Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New And Totally Confused


katievesledahl

Recommended Posts

katievesledahl Newbie

So I was just diagnosed about two weeks ago... I keep making food without gluten and still have pains, mainly after I eat. I get so afraid to eat that i have only been eating fruits lately. I have been keeping a food diary to keep track of what is not making me sick and what is..... could it be cooking with my old pots and pans? Also can I buy prepackaged seasons, or should I make my own mixes from scratch? Also all of the scientific terms on the ingredients lists are quite intimidating....any suggestions on how to deal with this would be more than welcomed! One more thing, does anyone know a good recipe book to buy! I am fine with having to cook but I am living really tight, so I don't want to buy a book I won't use!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiactapper Newbie

Many of us have been where you are now. The easiest way to approach this is to eat only natural foods--fruits, vegetables, meat, most dairy, and nuts. You don't need to understand complex ingredients yet, because you'll only be eating basic foods. As for seasonings, simply eat basic herbs for now. Cookbooks? You can use the ones you have! Simply substitute gluten-free ingredients where needed. When flour is called for, substitute with Bob's Red Mill Gluten-Free Flour (and if baking, also add 2-3 teaspoons of xanthan gum). Believe me--once you've eaten natural foods for a while, you'll lose your taste for processed foods. It's not scary...it's healthful eating.

Good luck!

GlutenFreeManna Rising Star

Welcome! Sorry you are still having pain. If you have non-stick or cast iron pans you definitely need to get new ones and dedicate them to gluten-free cooking. Gluten can get in the scratches of the pans and contaminate the gluten free food you are trying to cook. Colanders are really hard to clean with all those little holes and plastic or wooden utensils and cutting boards will have the same problem. I have read on here that the only way to get rid of gluten particles (beside really hard scrubbing) would be to burn it off by heating something to 600 degrees for at least 30 minutes. You can re-season a cast iron pan this way, but you can't do that with non-stick and you can't scrub a non-stick pan clean either.

ETA: there are safe and unsafe ingredients lists on the home page of celiac.com Print them out and take them tot he store so you can read the labels if you need to. But in the beginning of this diet it helps if you stick to mainly whole foods--meat, poultry, veggies, rice, potatoes, etc. and stay away from too many gluten free substitutes and other processed foods. You body will heal better and it will be easier to figure out if you have and additional intolerance besides gluten (many of us do).

WheatChef Apprentice

First step: toss any teflon pans. Not because yes, they are now unsafe for you as a celiac, but because they have always been unsafe for you as a mammal (and are merely coverups for poor cooking techniques).

While you're at it, toss your cast irons. Cast iron pans are probably on the very short list for absolute essentials in any kitchen (along with knives, a cutting board, salt and fats). They are simply put, amazing cookware. They are unfortunately also simply put, full of holes. Cast irons are severely porous and can gather all sorts of compounds, considering you are now trying to avoid a particular microscopic compound you'd be best off just replacing these to be on the safe side.

As far as other sorts of pots and pans go, scrub off any visible stains and scum from them and then if you want to be extra sure of their cleanliness, soak them in everclear (the "bad" gluten is alcohol soluble) and then scrub them again. This is probably slight overkill but you'll have some clean pans out of it at least!

I have a degree in food science and the scientific reading of ingredients labels intimidates me too! However this is mostly because at this point I can point out the ones that probably shouldn't be assumed fit for human consumption. A good general rule of thumb would be that the longer an ingredients list is and the more complicated it is, the less it is something you should put into your body. A lot of times all the complicated names are really just science speak for compounds found commonly in different plant or animal tissue but if you want to get a little more knowledgeable in your label reading I suggest you read up on antioxidants and emulsifiers, most often times these constitute the bulk of added ingredients as they either keep the product from going stale or make the compound thicker (no one pays for water unless they think it's coming from some magic stream somewhere).

Overall though I would highly recommend that you learn to make your own seasoning mixes. The stuff sold in the store is such absolute crap compared to what you could make at home with just some minimal practice. The ability to make your own spice rubs, currys and curing salts is not only impressive to others but liberating to yourself and your taste buds!

cassP Contributor

like the above posters have said- stick with all naturally gluten free foods.. meats, fish, veggies, rice, and some good fats too- like EVOO & nut butters...

everybody's different- but i find a cup of lightly cooked vegtables with butter or olive oil much easier to digest than fruit. i eat a little fruit- but if i was ONLY eating fruit- i would be doubled over in pain-

your body definitely needs more than sucrose, fructose, and fiber.. also read up on the daily threads on here- everyone has a lot of great advice! and dont get disheartened- it's only been 2 weeks- in the past when i would "try" gluten free- it would take me at least 3 weeks to feel like i was on the right road. hang in there :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.