Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination From Gluten Free Oats?

Roda

Recommended Posts

Roda Rising Star
Roda
Posted

I react badly to certified gluten free oats. I get severe abdominal pain, cramping, bloating, heartburn, bowel troubles and rash on my back side. I do use alot of Bob's products and Bob's does process gluten free oats. If these, and probably are, are processed in the same facility as the other gluten free grains, could the cross contamination in sensitive people cause an elevation in antibodies? I have recently ruled out everything under the sun for my symptoms over the last six months plus and the doctor said I am definately having a flare of the celiac. I had my antibody tests redone and the gliadin IgG is still elevated (strong positive) and has been for the last 1 1/2 years everything else is alright at this point. I am grasping at reasons for this. I am making more changes at my house, but I don't think that it is enough. I did email the company many months ago concerning this question and recieved no reponse back.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

If I remember correctly Bob's gluten free items are made in a dedicated plant, could be wrong though. Do keep in mind that there seem to be more of us that don't tolerate oats than do. You may be one of us who doesn't.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I have read that some react to Oats the same as Wheat, Barley and Rye. Some lists even list oats as containing gluten though I think that is debatable. I have tried some certified gluten free oats and did okay with them but I don't eat them very often because I have read so much about oats (and other gluten-free grains) being cross-contaminated if not in the factory then in the fields themselves.

glutenfr3309 Rookie
glutenfr3309
Posted

I react badly to certified gluten free oats. I get severe abdominal pain, cramping, bloating, heartburn, bowel troubles and rash on my back side. I do use alot of Bob's products and Bob's does process gluten free oats. If these, and probably are, are processed in the same facility as the other gluten free grains, could the cross contamination in sensitive people cause an elevation in antibodies? I have recently ruled out everything under the sun for my symptoms over the last six months plus and the doctor said I am definately having a flare of the celiac. I had my antibody tests redone and the gliadin IgG is still elevated (strong positive) and has been for the last 1 1/2 years everything else is alright at this point. I am grasping at reasons for this. I am making more changes at my house, but I don't think that it is enough. I did email the company many months ago concerning this question and recieved no reponse back.

gluten-free oats make me sick (i think). i'm going to try them one more time just to make sure it wasn't something else that i ate since i typically won't feel some effects until days later. it's a shame because i loved eating oatmeal for breakfast. i used to EVERYDAY a year ago!

Roda Rising Star
Roda
Posted
  • Author

Thanks for the input. :) My question is not if I could have a problem with gluten free oats, as I already know that I do. Rather, could the potential cross contamination from the gluten free oats with other gluten free grains cause problems especially with the antibodies? Bob's does process the gluten free stuff in a dedicated facility so it would stand to reason that they would process their gluten free oats there as well.

Edit: I just spoke to a rep and the gluten free oats are processed in the same facility and lines as the other gluten free products. They have a clean down process of high powered air and then discard the first 30 lb of product during the first run. I may just try to find a different brand and see if it makes a difference. Bum too, since Bob's stuff is readily available to me.

dilettantesteph Collaborator
dilettantesteph
Posted

I also react to gluten free oats. It was like the gluten reaction, but I think that it was more severe. I had the same conversation with Bob's and did feel better when I stopped eating their products. I felt better when I switched to gluten free pantry. Now I process my own whole grains. I hope that it makes an improvement in your health.

tarnalberry Community Regular
tarnalberry
Posted

I don't know if BRM sources gluten free growers (like Cream Hill Estates). If not, there could be contamination from the fields (since oats are usually grown in rotation with wheat). You might try a dedicated grower. Otherwise, I would assume you are one of the 1-in-10 who react to the oat protein with a celiac reaction.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Thanks for the input. :) My question is not if I could have a problem with gluten free oats, as I already know that I do. Rather, could the potential cross contamination from the gluten free oats with other gluten free grains cause problems especially with the antibodies? Bob's does process the gluten free stuff in a dedicated facility so it would stand to reason that they would process their gluten free oats there as well.

Edit: I just spoke to a rep and the gluten free oats are processed in the same facility and lines as the other gluten free products. They have a clean down process of high powered air and then discard the first 30 lb of product during the first run. I may just try to find a different brand and see if it makes a difference. Bum too, since Bob's stuff is readily available to me.

Okay, now I understand what you were asking better. This could explain why I react to anything by Bob's Red Mill (even though I don't react to gluten-free oats made by other companies). I don't buy their gluten-free products anymore, which is a shame because they are the most common ones around here. I wonder what their testing criteria is for gluten free? How many PPM do they allow in their oats and other products?

Skylark Collaborator
Skylark
Posted

My bag of Bob's oats says they are grown in dedicated fields and tested for gluten. I looked at the website and they're using the R5 elisa which is quite sensitive. R5 does NOT detect aveenin, so they are not testing their other flours for any sort of oat CC.

I found a 2006 post on this forum that quoted the BRM website as saying they cut off at 20 ppm. The link is dead and I'm not finding a ppm limit on the current website. I found a Facebook page talking about the testing and they seem to have carefully avoided putting a number on the ppm gluten there as well.

sunnybabi1986 Contributor
sunnybabi1986
Posted

Okay, now I understand what you were asking better. This could explain why I react to anything by Bob's Red Mill (even though I don't react to gluten-free oats made by other companies). I don't buy their gluten-free products anymore, which is a shame because they are the most common ones around here. I wonder what their testing criteria is for gluten free? How many PPM do they allow in their oats and other products?

Here is Bob's Red Mill's explanation on their gluten free oats: Open Original Shared Link

It doesn't list how many ppm they test to, but I'm sure they'd be happy to tell you if call them :)

Roda Rising Star
Roda
Posted
  • Author

I looked at the website and they're using the R5 elisa which is quite sensitive. R5 does NOT detect aveenin, so they are not testing their other flours for any sort of oat CC.

Yes this was what I was wondering about the CC from aveenin. I guess I didn't explain myself well. :P I just don't know what to do with all of the stuff I have around. I'm also not looking forward to the cost of replacing it all either.

Roda Rising Star
Roda
Posted
  • Author

I also react to gluten free oats. It was like the gluten reaction, but I think that it was more severe. I had the same conversation with Bob's and did feel better when I stopped eating their products. I felt better when I switched to gluten free pantry. Now I process my own whole grains. I hope that it makes an improvement in your health.

Wher do you buy your grains?

dilettantesteph Collaborator
dilettantesteph
Posted

Wher do you buy your grains?

I get my sorghum from Twin Valley Mills. They clean their harvesting equipment for two days before harvest. Nontheless it is shared and I found a wheat berry after sorting through over 30 pounds of sorghum, so I sort and wash. Quinoa I get from Ancient Harvest and also wash (with soap), I stopped eating buckwheat, but the best source seemed to be Burkett Mills. My millet source had no wheat growing within 100 miles and a dedicated facility but I found about 100 wheat berries in a 30 lb bag so I won't give you their name. I got better stuff from Eden Organics. It seems O.K. if I sort and wash. Rice from Lundbergs. Teff from The Teff Company.

I am very sensitive. A typical celiac shouldn't have to do all the sorting and washing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Suze046
      - Suze046 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Reintroduction of Gluten

      Hi, so just to put you in the picture, I’ve had lots of digestive issues over the past 6 months, diarrhoea, constipation, gut ache, cramps, head aches, lost 2 stone in weight am perimenopausal.. need I go on. I know some of this is caused by stress and I’ve always had to watch what I eat so noting too processed of fatty and rich. I’ve had blood tests, stoo...
    2. oyea
      - oyea replied to Lions31's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Neuropathy still after 4 months gluten-free.. help

      I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns...
    3. barb simkin
      - barb simkin posted a topic in Related Issues & Disorders
      0

      celiac, chocolate and alcohol

      Anyone bothered by chocolate and alcohol. Found I cant drink alcohol or eat chocolate Anyone else
    4. dixonpete
      - dixonpete commented on dixonpete's blog entry in Pete Dixon
      3

      Hookwormed status report

      I should add that hookworms aren't a cure for celiac disease. Some people, and I couldn't tell you how many, stop evincing the symptoms of celiac disease while their hookworm colonies are healthy. Others have a reduction in the severity of their reactions to gluten, but should still stay well away from it. And other people don't seem to be helped much at...
    5. Jmartes71
      - Jmartes71 replied to numike's topic in Food Intolerance & Leaky Gut
      9

      is my celiac disease gone?

      This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,311
    • Most Online (within 30 mins)
      7,748
    James Forkovitch
    Newest Member
    James Forkovitch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Suze046
      Reintroduction of Gluten

      By Suze046 · Posted

      Hi, so just to put you in the picture, I’ve had lots of digestive issues over the past 6 months, diarrhoea, constipation, gut ache, cramps, head aches, lost 2 stone in weight am perimenopausal.. need I go on. I know some of this is caused by stress and I’ve always had to watch what I eat so noting too processed of fatty and rich. I’ve had blood tests, stool tests gall bladder scan, repeated tests and nothing showed up (which is good) I tested negative for celiac back in March. I’ve just done 6 weeks gluten free and I have to say things got better. My doctor told me to reintroduce it so I did this 9 days ago but gently and I’m still keeping some gluten out of my diet. My question is how long can it take for a reaction because my diarrhoea constipation and cramps are back but only in the last 4 days and it started with a slight unsettling tum feeling first like it might kick off but not sure. So I’m wondering if this is just a coincidence or if it can take your body that long to react? Anyone else been through this? Advice needed! 
    • oyea
      Neuropathy still after 4 months gluten-free.. help

      By oyea · Posted

      I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns with small amounts of gluten.  I also get POTS (Postural Orthostatic Tachycardia Syndrome) when I eat gluten. My heart beats so fast in the middle of the night I can't sleep. I'm usually up for hours. 
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      Anyone bothered  by chocolate and alcohol.  Found I cant drink  alcohol or eat chocolate  Anyone else
    • Jmartes71
      is my celiac disease gone?

      By Jmartes71 · Posted

      This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30 years.I was not informed by anyone about the condition other than its a food allergy. Long story short if it wasn't for this website.I would be so much worse. I have been glutenfree since 1994 and was diagnosed with many other foods in 2007. I have stayed away from those items, except dairy sometimes I'll cheat when I know I'll be home a few days.My work history is horrible thanks to my digestive issues. I had my past primary for 25 years and everything im going through, he danced around celiac disease. My last day of employment was March 08, 2023 I was a bus driver and took pride in that.I get sick easily and when covid hit me and I stopped taking tramadel to push to give my bloated body a break, I haven't " bounced " back.Though not that well before but worse now.I applied for disability because yet again I was fired solely on health, which by the way seems to be legal because no lawyer wants to help.I was denied and my primary stated let me fluff it up a bit.FLUFF IT UP A BIT?He has been my doctor for 25 years! All that Im going through was basically ignored and not put together. I switched primary doctor and seeing new gi and its EXTREMELY EXHAUSTING because they are staying all my test came back clean, good, its normal. Except THANKYOU LORD JESUS HLA DQ2 is positive that Itty bitty tiny little test of positive FINALLY VALIDATION RIGHT.No, Im still struggling and fighting its not fair
    • Joel K
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Joel K · Posted

      Since medical insurance is not affected directly by celiac disease on an ongoing basis (i.e. medication, medical devices, daily monitoring, home care nursing, etc), I rather doubt anyone would be denied a policy for having it as a pre-existing condition. I’ve certainly never been and I have two pre-existing conditions that are managed with diet alone and both are long-well-known by my doctors and via medical testing and procedures. Insurance is all about risk management, not health. 
×
×
  • Create New...