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For Crying Out Loud


Aphreal

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Aphreal Contributor

If one more person asks "well, what DO you eat then?" UGH!

Secondly I had my colonoscopy. Couple of spots, waiting on biopsy results.

Thirdly, I had some knarly oral surgery yesterday so now I hurt, I can hardly open my mouth and since I had work on both sides, I have nowhere to chew really. I am doped on vicodin so I cant drive and the kids are being... well kids.

Then my cycle started 3 days early

I can't catch a break!

Changed my antispasmotic and probiotic. Trying to keep the constipation at bay. Trying to bring my blood pressure down but yesterday at the surgeons office it was 145/104. I knew I would be put to sleep and Im on BP meds so why it was so high, I don't know.

*sigh* thanks for listening.


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RachelisFacebook Apprentice

Awe. Someone needs a hug!! :wub:

I understand completely about the "What DO you eat?" question. I know its because they care, but there are people out there who have it far worse than I do. I'm going to Thanksgiving at my best friend's house (I'm in college in TN, and my family is in PA, so going home isn't quite an option), and its harder on me than I think them. But I know its because they're concerned and don't want me getting sick.

:wub:

tehjrow Rookie

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

i-geek Rookie

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

Aphreal Contributor

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

What the heck? I am SO sorry. That is horrible!! Stress is a big trigger for my symptoms and that would take me over the edge. I really am sorry, lifting you up for strength.

Thank you all for the encouragement. I knew I could come here. I think I am having cramping from a spot in my bowel where maybe she had a problem with the scope. Its a sharp pain. blah. hope it goes away.

Aphreal Contributor

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

ravenwoodglass Mentor

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

((((((((((((hugs))))))))))))))))))

I'm sorry you have to go through that. Just went through a divorce myself, it isn't easy.

Hope you get over the glutening soon.


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ravenwoodglass Mentor

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

:D:D:D

That would be a great reply.

I hope your mouth heals quickly. Dental stuff is no fun. Relax as much as you can and hopefully you have lots of yummy liquid and mooshy stuff on hand.

Aphreal Contributor

Ive had to lay off anything crunchy because of dental issues for like a month. He extracted the biggest of the problems so when I DO heal, I hope I can go back to my carrots and gluten-free crackers.

xox

Another quip..

So what DO you eat? "Well.... I used to have 4 children"

BWAAHAHAHAAHA! *sigh*

tarnalberry Community Regular

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

i-geek Rookie

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

i-geek Rookie

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

Oh no. So sorry to hear that you're also having a rough go. :(

Aphreal Contributor

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

HAHAHA I hope you have flowers in your hair when you are able to use that one.:)

Aphreal Contributor

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

From one Tiff to another, I am hankerin for some chocolate. Oh and I love the idea of listing everything in nauseating detail.... and keep talking if they try to walk away. I mean they DID ask, right? :)

notme Experienced

haha - on my first gluten-free trip out of town i brought my own breakfast: honey nut chex. and my own dish and spoon. so, in a big crowd of people in our hotel room i am munching away while everybody is discussing what i can and cannot eat. (my first "feed the freak" experience) i get done eating and take the bowl to wash it out and promptly drop it into the sink where it shatters into a million pieces. so now when anybody asks me what i can eat i tell them, "honey nut chex and broken glass" they usually shaddup after that :D:D:D

Jestgar Rising Star

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

WTF?? She's so not good enough for you.

Dellers Apprentice

Big huggs we all have bad days then mother nature decides to kick us while we are down.

GFinDC Veteran

@tehjrow

Sorry tehjrow, that's a hard one to take. I got's 2 ex's myself. I talk to one on a fairly regular basis. She got re-married, to a stupid brain surgeon, why the heck would she want that? Silly 'ooman. But what the hey, life goes on and they are a happy family and I am happy for them. Took me a while to get over it though. We went to a mediator rather than lawyers. Might help in your case I don't know. Mediators can help both sides through the process, versus lawyers being a one sided, kind of adversarial thing.

@Apreal

Ya'al with your what do I eat lines are reminding me of the dead baby jokes. Ewww!

I heard yesterday that a tornado hit the little burg 2 of my sisters live in, The Plains, Ohio. Both of them are ok and their homes are barely scratched. Thank god for sparing them!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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