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Saw A Dietician The Other Day...

Superfudge

By Superfudge
in Coping with Celiac Disease

Recommended Posts

Superfudge Rookie
Superfudge
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

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CarolinaKip Community Regular
CarolinaKip
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

I can relate, I have been in some type of pain everyday since Nov 09. I was dx in May wih Celiac. My dr gave me some handouts, but it was my dietitian who only does gluten-free that was my biggest help in the beginning. She was amazing! She and my dr office both suggested this forum for me. When everyone looks at me like I'm crazy and thinks I'm nuts about CC, this forum helps me know I'm not alone.

Fozzie Newbie
Fozzie
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

After being dx in Feb I askked for a referral to a dietician and received a call last week for an appointment. That was usefull :( ! I said "thank you but I already have the info That I need" thanks to this forum and some digging myself. You need to be proactive with this situation. I managed to find a cooworker who is a dietician and celiac ( I didn't know) and she gave me tips on where to shop etc.. Having acess to a search through the university library has provided a plethora of info but this site has been the most informative

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      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
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      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
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      Does Dailymed.nlm.nih.gov site have filters for gluten?

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      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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