Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Blood This Morning, Went To The Ped.

brendab

Recommended Posts

brendab Contributor
brendab
Posted

I don't know which way is up anymore everybody but my son had a bit of red streaks in his poop last evening and this morning was more. I saved it in a baggie and took him promptly to the ped. and nothing came of it. My son has his 2 year check-up on Friday and I was simply instructed to keep an eye on his movements until then and see what happens. He will refer me to a ped GI if he has more issues so I don't feel like we got anywhere. I told him about my sons gluten related GI issues since he was a nursling and he did ask me if Celiac's ran through the family and that I don't really know but I know I have issues with gluten but untested. So for now, nothing new to report.

I was hoping to get started with finding a good ped. GI :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

Well, you definitely did the right thing, since blood in stools can be serious.

brendab Contributor
brendab
Posted
  • Author

Well, you definitely did the right thing, since blood in stools can be serious.

He didn't seem concerned at all even with my sons 19 month history with abnormal GI issues. We are searching for a ped. GI doc and may just go straight to the Children's Hospital to find one.

brendab Contributor
brendab
Posted
  • Author

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!

Skylark Collaborator
Skylark
Posted

Good luck finding a good pediatric GI. I will have my fingers crossed.

Gardening Apprentice
Gardening
Posted

Good for you! I totally gave up on my ped. I hope you get an appt soon. Make sure you tell the receptionist he is having black stools and there has been visible blood in his stool. If there have been any weight gain issues, mention that too.

And if it's still a while before your appt, ask if they have a last minute cancellation waitlist, or if you can periodically call to see if anyone has cancelled.

kareng Grand Master
kareng
Posted

If for some reason they don't give you a quick appt, they have a great ER. If the red blood keeps up, just go straight there. If you go Monday - Friday during the day, you should be seeing a GI in the ER.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brendab Contributor
brendab
Posted
  • Author

If for some reason they don't give you a quick appt, they have a great ER. If the red blood keeps up, just go straight there. If you go Monday - Friday during the day, you should be seeing a GI in the ER.

He had another poop today with more blood in it and I am waiting for them to get back to me but I don't expect this evening it will happen so cross your fingers that they will get back to me tomorrow!

brendab Contributor
brendab
Posted
  • Author

Good for you! I totally gave up on my ped. I hope you get an appt soon. Make sure you tell the receptionist he is having black stools and there has been visible blood in his stool. If there have been any weight gain issues, mention that too.

And if it's still a while before your appt, ask if they have a last minute cancellation waitlist, or if you can periodically call to see if anyone has cancelled.

Great advice! I'm glad I am a part of this group! I need help and support like this.

brendab Contributor
brendab
Posted
  • Author

Good luck finding a good pediatric GI. I will have my fingers crossed.

Thank you, I appreciate all of the advice and support you have given me!

kareng Grand Master
kareng
Posted

Did you see a doc yet?

brendab Contributor
brendab
Posted
  • Author

Did you see a doc yet?

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

kareng Grand Master
kareng
Posted

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

Childrens has a Celiac program. You might check where the closer GI did his residency and how old he is. If he was recently at someplace with a Celiac center, he would probably have a clue. Also, call Childrens again if you want to go there. It's been so long since I worked there, I don't know who to tell you to go to or how appts work. Looks like you can make them on line but I don't know how fast that appt would be.

TrickyMama Apprentice
TrickyMama
Posted

You could also try to see an IBD specialist. Blood in the stool often indicates the possibility of IBD...and the likelihood of having both is not as small as you would think.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yup, then was off on a few more adventures and came home to company and now I have nothing to do so I checked in here :) I took my son back to the ped. this morning and told him that he had 3 poops with blood in them total since Tuesday night so he has given me a referral to a Ped. GI; I haven't heard back from Children's in DC yet. Should I wait or should I call this other one that he recommended (and is closer) and then go with the one that is sooner? How do I know they are even better? I am not sure how to tell.

My son has not had a poop today so I cannot tell if it's any better today or not though.

There is no reason not to make an appointment with both. If when you get to the first appointment you feel comfortable that this doctor is knowledgeable you can always cancel the later appointment. Or you can keep it as a second opinion is not a bad idea. Make sure that you mention the black stool you have seen also. If you can get hard copies of his records to take with you or make sure they have transferred them if they do them all electronically that would be good. I hope they get this figured out soon.

brendab Contributor
brendab
Posted
  • Author

You could also try to see an IBD specialist. Blood in the stool often indicates the possibility of IBD...and the likelihood of having both is not as small as you would think.

Can you tell me a bit about IBD? It seems like you are saying it's common to have IBD and celiac disease? Yikes!

There is no reason not to make an appointment with both. If when you get to the first appointment you feel comfortable that this doctor is knowledgeable you can always cancel the later appointment. Or you can keep it as a second opinion is not a bad idea. Make sure that you mention the black stool you have seen also. If you can get hard copies of his records to take with you or make sure they have transferred them if they do them all electronically that would be good. I hope they get this figured out soon.

This is really my first time bringing up the posibility of Celiacs or some other issue in the bowels for my son, there really aren't any records besides this past Wednesday when his Ped. saw the poop I took in to him to see. Is this what you are wanting me to do? I also had the thought of making an appt. with both for now and play it by ear after that.

I wonder why the black stool and then the red? One is upper intestines and the other is lower.......strange isn't it?

Gardening Apprentice
Gardening
Posted

Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher.

She was knowledgable and really great with little kids.

brendab Contributor
brendab
Posted
  • Author

Just noticed you were in the DC area. I am too, but we went to the Celiac Research Center in Baltimore and saw Dr Safta there - she is the pediatric GI who works with Dr Fasano, who is a top celiac researcher.

She was knowledgable and really great with little kids.

Hmmmmmmmm..........I wonder if I should be going there instead? I honestly don't mind the travel if it's for somebody who's specialty is what I believe my son has. I wonder if they have a website I can visit, do you know? Thank you for this tip!

brendab Contributor
brendab
Posted
  • Author

I found it :)

Open Original Shared Link

kareng Grand Master
kareng
Posted

We don't know what the kiddo has yet. Children's does research in all specialties and happens to have a Celiac center so presumably any GI would know about Celiac if that is the issue. They also, train doctors there. Blood in stools could be a lot of things, some fairly minor & some very major. I thought I would take my kid there because they should know about Celiac as well as other diseases. They also have different specialties if they want another body system looked at.

Gardening Apprentice
Gardening
Posted

The Celiac Research Center is part of the University of Maryland hospital/medical school. It is not a stand-alone facility. They have all specialties there, and they have a children's hospital within the big hospital. Dr Safta is actually treating a 19 mos old who was diagnosed with Crohn's at 12 mos, which is quite rare, so she is not exclusive to celiac.

Just an fyi - I didn't realize all of that until we went there.

I would try both Children's and the Celiac Research Center - see where they can get you in the fastest. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

This is really my first time bringing up the posibility of Celiacs or some other issue in the bowels for my son, there really aren't any records besides this past Wednesday when his Ped. saw the poop I took in to him to see. Is this what you are wanting me to do? I also had the thought of making an appt. with both for now and play it by ear after that.

I wonder why the black stool and then the red? One is upper intestines and the other is lower.......strange isn't it?

I would either bring any records that you have for him or sign releases to have them transferred. You never know what may be significant. I think nowadays they do the transfers electronically so perhaps you can sign the releases as soon as you have appointments scheduled so the new doctor can go over them when he is first seen.

I hope they get him in soon. You must be so worried.

Grace'smom Explorer
Grace'smom
Posted

I'm not waiting to "see what happens next", I just contacted Children's Hospital in DC and am making an appt. with the Ped. GI doc there, I am hoping they will see him soon as this bleeding worries me sick!

Good for you...trust your mom instincts. We really have to be our own medical advocates these days, esp for our little ones...will say a prayer for you that you find the right dr and get the answers you need. Keep us posted. Emily

Grace'smom Explorer
Grace'smom
Posted

We don't know what the kiddo has yet. Children's does research in all specialties and happens to have a Celiac center so presumably any GI would know about Celiac if that is the issue. They also, train doctors there. Blood in stools could be a lot of things, some fairly minor & some very major. I thought I would take my kid there because they should know about Celiac as well as other diseases. They also have different specialties if they want another body system looked at.

Karen, I may have missed a post on this a while back, but I think you were waiting on biopsy results last time I looked...did you get them back? Hope everything went ok. Emily

kareng Grand Master
kareng
Posted

Karen, I may have missed a post on this a while back, but I think you were waiting on biopsy results last time I looked...did you get them back? Hope everything went ok. Emily

No. no biopsy. My kids had blood tests for celiac disease that were odd. Trying to get some info on them. Don't seem to be positive but the Peditrician didn't know what they mean. Sent them to another doc but he has been on vacation & is backed up.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.