road. hang in there :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.