Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating!


CarolinaKip

Recommended Posts

Skylark Collaborator

I'm wondering about oxalate in the spinach. Unfortunately, the other greens that are low fructose also have some oxalate. Try a small serving of cooked cauliflower or broccoli if that hasn't bothered you in the past.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarolinaKip Community Regular

Thanks everyone. I know I'm super sensitive. I dont feel glutened, just side pain, tummy buring and bloat. I feel a little better today, but want to eat some veggies and fruit. Before going gluten-free, I ate so healthy. Salads every day with veggies/fruit/lean meat. I miss that! I rarely ate cookies etc. I ate wheat bread and oatmeal/w honey every morning if you can imagine. No wonder I was hurting so bad. Melba toast with lunch....etc

I cannot eat almonds, peanuts and brazil nuts due to allergy. I don't know what my DQ is. I think that is what was asked, sorry it was a long day in kindedrgarten and on the bus :) I'm tired and my brain is fried! I ate a simple chicken and jasmine rice today, some gastro issues, but not a lot of pain. Until I came home and ate two slices of Hormel chicken gluten-free meat with a mission corn tortila. I'll try the other veggies, thanks for the replies.

cassP Contributor

I'm wondering about oxalate in the spinach. Unfortunately, the other greens that are low fructose also have some oxalate. Try a small serving of cooked cauliflower or broccoli if that hasn't bothered you in the past.

oh interesting... i knew oxalates should be avoided if you have kidney stones.. but can they cause a reaction for some??

gf-soph Apprentice

I'm getting back into FODMAP after a false start, and it has helped the bloating heaps.

I'm on the yahoo group, it's pretty active, well worth checking out.

Thanks for posting the hedra page - I'm having a look now and it seems great!

burdee Enthusiast

Thanks everyone. I know I'm super sensitive. I dont feel glutened, just side pain, tummy buring and bloat. I feel a little better today, but want to eat some veggies and fruit. Before going gluten-free, I ate so healthy. Salads every day with veggies/fruit/lean meat. I miss that! I rarely ate cookies etc. I ate wheat bread and oatmeal/w honey every morning if you can imagine. No wonder I was hurting so bad. Melba toast with lunch....etc

I cannot eat almonds, peanuts and brazil nuts due to allergy. I don't know what my DQ is. I think that is what was asked, sorry it was a long day in kindedrgarten and on the bus :) I'm tired and my brain is fried! I ate a simple chicken and jasmine rice today, some gastro issues, but not a lot of pain. Until I came home and ate two slices of Hormel chicken gluten-free meat with a mission corn tortila. I'll try the other veggies, thanks for the replies.

I don't know your history or whether you've ever taken any acid blocking drugs, but you could have low stomach acid, which could make you bloat after eating almost anything. Many people with celiac disease have low stomach acid, because gluten antibodies can attack the parietal cells of the stomach. Those cells produce stomach acid, which is necessary for proper digestion of food and absorption of vitamins and minerals from that food. Before I was tested for stomach acid production and started taking HCl supplements, I bloated after EVERY meal, no matter what I ate. (I was also abstaining from all my blood test diagnosed food allergies, but still bloated.)

Skylark Collaborator

oh interesting... i knew oxalates should be avoided if you have kidney stones.. but can they cause a reaction for some??

Yes, not everyone handles oxalates well.

Here's a fairly interesting blog post I turned up on Google about them.

Open Original Shared Link

dilettantesteph Collaborator

do you know what your DQ genes are??? im starting to wonder if Celiac's degree of sensitivity can be related to what their genes are... OR maybe its only related to amount of damage in the gut.??? it's all so interesting to me.

before i went "gluten lite & mostly carb free" a decade ago- i DID get to the point where i was having the "D" every day. but im not one of those people now who gets the "D" from CC. i definitely have side effects, and the last time i ingested gluten- i had Tacychardia & severe nausea... but i usually get the "C" & painful gas, and strange Bms... LONG BEFORE any "D".

im a double DQ8... i didnt know if the classic "DQ 2.5" was more sensitive than me- or if it's just the damage.

sorry to ramble- i just find it fascinating

I find it really interesting too, but not enough to shell out the $300, or really $1200 for our family of 4. I think it must be genetic because my son is even more sensitive than I am. My husband won't get tested. My daughter had a negative blood test. Lots of people seem to think it has to do with amount of exposure to gluten and it could be that too. My son did eat a lot of vegetarian meat substitute(before diagnosis) which was made from wheat gluten. How could I have done that to him! But he was diagnosed at age 10 and I wasn't diagnosed until age 47.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

skylark: thanks! interesting blog

step: my gene test was only 150$ but ya- its not necessary, just interesting... not as important as the blood test or diet. diet may even be MORE evidential- due to common false negative tests.

:)

CarolinaKip Community Regular

I don't know your history or whether you've ever taken any acid blocking drugs, but you could have low stomach acid, which could make you bloat after eating almost anything. Many people with celiac disease have low stomach acid, because gluten antibodies can attack the parietal cells of the stomach. Those cells produce stomach acid, which is necessary for proper digestion of food and absorption of vitamins and minerals from that food. Before I was tested for stomach acid production and started taking HCl supplements, I bloated after EVERY meal, no matter what I ate. (I was also abstaining from all my blood test diagnosed food allergies, but still bloated.)

I lived off of gas meds and acid blocking meds for years due to beginning told I had acid reflux. When I went gluten-free I stopped taking any med. This will go on my list to ask the gastro next month. I'm hoping he will take me seriously. I feel better gluten-free, but would love to have a totally bloat and pain free day. I have no idea what to eat anymore,sigh.....Thanks for the input.

dilettantesteph Collaborator

skylark: thanks! interesting blog

step: my gene test was only 150$ but ya- its not necessary, just interesting... not as important as the blood test or diet. diet may even be MORE evidential- due to common false negative tests.

:)

Where did you get it done?

burdee Enthusiast

I lived off of gas meds and acid blocking meds for years due to beginning told I had acid reflux. When I went gluten-free I stopped taking any med. This will go on my list to ask the gastro next month. I'm hoping he will take me seriously. I feel better gluten-free, but would love to have a totally bloat and pain free day. I have no idea what to eat anymore,sigh.....Thanks for the input.

Many traditional docs believe drug companies' ads about excess stomach acid causing reflux. Actually a weakened lower esophageal sphincter (LES), which can open at inappropriate times, can cause reflux. Food allergies, gluten intolerance, certain foods and beverages like alcohol, caffeine, chocolate, peppermint and onions, as well as some drugs like ibuprofen and demerol can weaken the lower esophageal sphincter. When we swallow food, a normal stomach will produce enough acid to biochemically signal the LES to close until more food comes down the esophagus and then close again. If you have low stomach acid, you can reflux more easily and not digest food as well, which causes bloating and discomfort.

I'm glad you stopped taking acid blocking meds. However continued digestive problems may mean you have low stomach acid or deficient good bacteria in your intestines. Both can cause bloating. For more information, see "Why Stomach Acid is Good for You" by Dr. Jonathon Wright.

cassP Contributor

Where did you get it done?

i ordered mine thru Enterolab. people say its controversial & nondiagnostic. but knowing what my genes are really helped motivate me- and go back to my Gi... and now, im trying to get my family to get tested. so frustrating!! since i read about a certain diet i love and will not name here-> most of my family is so gluten lite that a blood test would be inconclusive. my dad is the only one who is eating enough gluten but he's so dang stubborn he wont get a test :angry: but i know now that both my mom AND dad have at least 1 DQ8. my mom has Hashimoto's.. and my Dad has had lymphoma & an arterial blockage & anxiety/behavioral issues. BOTH my parents families have suspicious gluten related issues. i really wish they screened for Celiac in america the way they do in Italy or Finland :(

and- i read the same book as Burdee!!! my doc gave it to me after i did the Heidelberg test. its a great book- and very enlightening.

dilettantesteph Collaborator

My mom died from lymphomia. My dad had a negative blood test but decided to try a gluten free diet due to some annoying symptoms which went away. Now he experiences glutening when he gets accidental gluten. I'm guessing that I got it from both sides. It would be interesting to get the test done.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,524
    • Most Online (within 30 mins)
      7,748

    Joe Y
    Newest Member
    Joe Y
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bev in Milw
      Based on the amount of gluten in typical US diet, our bodies have a really high tolerance for gluten. While it  makes us sick, from inflammation, poor digestion/limited absorption of basic nutrients, & specific vitamin  & mineral deficiencies, it doesn’t kill quickly.  By this time celiac is dx-ed, our immune system are usually over worked & under fed.    Once dx -ed & on GFD, gut starts to heal & immune system function improves both in its ability to find gluten & to response to it. Basically, immune system is on high alert & fully armed so traces of gluten  can set off reactions that are as bad or worse than  those pre-dx.       You’ve reached that point so it’s time to go through products you’re using & look for little things like Vit E from wheat germ in your lip gloss/shampoo. (In our group, one member’s 10 yo got sick after usual Friday shower in mom’s bathroom with HER shampoo before going to grandma’s for weekend. Sister was doing same  in girls’ usual bathroom &  shampoo. Took months to figure out.).      Could also be ‘natural flavoring’ from barley (in some chocolate chips) which isn’t wheat-no allergen label.      One of thyroid meds (Abie?) was made on non-dedicated line. For those who got a 30 or 90 day Rx from a contaminated batch, the small trace amounts over time caused major problems, esp brain fog.      Read up on where cn where cross contamination can occur….shared cooking surfaces, seasoning blends.  Ice cream is made on a frozen line that can’t be washed between flavors —Vanilla is ‘plain base’—always made 1st on clean line, chocolate w/ darkest color/ flavor is last. Cookies & cream/glutn is in between.     Keeping food diary can help. Steno notebook/spiral at top works best.   Put date at top  of page…List what you eat in Left column & draw a line —your clock, before lunch, dinner, & bedtime snack.   Symptoms get listed in Right column in the appropriate time frame.        If you notice symptoms happen with a  certain food, but not every time, you start tracking brands or locations (if eating out) to narrow down suspects.     Spiral at top of pages makes it easy to slide pages up to compare reactions & foods on different days . Notebooks with side spiral & taking pictures aren’t as convenient for making needed comparisons.   You will need a last 3 weeks of data to start figuring things out.  I prefer starting at back of notebook so  most recent info is on top. (I also don’t have to write on wrinkled pages.) If taking Rx, keep track of refill dates & make friends with pharmacist or find new one who ‘gets gluten-free’…     For OTC meds, brand name manufacturers have advertising budgets & change suppliers  frequently to keep costs low.   Generics w/ gluten-free labels are safer/cost less. No ad budget, more $$ for long- term suppliers.   Many gluten-free ingredients are new to our diets.  I’ve met people who reacted  to rice, tapioca, xanthan  gum, carrageenan, canola oil, to name a few. Most hadn’t noticed problems before dx because items weren’t eaten regularly .Personally, I avoid potato starch found in most gluten-free items.  It’s naturally high in nitrates that give  me bone pain & blisters  Saw a note in nutrient text that said ‘enriched foods’ provides ~60% of B vitamins in typical diet. I like multi’s  with thiamine HCl because the acid  helps with absorption (Teader Joe has one at decent price.)   Since Vit C &  B’s are water soluble, probably more effective to take half in am & pm..lower doses/more often.  Sounds like you are healing about on schedule.   Keep up the good work!  Don’t be embarrassed/ afraid to ask a lot of question when eating out.  Takes a long time—years actually, to figure out that you won’t starve to dead if you have to skip a meal but ‘Nothing tastes as good as gluten-free feels!’ There are  2 Basic Rules for gluten-free.         1. Read every label, every time!       2. When in doubt, leave it out!          ( I also like— “With celiac, anything can happen & usually does.” )   I was dx in Dec1981 when incidence was thought to be 1 in 5,000. 2 kids of my kids-5 & 3, got clinical dx then.  By late 90’s, Mayo Clinic put  prevalence at 1 in 2,000,  Results of study done by European drs in US to validate tTg antibody testing for use in US estimated  prevalence to be 1 in 134 with only 3% diagnosed. Awareness campaign followed & within  -1O yrs rate of dx jumped to 18% before stalling.     Since antibody testing is specific for dx-ing celiac, it’s only done IF dr suspects celiac & orders test. Because of my dx, my daughter was screened/ biopsy dx in 2007, along w/ 2 grands, & 2 more since ‘20. (3 of 3 kids, 4 of 5 grands.)     Unfortunately, symptoms of celiac are still unknown so drs don’t test, leaving 80+% of sufferers un-dx. Given the odds, getting a dx is truly a blessing and GFD has never been easier than it is today thanks to allergen and gluten-free labeling laws.      Congratulations on you dx!                                  
    • Scott Adams
    • Scott Adams
      Finding a doctor who truly understands celiac disease can be challenging—many still rely on outdated info or dismiss lingering symptoms. Here's what's worked for me and others in the celiac community: 1. Start with a Gastroenterologist (GI) Specializing in Celiac Look for GIs affiliated with celiac research centers (e.g., Columbia University, Mayo Clinic, University of Chicago Celiac Disease Center). Ask if they follow updated guidelines (e.g., repeat endoscopy/biopsy when needed, monitor for refractory celiac, nutrient deficiencies). 2. Leverage Celiac Organizations Celiac Disease Foundation Beyond Celiac Coeliac UK (UK): Healthcare Professional Network 3. Ask Local Celiac Support Groups Facebook groups or Meetup.com chapters often share doctor recommendations (e.g., "Seattle Celiac Group"). Example: "My GI in Boston orders tTG-IgA + DGP-IgG and checks my villi healing progress yearly." 4. Red Flags to Avoid Doctors who say: "Just avoid gluten, you'll be fine" without follow-up testing. Those who dismiss non-GI symptoms (e.g., neuropathy, DH rash, fatigue). Pro Tip: For complex cases (e.g., refractory celiac), seek a university hospital celiac program.
    • Joel K
      A year later, I can say (1) I've sailed around in the BVIs now twice since my original posting on this subject and found several restaurants that were safe for me.  I was happy to see most of the larger restaurants had at least someone who could answer questions if no mention was made in the menus.  And (2) I was sad to see that none of the bars or restaurants in Cane Garden Bay, Tortola, were safe for folks with celiac disease, especially since I used to live there quite a while back but had not yet been diagnosed. For the record, Road Town in Tortola had two places I could eat relatively safely in public: The Village Inn Marina restaurant, because the kitchen is outside and I could speak directly with the chef (servers aren't much help in knowing, but are helpful if you ask them to ask the chef), and Capriccio di Mare, which is a short hike from Village Cay.  Again, servers, not so much.  But the owner/manager is very visible and accessible and she's got celiac down to a tee.  She even makes sure there are gluten-free desserts available! As for the other British Virgins: Virgin Gorda: There's a place in Leverick Bay and another at Saba Rock resorts where we can eat safely.  I didn't make it down to Spanishtown on either trip due to weather.  Above The Baths was another place supposed to be another place, but I have that on hearsay from one of my non-celiac disease shipmates. Marina Cay: Lots of gluten-free options and I felt quite safe eating there. Jost Van Dyke: Foxy's had someone who knew what I could have safely, and they included most everything on the menu.  Some weren't, but the lady could tell me which. Norman Island: The Pirate's Bight restaurant is about as safe as it gets down there.  Servers are clued in, food was marked on the menu and plates when they came out.  Leave it to BVI to have the safest gluten-free restaurant on an unhabited island! No problem, mon. Anegada: We ate at the Lobster Trap and at Potter's.  Good stuff, Maynard! I have to say, most of the restaurants make real food rather than processed, out-of-the-packet/box food down there.  So as long as you stick to whole foods, you're more than likely fine.  I did use my GliadinX product the first time I went down there last November in all the places I ate ashore.  But not the second time in April.  Especially in the places where the locals remembered me.  I actually felt safer in most places down in the BVIs than most restaurants in my own hometown in New Hampshire.
    • Beverage
      My college aged step grand daughter, diagnosed with Celiacs 2 years ago, did get a reaction after kissing her new boyfriend. It was driving her nuts trying to figure it out until I asked her if she'd been kissing anybody. She went beet red. They did some testing of the situation, and thought that was the source.  For her, having him drink something and rinse out his mouth didn't do enough.  He started carrying a little toothbrush and toothpaste around with him.  I noticed he started kissing the back of her hand instead of her face from time to time, so dang cute.  She hasn't had the problem since, and still with that nice young man that was so considerate and willing to do a little change for her. 
×
×
  • Create New...