Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Crying Out Loud

Aphreal

By Aphreal
in Coping with Celiac Disease

Recommended Posts

Aphreal Contributor
Aphreal
Posted

If one more person asks "well, what DO you eat then?" UGH!

Secondly I had my colonoscopy. Couple of spots, waiting on biopsy results.

Thirdly, I had some knarly oral surgery yesterday so now I hurt, I can hardly open my mouth and since I had work on both sides, I have nowhere to chew really. I am doped on vicodin so I cant drive and the kids are being... well kids.

Then my cycle started 3 days early

I can't catch a break!

Changed my antispasmotic and probiotic. Trying to keep the constipation at bay. Trying to bring my blood pressure down but yesterday at the surgeons office it was 145/104. I knew I would be put to sleep and Im on BP meds so why it was so high, I don't know.

*sigh* thanks for listening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RachelisFacebook Apprentice
RachelisFacebook
Posted

Awe. Someone needs a hug!! :wub:

I understand completely about the "What DO you eat?" question. I know its because they care, but there are people out there who have it far worse than I do. I'm going to Thanksgiving at my best friend's house (I'm in college in TN, and my family is in PA, so going home isn't quite an option), and its harder on me than I think them. But I know its because they're concerned and don't want me getting sick.

:wub:

tehjrow Rookie
tehjrow
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

i-geek Rookie
i-geek
Posted

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

Aphreal Contributor
Aphreal
Posted
  • Author

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

What the heck? I am SO sorry. That is horrible!! Stress is a big trigger for my symptoms and that would take me over the edge. I really am sorry, lifting you up for strength.

Thank you all for the encouragement. I knew I could come here. I think I am having cramping from a spot in my bowel where maybe she had a problem with the scope. Its a sharp pain. blah. hope it goes away.

Aphreal Contributor
Aphreal
Posted
  • Author

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

ravenwoodglass Mentor
ravenwoodglass
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

((((((((((((hugs))))))))))))))))))

I'm sorry you have to go through that. Just went through a divorce myself, it isn't easy.

Hope you get over the glutening soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

:D:D:D

That would be a great reply.

I hope your mouth heals quickly. Dental stuff is no fun. Relax as much as you can and hopefully you have lots of yummy liquid and mooshy stuff on hand.

Aphreal Contributor
Aphreal
Posted
  • Author

Ive had to lay off anything crunchy because of dental issues for like a month. He extracted the biggest of the problems so when I DO heal, I hope I can go back to my carrots and gluten-free crackers.

xox

Another quip..

So what DO you eat? "Well.... I used to have 4 children"

BWAAHAHAHAAHA! *sigh*

tarnalberry Community Regular
tarnalberry
Posted

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

i-geek Rookie
i-geek
Posted

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

i-geek Rookie
i-geek
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

Oh no. So sorry to hear that you're also having a rough go. :(

Aphreal Contributor
Aphreal
Posted
  • Author

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

HAHAHA I hope you have flowers in your hair when you are able to use that one.:)

Aphreal Contributor
Aphreal
Posted
  • Author

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

From one Tiff to another, I am hankerin for some chocolate. Oh and I love the idea of listing everything in nauseating detail.... and keep talking if they try to walk away. I mean they DID ask, right? :)

notme Experienced
notme
Posted

haha - on my first gluten-free trip out of town i brought my own breakfast: honey nut chex. and my own dish and spoon. so, in a big crowd of people in our hotel room i am munching away while everybody is discussing what i can and cannot eat. (my first "feed the freak" experience) i get done eating and take the bowl to wash it out and promptly drop it into the sink where it shatters into a million pieces. so now when anybody asks me what i can eat i tell them, "honey nut chex and broken glass" they usually shaddup after that :D:D:D

Jestgar Rising Star
Jestgar
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

WTF?? She's so not good enough for you.

Dellers Apprentice
Dellers
Posted

Big huggs we all have bad days then mother nature decides to kick us while we are down.

GFinDC Veteran
GFinDC
Posted

@tehjrow

Sorry tehjrow, that's a hard one to take. I got's 2 ex's myself. I talk to one on a fairly regular basis. She got re-married, to a stupid brain surgeon, why the heck would she want that? Silly 'ooman. But what the hey, life goes on and they are a happy family and I am happy for them. Took me a while to get over it though. We went to a mediator rather than lawyers. Might help in your case I don't know. Mediators can help both sides through the process, versus lawyers being a one sided, kind of adversarial thing.

@Apreal

Ya'al with your what do I eat lines are reminding me of the dead baby jokes. Ewww!

I heard yesterday that a tornado hit the little burg 2 of my sisters live in, The Plains, Ohio. Both of them are ok and their homes are barely scratched. Thank god for sparing them!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.