Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Rib Cage Pain Question...

SaraKat

Recommended Posts

SaraKat Contributor
SaraKat
Posted

Mine is 95% of the time on the left side. In the last 12 months I have had a CT scan, chest XRAY, AB ultrasound, and an endoscopy. All they found was celiac, so I am guessing it is the celiac, but it is scary how bad the pain is.

I was beginning to think something with my pancreas, but all other tests were normal, so I am led to think it is a celiac thing.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

Mine is 95% of the time on the left side. In the last 12 months I have had a CT scan, chest XRAY, AB ultrasound, and an endoscopy. All they found was celiac, so I am guessing it is the celiac, but it is scary how bad the pain is.

I was beginning to think something with my pancreas, but all other tests were normal, so I am led to think it is a celiac thing.

Thanks!

I had the same pain and had all the same tests. Negative on anything that could cause pain. Pain went away after I was reliably gluten-free - maybe 2-3 months. Hope your pain goes away soon.

julandjo Explorer
julandjo
Posted

Always on the left side. I've had so many tests and procedures done, thinking it was my heart, and then maybe esophageal spasming, etc... nobody has ever found anything except the celiac and a vit. D deficiency. It's reassuring that it's probably not my heart, but boy does it feel like it is!

HardcoreDior Newbie
HardcoreDior
Posted

Hey,

You're not alone, I have that pain too. I have had similar tests done, all negative, and I am also assuming it is celiac.

I have been gluten free for about 2 months now, and it hasn't gone away yet. However, I did also figure out that I am tapioca intolerant a few weeks ago, so it may be a while longer for me. . .

I hope your pain, and mine, goes away soon! But you're definitely not alone.

HardcoreDior Newbie
HardcoreDior
Posted

Oh, and mine is always on the left side too.

julandjo Explorer
julandjo
Posted

You guys, I can't tell you how reassuring this is to read! Not that I wish these sensations on anyone, but for years now I've been fairly convinced that something is so wrong with me that maybe I'd die suddenly (no joke) and doctors wouldn't figure it out until my autopsy. Thank you so much for sharing what you've shared here!

SaraKat Contributor
SaraKat
Posted
  • Author

Dior- how did you find out about the tapioca thing? I am wondering if I should get additional food testing done.

JulandJo- This is definitely reassuring, I have seriously had the same thoughts!! I said to my husband- how can I be in this much pain and not be dead yet. That is how bad it is!! I even went to an oncologist before the celiac diagnosis, I thought it was cancer.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Almost every other person I talk to with a gluten intolerance gets that pain on the left side in the region of the spleen. Pain on the right side would be possibly related to the gallbladder and possibly a different condition.

julandjo Explorer
julandjo
Posted

JulandJo- This is definitely reassuring, I have seriously had the same thoughts!! I said to my husband- how can I be in this much pain and not be dead yet. That is how bad it is!! I even went to an oncologist before the celiac diagnosis, I thought it was cancer.

Hugs to you! I know, I've vacillated between thinking it's my heart, to maybe lung cancer, to "well, even though it feels like it's inside my chest, maybe it's really breast cancer". After reading these chest pain threads today I called my husband and my mom and told them all about it. This has seriously made my whole month!

kayo Explorer
kayo
Posted

I had that same pain for years and had so many tests, all negative. Turns out it was SIBO (small intestine bacterial overgrowth). I've since been treated (round of antibiotics) and I'm doing well. I have not had that pain since treatment. I can even tolerate cassein now. I'm able to have lactose free yogurt and lactose free yogurt cheese. I also follow the FODMAP diet to keep the SIBO at bay. Knock on wood!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

You guys, I can't tell you how reassuring this is to read! Not that I wish these sensations on anyone, but for years now I've been fairly convinced that something is so wrong with me that maybe I'd die suddenly (no joke) and doctors wouldn't figure it out until my autopsy. Thank you so much for sharing what you've shared here!

OMG I have had these thoughts as well! I went to see a pulmonologist today sure I had lung disease or cancer or something. He spent a long time basically telling me I have GERD and I need to lose weight. I already know I need to lose weight (and I have been working on it) but this doctor had no idea about gluten. I don't think I have GERD either after looking it up. I told him I don't eat gluten, dairy or soy and then when he was giving me advice about what to eat he said I should not eat things like pizza and fried chicken! I said I already CAN'T eat those things (Unless I make them gluten free and thats a special treat). I eat grilled or baked chicken and steamed veggies mostly. Then he said I could have a sandwhich every once in a while if I ate it on whole wheat or multigrain bread instead of white. :o At least I wasn't talking to a GI doctor, but still annoyed me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    2. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    3. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    4. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    5. Scott Adams
      - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748
    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.