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Diagnosed Last Night

AWebb85

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AWebb85 Newbie
AWebb85
Posted

Hey everyone, I'm Aaron. I am 25 and live in Glendale AZ. I am new to the Celiac Family. Today was difficult looking in my fridge and pantry and realizing I can't eat almost anything in either. Happy to have a place where I can connect with similar people.

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Dixiebell Contributor
Dixiebell
Posted

Welcome to the forum! It is hard to start with but it will be second nature soon. Ask any questions you need. there are some very smart people here.

Emilushka Contributor
Emilushka
Posted

Hi! I'm also a relatively new member of the group. I got my results back on 9/10, and I've been gluten-free ever since. Almost a whole month.

My fiance eats gluten still. My strategy has been to separate our food out in the kitchen so that his food will not get crumbs on my food and I will have my own areas to maintain and stock. This means that I can easily see what I can and cannot eat, or what can and cannot go into something I am cooking. I find this really helpful.

If you're living with others who eat gluten, make sure you're not sharing nonstick pans, nonstick utensils, or wooden utensils. It's wise to invest in a rice cooker, your own toaster oven, and a good cast iron skillet (that will forever be gluten free).

My biggest recommendation: learn to cook WELL. If you can keep making tasty foods you like to eat, it'll feel like you're giving up a lot less. My sad days are when I think of what I can't have. My happy days are when I realize I just made something delicious that incidentally had no gluten - and it makes my body feel great to have the good stuff.

lucia Enthusiast
lucia
Posted

It's true what they say - the diet will fall into place for you after awhile. I went through the exact same process that you describe - going through my cupboards and ending up discouraged. I'd encourage you to take a look at the recipe section on the site and also maybe to search for "ideas for breakfast," "ideas for lunch," etc. It's helpful to draw on other people's experience when planning meals. Honestly, after a few months, I think the hardest thing about the gluten-free diet is eating outside of the house, but that's a whole other hurdle for you. Welcome!

AWebb85 Newbie
AWebb85
Posted
  • Author

Thanks for the kind words and information. I am starting to see just how many gluten free options there really are out there. My fiance is being very considerate and is going to try to only eat gluten free, at least at home. I am feeling a lot better about the whole idea and am excited to finally start feeling better!

  • 2 weeks later...
Foxx Newbie
Foxx
Posted

Thanks for the kind words and information. I am starting to see just how many gluten free options there really are out there. My fiance is being very considerate and is going to try to only eat gluten free, at least at home. I am feeling a lot better about the whole idea and am excited to finally start feeling better!

Welcome and, I am new here as well.

Wal-Mart has a list (on their site) that details all of the Gluten Free products they carry. Watch your mouthwash as well - Equate (by Wal-Mart) are processed on a line shared by gluten-based products; cross contamination is definitely a serous problem. Be sure to call the Mfg and ask for a product specialist.

Good Luck and keep your head up

  • 2 weeks later...
Rocknroll Celiac Newbie
Rocknroll Celiac
Posted

Hey everyone, I'm Aaron. I am 25 and live in Glendale AZ. I am new to the Celiac Family. Today was difficult looking in my fridge and pantry and realizing I can't eat almost anything in either. Happy to have a place where I can connect with similar people.

Yo man, i found out i was celiac when i was 25 as well. It's pretty tough at the start, especially having to explain to people who are offering to have you over for dinner that you're allergic to basically everything. If you know how to cook, it starts becoming pretty cool to throw your own dinners and thanksgivings and things. What's really interesting is how much you'll find out that you have to cook ALL THE TIME. It's kind of time consuming, makes you wonder what life used to be like before fast foods!

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  • 5 weeks later...
dwillia75 Newbie
dwillia75
Posted

Hi and welcome! I was diagnosed when I was 50 after years and years of seeing specialists, having surgeries, and taking a LOT of medications. I never dreamed that the dreaded colonoscopy and endoscopy would have a benefit like this. I was in total shock (didn't know what gluten was) and had much to learn. Thanks to the Internet and some good books, I adjusted pretty easily. I almost immediately felt like a new and improved person once I quit eating gluten-foods. The health aspect outweighs my cravings for foods that I'll never eat again. Yes, I miss an occasional doughnut or biscuit, but Chebe, Open Original Shared Link and AllergyGrocer.com offer good gluten-free bread/pasta/homemade soup alternatives. I am going to take, after the holidays, a gluten-free cooking class at Viking Cooking School. I realize that I'm eating more fresh fruits and vegetables and not many gluten-free processed foods. They cost too much!

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    • Colleen H
      Barilla gluten free pasta

      By Colleen H · Posted

      Has anyone had a reaction to gluten free pasta ?  I made ground beef pasta and gluten free sauce and I'm having every symptom there is.  Nausea ,  constipated,   burning pins and needles, anxiety...etc   lots of pain 😞 headache 😭  Does this sound familiar?   I'm literally bed ridden.  
    • Known1
      Reverse Osmosis (RO) Water

      By Known1 · Posted

      Thank you for your reply.  I read the same thing about distilled water.  Oddly, drinking that has not caused any sort of reaction in my gut.  Nothing I can hear and feel anyway.  🤣  With that said, I have also switched over to spring water for drinking.  My traditional go to grocery store charges the exact same thing ($1.39) for a gallon of pre-bottled spring, distilled, or RO water.  The manual gallon refills of RO water have an attractive price of $0.49 per gallon, provided you use your own container.  Knowing it causes major bubble gut (and likely other issues) for me, I am avoiding all RO water moving forward.  In fact, I will gladly drink tap before RO water. Here is what Google says when searching "European study regarding reverse osmosis water". --Begin quote: European studies indicate that while reverse osmosis (RO) is highly effective at removing contaminants, it strips essential minerals (calcium, magnesium) and creates low-mineral, slightly acidic water.  Research suggests this may have long-term health implications, such as mineral deficiencies, while also negatively affecting the sensory quality (taste) of water. Key Findings from European Research & Reviews: Health Concerns: Epidemiological studies in Europe have associated low-mineral water consumption with increased risks of cardiovascular disease, cognitive decline, and reduced intake of essential nutrients. Mineral Depletion: RO systems can remove up to 95%+ of solutes, including minerals that are vital for health. Sensory and Quality Impact: Studies show that reducing the mineral content (TDS) of water makes it taste bitter or flat, with optimal, "fresh" taste found in water with a TDS between 190 and 350 mg/L, suggesting post-RO remineralization is necessary for better quality. Regulatory & Safety Context: While not banned, European regulations under the Drinking Water Directive emphasize the importance of mineral content, and countries like Germany often favor alternative treatment technologies that retain minerals. Industrial Application: In Europe, RO is widely accepted for industrial applications (e.g., food, beverage, pharma) due to its high purity output, but it poses challenges like membrane biofouling. Environmental Impact: RO is recognized to use more energy and waste more water (up to 15% more) compared to conventional treatment methods, raising environmental concerns in some municipalities.  Recommendations: Due to the loss of minerals, many experts recommend remineralizing RO water before drinking to improve taste and nutritional value.  --End Quote
    • knitty kitty
      Reverse Osmosis (RO) Water

      By knitty kitty · Posted

      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
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    • Known1
      Reverse Osmosis (RO) Water

      By Known1 · Posted

      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
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