Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations On Gluten

michayla

Recommended Posts

michayla Apprentice
michayla
Posted

Hi everyone-

So i was diagnosed via blood test in July as positive for celiac, but biopsy came back negative. went gluten-free anyway, and it worked for a bit - i was/am very strict on it - absolutely no cheating and even a possibility of cc and i won't eat it.

well it worked for a bit but then some of my symptoms came back. i had posted on this previously in a thread and took some of the suggestions on eating more whole foods as i am healing rather than processed, etc.

now, it is more like i have a good couple of days and then a bad couple of days. relatively speaking though, i am getting better. but still have major D in the mornings and enough bouts of not feeling well/having this interfere with my life to go back to another doctor for a second opinion and seek further tests.

well the whole point of this post - the doctor wanted to run more blood tests and due a complete panel - including retesting for celiac. therefore i have been back on a normal, gluten-filled diet for a week. it was hard at first, but they also put me on an antispasmodic which i think is the reason i am feeling better. but i have noticed (and i noticed this before i went gluten-free, too) that i can FEEL my heart pumping. i get random bouts of short breath and can literally feel my heart pounding through my chest. even now, as i sit here, relaxing and typing this, my heart, while not beating fast, is beating really forcefully.

i was curious if anyone else experienced this? is this because i am back on gluten for this week? or is it something more serious?

thanks for any help you may offer!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

This is a symptom I have had for years and years, and unfortunately it has not gone away gluten free. I think some of us just 'feel' our bodies more than others, although I feel mine to the extreme when I have atrial fibrillation and it seems my heart will jump out of my chest and my head throbs so badly I can't keep it on the pillow. I constantly have a really forceful heart beat and can feel the blood pumping through my body.

I have no idea what role the anitspasmodic may be playing in this - have you tried discontinuing it and seeing if it makes a difference? But you have gone back on gluten and we do tend to feel the gluten effects more after being gluten free.

Why do you and your doctor doubt the validity of the blood test even though the endoscopy was negative? If you have been reading this forum you will know that many have positive bloods and negative biopsy (they missed the damaged areas, don't take enough samples, you may not have villous atrophy,). Also, many find that after they go gluten free they learn of additional intolerances that were masked by the gluten, that now manifest themselves. That may be what is happening to you.

The first question would be, have you temporarily given up lactose also, because even though your endoscopy was negative it is still possible to have villous damage and intolerance to lactose. The second suggestion I would give is to eliminate soy because this is often a co-intolerance with gluten. The third suggestion I would give is to eat whole, unprocessed foods that you cook yourself, and don't eat in restaurants for a while, to give yourself a chance to heal. Don't use the gluten free replacement foods, but just stick to stuff that is naturally gluten free; many of us find that our digestive systems are unable to handle the gluten free grains initiallly.

If none of these suggestions help I would explore further. But I do not find anything yet to discount your celiac diagnosis. Mind you, I am just dealing with anecdotal evidence of people who have the disease, but I presume that is why you are here asking for help. Many of us find that our doctors do not know as much about the disease as we would like.

Many of us use probiotics and digestive enzymes to help out our digestive systems in the early stages of healing, and I wonder if you have explored these. The probiotics replace the good bacteria in the gut which tend to get killed off and the digestive enzymes supplement what the pancreas is (sometimes inadequately) putting out as a side-effect of the gluten load.

dilettantesteph Collaborator
dilettantesteph
Posted

My heart palpitations went away gluten free and come back when glutened. They are disconcerting. My doctor told me that it was due to thyroid problems, but I tested negative. That was before my celiac diagnosis.

Skylark Collaborator
Skylark
Posted

Are you sure it's not a medication side effect?

Mari Enthusiast
Mari
Posted

I had what felt like heart palpatations for years but they were really spasms in my upper intestine. This was the first symptom to get better when I went gluten free but I still can feel milder spasms at night sometimes due to some irritation or inflamation from some other food. I have used strong peppermint tea, the spices turmeric and cinnamon, Milk of Magnesia to help this problem.

julandjo Explorer
julandjo
Posted

I've also had this for years. My palpitations are PVCs (premature ventricular contractions), and going on an arginine supplement, as well as eliminating all caffeine, helped a lot. I've also had tons of left-sided chest/what feels like heart pain. I've been cleared by a cardiologist, so that put some of my fear to rest, but it's not getting better for me. I've seen 4 different doctors for this problem and nobody has any idea what is causing it. I have noticed though that the problem is much worse if I'm low on calories. Last month I had a 24-hour impedence study (where you have a tube inserted through your nose and down into your stomach for 24 hours to measure the acid levels in your esophagus), and a test I can't remember the name of - but it's a thicker tube put down your nose into your esophagus, and they pull it out in half-centimeter increments and make you swallow while they measure the pressure. Both tests showed no reason for my problems, and they HURT to have done. I'm so frustrated! Sorry I have no answers for you, but you're not alone.

michayla Apprentice
michayla
Posted
  • Author

i don't think it has to do with the medication, because it is something i noticed before i went on it. i have also been tested for thyroid issues (i guess just the general test, but apparently there are many specific ones that can create different results) which came back normal.

i kind of attributed it to gluten, as i am back on gluten-free now and haven't noticed it much (how one day makes such a difference!) i just wasn't sure if it was a gluten thing or potentially something more serious. or maybe i am just n tune to my body!

thanks for the help guys!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Leah Banicki Newbie
Leah Banicki
Posted

Hi everyone-

So i was diagnosed via blood test in July as positive for celiac, but biopsy came back negative. went gluten-free anyway, and it worked for a bit - i was/am very strict on it - absolutely no cheating and even a possibility of cc and i won't eat it.

well it worked for a bit but then some of my symptoms came back. i had posted on this previously in a thread and took some of the suggestions on eating more whole foods as i am healing rather than processed, etc.

now, it is more like i have a good couple of days and then a bad couple of days. relatively speaking though, i am getting better. but still have major D in the mornings and enough bouts of not feeling well/having this interfere with my life to go back to another doctor for a second opinion and seek further tests.

well the whole point of this post - the doctor wanted to run more blood tests and due a complete panel - including retesting for celiac. therefore i have been back on a normal, gluten-filled diet for a week. it was hard at first, but they also put me on an antispasmodic which i think is the reason i am feeling better. but i have noticed (and i noticed this before i went gluten-free, too) that i can FEEL my heart pumping. i get random bouts of short breath and can literally feel my heart pounding through my chest. even now, as i sit here, relaxing and typing this, my heart, while not beating fast, is beating really forcefully.

i was curious if anyone else experienced this? is this because i am back on gluten for this week? or is it something more serious?

thanks for any help you may offer!

My mom had similar 'heart palpitations' from random things for a few years. Doctors couldn't make heads or tails of it. She thought she would die cause it would pound so hard, but nothing was wrong with her heart. It turned out she had a Hiatel Hernia and her stomach was poking through the hole in her diaphragm. It bumped against a bundle of nerves connected to her heart causing the palpitations when she would eat. She uses a small indoor trampoline every few days to exercise her organs into the right place and gets some physical therapeutic massage to help too. She is seeing improvements. You may want to get your diaphragm checked out. Just for giggles. It was a long shot strange diagnoses.

Hope you feel better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.