Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating At Relative's....


Marz

Recommended Posts

Marz Enthusiast

This is my situation - we're invited at least once every 2 weeks or so to eat at my mom-in-laws or at my mom's house. Or I go visit my mom and she insists on giving us some left-overs for supper. They're trying really hard to not use anything containing gluten and asking lots of questions, and I'm also careful to double check spices and ask questions about anything I'm unsure about.

However... I can't exactly ask them to keep separate utensils, pots, spoons for making gluten-free foods. I'm also sensitive to soy, and I feel really bad telling my chef brother that I'd much rather have those prawns plain without the soy sauce and possibly gluten-containing coconut milk. How do I explain after telling them the problem is with gluten, that soy could be an issue too?

Oh, and don't even start with their cutting boards, or with non-stick pans. Both families are very big on bread, so assume bread crumbs anywhere.

I'm still trying to figure out what's safe for me or not, and I feel every time I eat out I run the risk of introducing some gluten, and then not knowing why I'm feeling ill.

Should I just tell them all no lunch/supper for a few months until I get it figured out? That we'll come to visit but won't eat? I'm worried I'll insult them, after all the trouble they've gone to already? Both families have even gone out and bought gluten-free bread/muffin mixes to bake (using their non-gluten-free pans of course...) I'm trying to toe the line between being careful (which they understand), and just sounding plain crazy/obsessive!

How do you guys handle families? :/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

They sound nice. So assuming they are reasonable- I would just tell them calmly that, because you are new to this gluten-free thing, you are still learning. You didn't know in the beginning all the stuff you are learning now. For a few months, you are not eating at anyones house but yours. You have found it's not as easy as you thought and that there can be other food issues. Invite them to your house. If they insist on bringing something they think is gluten-free, make enough food that no one will notice you don't eat theirs.

You can elaborate if they ask.

bluebonnet Explorer

i agree. it sounds like they are trying to help you in anyway they can but don't fully understand how easy cc can be for you. we get together with our folks every other week specifically for supper and we have them come to our house. i cook, they bring something (since that makes them feel like they are contributing) but i KNOW what exactly is in my food.

i said something along these lines - "i know i sound high maintenance and overboard but after researching how to treat myself i have to be extreme or i will never fully get better and since i know y'all love me and want that for me i hope you will try to be understanding."

best wishes! and remember cc is just as bad as eating a bite or plate of gluten!!! :)

tea-and-crumpets Explorer

Honestly, I bought a couple of pots for my parents' house and as soon as I get a chance I'm getting them some glass containers for my leftovers and some plastic spoons that I'll mark gluten-free somehow. That way I don't feel bad about asking them to use my specific tools.

kareng Grand Master

Honestly, I bought a couple of pots for my parents' house and as soon as I get a chance I'm getting them some glass containers for my leftovers and some plastic spoons that I'll mark gluten-free somehow. That way I don't feel bad about asking them to use my specific tools.

You can get utensils and containers in red if they don't already have that color. I also use Duct tape brand masking tape that comes in colors. I put the red tape on my jely, PB, pan handle, etc. I have red cooking spatulas & spoons. The tape comes in lots of nice colors so, pick your favorite.

You can get paint pens at the hobby store & Walmart. White or silver show up on dark colors.

tea-and-crumpets Explorer

You can get utensils and containers in red if they don't already have that color. I also use Duct tape brand masking tape that comes in colors. I put the red tape on my jely, PB, pan handle, etc. I have red cooking spatulas & spoons. The tape comes in lots of nice colors so, pick your favorite.

You can get paint pens at the hobby store & Walmart. White or silver show up on dark colors.

Thanks for the tips! Can the duct tape go through the dishwasher?

Marz Enthusiast

Thanks for the suggestions! Inviting them over is a great idea, it's just that our place is *tiny* :P But I can squeeze us in at a push.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Since eating there is a regular event, I think I would cope by not having them cook for me at all for a while. If they are willing to give you some freezer space, you could make up several Gluten Free freezer meals at home, and take them there. That way when you are there they can just pull your meal out to reheat for you. It's not the same as having something they prepared, but at least you would be eating something safe. Maybe you could get away with eating a plain salad along with your meal if they have salad without croutons and the veggies haven't been chopped on CC'd cutting boards. But I think you need to explain that you are still getting sick from some unknown source and you want to be super careful until you get it figured out. If they are already trying to help you by buying gluten-free stuff then they should understand.

kareng Grand Master

Thanks for the tips! Can the duct tape go through the dishwasher?

The colored kind is a cross between real duct tape and masking tape. I hand wash my pans and utensils most of the time. So I don't know would be the answer to that. The paint pens can usually go through a couple of times before you have to re- do. But that depends on the surface you write on.

Skylark Collaborator

I think you need to tell them the truth, that you're feeling better but still reacting to something, and trying to sort out whether you're one of the unlucky soy-sensitive celiacs or just reacting to crumbs. I would make sure they know how much it means that they're trying to work with you, but that you can't tell them exactly what your dietary needs are yet as you're still experimenting. It's OK to laugh at yourself for feeling crazy/obsessive, and to tell them that some days you think you're losing your mind. :P

With family it's usually pretty easy to offer to bring a safe dish to share. "Lunch sounds great, Mom. I'll bring some homemade soup to share."

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.