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Diagnosed Last Night


AWebb85

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AWebb85 Newbie

Hey everyone, I'm Aaron. I am 25 and live in Glendale AZ. I am new to the Celiac Family. Today was difficult looking in my fridge and pantry and realizing I can't eat almost anything in either. Happy to have a place where I can connect with similar people.


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Dixiebell Contributor

Welcome to the forum! It is hard to start with but it will be second nature soon. Ask any questions you need. there are some very smart people here.

Emilushka Contributor

Hi! I'm also a relatively new member of the group. I got my results back on 9/10, and I've been gluten-free ever since. Almost a whole month.

My fiance eats gluten still. My strategy has been to separate our food out in the kitchen so that his food will not get crumbs on my food and I will have my own areas to maintain and stock. This means that I can easily see what I can and cannot eat, or what can and cannot go into something I am cooking. I find this really helpful.

If you're living with others who eat gluten, make sure you're not sharing nonstick pans, nonstick utensils, or wooden utensils. It's wise to invest in a rice cooker, your own toaster oven, and a good cast iron skillet (that will forever be gluten free).

My biggest recommendation: learn to cook WELL. If you can keep making tasty foods you like to eat, it'll feel like you're giving up a lot less. My sad days are when I think of what I can't have. My happy days are when I realize I just made something delicious that incidentally had no gluten - and it makes my body feel great to have the good stuff.

lucia Enthusiast

It's true what they say - the diet will fall into place for you after awhile. I went through the exact same process that you describe - going through my cupboards and ending up discouraged. I'd encourage you to take a look at the recipe section on the site and also maybe to search for "ideas for breakfast," "ideas for lunch," etc. It's helpful to draw on other people's experience when planning meals. Honestly, after a few months, I think the hardest thing about the gluten-free diet is eating outside of the house, but that's a whole other hurdle for you. Welcome!

AWebb85 Newbie

Thanks for the kind words and information. I am starting to see just how many gluten free options there really are out there. My fiance is being very considerate and is going to try to only eat gluten free, at least at home. I am feeling a lot better about the whole idea and am excited to finally start feeling better!

  • 2 weeks later...
Foxx Newbie

Thanks for the kind words and information. I am starting to see just how many gluten free options there really are out there. My fiance is being very considerate and is going to try to only eat gluten free, at least at home. I am feeling a lot better about the whole idea and am excited to finally start feeling better!

Welcome and, I am new here as well.

Wal-Mart has a list (on their site) that details all of the Gluten Free products they carry. Watch your mouthwash as well - Equate (by Wal-Mart) are processed on a line shared by gluten-based products; cross contamination is definitely a serous problem. Be sure to call the Mfg and ask for a product specialist.

Good Luck and keep your head up

  • 2 weeks later...
Rocknroll Celiac Newbie

Hey everyone, I'm Aaron. I am 25 and live in Glendale AZ. I am new to the Celiac Family. Today was difficult looking in my fridge and pantry and realizing I can't eat almost anything in either. Happy to have a place where I can connect with similar people.

Yo man, i found out i was celiac when i was 25 as well. It's pretty tough at the start, especially having to explain to people who are offering to have you over for dinner that you're allergic to basically everything. If you know how to cook, it starts becoming pretty cool to throw your own dinners and thanksgivings and things. What's really interesting is how much you'll find out that you have to cook ALL THE TIME. It's kind of time consuming, makes you wonder what life used to be like before fast foods!


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  • 5 weeks later...
dwillia75 Newbie

Hi and welcome! I was diagnosed when I was 50 after years and years of seeing specialists, having surgeries, and taking a LOT of medications. I never dreamed that the dreaded colonoscopy and endoscopy would have a benefit like this. I was in total shock (didn't know what gluten was) and had much to learn. Thanks to the Internet and some good books, I adjusted pretty easily. I almost immediately felt like a new and improved person once I quit eating gluten-foods. The health aspect outweighs my cravings for foods that I'll never eat again. Yes, I miss an occasional doughnut or biscuit, but Chebe, Open Original Shared Link and AllergyGrocer.com offer good gluten-free bread/pasta/homemade soup alternatives. I am going to take, after the holidays, a gluten-free cooking class at Viking Cooking School. I realize that I'm eating more fresh fruits and vegetables and not many gluten-free processed foods. They cost too much!

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    • Scott Adams
      If a package of dried chickpeas or lentils says “may contain” or “may have been cross contaminated,” that usually means they were processed in facilities that also handle wheat, barley, or rye. The concern is not gluten dissolved on the surface like dust that can simply be rinsed away, but small fragments of gluten-containing grains that may be mixed in during harvesting, storage, or packaging. Rinsing and sorting can reduce surface flour and remove visible stray grains, and many people do this successfully, but it does not guarantee that all gluten contamination is eliminated. Some limited testing has shown that naturally gluten-free grains and legumes can contain measurable gluten when cross-contact occurs in shared facilities, which is why manufacturers use precautionary labeling. The seriousness depends on the individual: for someone with celiac disease, even small amounts of gluten can trigger intestinal damage, so choosing certified gluten-free legumes is the safest option. Manufacturers are not necessarily being overly cautious; they are often acknowledging real cross-contact risk in complex agricultural supply chains.
    • knitty kitty
      Welcome,  While picking through chickpeas and lentils I have found little pebbles and on occasion, a kernel or two of wheat.  Farm equipment and transport trucks are used to harvest different crops.  It would be really expensive to have separate trucks and packaging lines for each crop.   I have found sorting or picking through the peas or lentils along with a good rinse sufficient to make them safe for me.  Do remember that lentils and such are high in carbohydrates.  Eating a diet high in carbs can lower thiamine B1.  Good sources of Thiamine and other B vitamins are meats.  Extra thiamine is needed for tissue repair to grow the villi back and recovery from malabsorption.  Low thiamine symptoms (gastric Beriberi) are very similar to symptoms of a glutening.  Try adding thiamine hydrochloride or Benfotiamine and see if you still react to chickpeas and lentils the same way. Supplementing with extra thiamine is safe and nontoxic.   Best wishes.
    • trents
      Welcome to the celiac.com community, @Thoughtidjoin! I would think so, yes. But you need to realize that cross contamination studies with lintels have shown the real problem isn't only coming in contact with gluten containing grains in processing but in the actual mixing in of cereal grain seeds in significant quantities with the lentils. I think it was a study done by Gluten Free Watchdog I'm thinking of but they did an actual count of the seeds in a purchased mainline food company bag of lintels and found something like 20% of the content was wheat seeds. So, you'd better do some sorting first.
    • Thoughtidjoin
      Can I wash gluten off dried chickpeas or green lentils when the packet says “may have been cross contaminated?” Has there been any research into this?  If so what are the results? If no research has been done why not? I am getting mixed advice from different sources, how serious is this or are the food manufacturer being over cautious? Many thanks Catherine
    • catnapt
      I've got some lab work results going back to 2010, various MRIs and CT scans and ultrasounds. I discovered two things that MIGHT be of interest to the GI doc tell me what you think? one is the results to an abdominal CT scan with contrast in 2013 that includes this:  "there is some thickening seen in the second and third portions of the duodenum"    Since this CT scan was for left lower quad pain, it was not followed up on   Then in May of 2024 I saw a foot specialist for problems with my feet. Some of that pain is due to a very obvious deformity of both of my legs- the right worse than the left. The dr suggested that my symptoms sounded like an auto immune condition (???) and I thought he was nuts but he ordered some lab work- it came back negative except for a weak positive on one test HLA-B27 and there was a follow up test recommended but that was never ordered and this dr gave me a useless Rx for custom insoles which he refused to address - and my calls to his office were never returned.   At that time I was having all over joint pains, plus some numbness in my feet (also stiffness) and some burning pain in my toes- esp the big toe on the right foot (the more deformed side of my body)   The last time I was eating any appreciable amount of gluten containing foods was in the period of Nov 2024 to around sometime in the summer of 2024. I regularly ate a barley soup that I loved and had subs and pizza and toast etc. I was no longer eating wheat pasta, had already switched to brown rice pasta but otherwise I had not yet made a clear connection between what I was calling 'refined grain products' and any symptoms that I had. And the symptoms were vague and could be attributed to other things.   I was referred to a neurologist in late 2023 for symptoms  of confusion/disorientation, that included loss of balance that I attributed, in part, to the inability to feel where my feet were. Some symptoms such as high spikes in blood pressure (some close to 200 over 100! scary stuff) were later determined to be due to covid or long covid (also had loss of sense of smell and taste)    I had periods of dizziness that did NOT include any spinning sensations, it was more of a feeling of lightheadedness as if my mind would go blank- very strange, never really got any answers about that but that eventually went away so not worried about that   WHAT OTHER THINGS from my past records might be good for the GI dr to know? I had my very first Vit D test done in 2023 and it was low at 23, supplements have gotten that up in the range of adequate but values varied up and down... most recent test was Nov 2025 and it was 45ish I think. That's on a min of 5000Ius per day (there are some fortified foods I eat sometimes that have added vit D)   I thought my serum calcium ran on the low side but it turns out that the reference ranges have changed for the labs that I use- one changed their RR back around er, 2014 I think? so I have no clue how to compare the results before and after those changes   calcium has never been below normal and most of my blood work looks "normal" except during illness or other issues like if I'm in afib- blood work looks insane LOL    I don't know what to make of all this but it sure will be nice to get some answers!         
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