Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened 4 Days Ago

coltsjen

By coltsjen
in Coping with Celiac Disease

Recommended Posts

coltsjen Newbie
coltsjen
Posted

I was diagnosed with celiac almost 2 years ago and have been 100% gluten free since. I do well unless I get glutened by accident. 4 days ago I got glutened at a trusted (no longer on my safe list:) and cannot seem to get better. I have had major diarrhea and extreme pain every time I eat since the episode. It is as if I cannot get the gluten out of my system. I am totally exhausted today from the diarrhea and am wondering if anyone else has had this extreme reaction. On a normal day I am extremely sensitive; one crumb containing gluten will cause problems for me. I have had other episodes where I have been glutened but never to this extreme. Any advice?

Thanks

Jen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

There are some things such as Boswellia which are supposed to be helpful for D, without causing C (it apparently has other benefits too). However, I suspect it'll just take time. Perhaps the glutening you received is more severe than the usual contamination. In other words, I wonder if it was something which actually had gluten as an ingredient.

Also, a digestive enzyme supplement may help, I suppose. There are many things which are said to sooth the digestive tract, including slippery elm, silymarin, marshmallow root, peppermint, fennel, and others.

Hope you feel better soon!

Marz Enthusiast
Marz
Posted

Maybe it's just a stomach bug that you've picked up? Especially if it's from a "trusted" source, and your symptoms are much worse/longer than they usually are.

If it is gluten, it can take several days to recover especially if it was a big hit. You can get a lot more sensitive over time.

Hope you feel better soon! :(

Marilyn R Community Regular
Marilyn R
Posted

Soak in a tub with Epsom Salts and Baking Powder, and lemon rind or any herb or essence that you like. Use the hottest water you can stand, and stay in there as long as you can stand it. Detox.

While you're soaking, relax and meditate. Think about the hot salt water pulling the poison out of your body and into the tub. Smell the essence of the herb or citrus that you put in your tub. Think about nothing. Soak. Relax.

Then drain the tub, shower yourself off and head to bed.

And eat chicken soup tomorrow, of course, if you can make it. Chicken soup cures almost anything. That's my free advice.

coltsjen Newbie
coltsjen
Posted
  • Author

Thanks for the suggestions. Am still feeling poorly today, actually broke down and went to the ER last night, which I never do. Didn't get results at ER, their suggestion was lets load you up with fluids and send you home. Awoke at 4 AM still having the D in a major way. Just called off for work today, can't hardly go to work when you cant stay off the potty for more than a few minutes at a time :} Am going to contact my Doc when they open and see if there is anything I can do! I suspect I am just going to have to let it get out of my system. I do not believe this is a "bug" I have no other issues except for the D when I eat anything at all.

Thanks again

Jen

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the suggestions. Am still feeling poorly today, actually broke down and went to the ER last night, which I never do. Didn't get results at ER, their suggestion was lets load you up with fluids and send you home. Awoke at 4 AM still having the D in a major way. Just called off for work today, can't hardly go to work when you cant stay off the potty for more than a few minutes at a time :} Am going to contact my Doc when they open and see if there is anything I can do! I suspect I am just going to have to let it get out of my system. I do not believe this is a "bug" I have no other issues except for the D when I eat anything at all.

Thanks again

Jen

Glad your contacting your doctor. You might want to get stool samples taken to make sure you have not got a case of food poisoning. I had salmonella for almost 3 weeks and my doctor thought it was just my IBS (I was prediagnosis then) acting up. Boy was she apologetic when those lab reports came back.

realmaverick Apprentice
realmaverick
Posted

Could it be possible that you've not been glutened and you've picked up a virus or have food poisoning? The symptoms you have are not exclusive to being glutened. I do worry a little, that celiac sufferers tend to put every bout of "D" or stomach issues down to being glutened.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BoydBT Apprentice
BoydBT
Posted

D war stories...

Thar reminds me of one of the delays in my DX. I had some kind of intestinal parasite confirmed with a stool check.

I took some med for it and the D just got worse and then never went away.

OMG... what is wrong with doctors blindness to celiac disease. I told them that I always have D for years.

I had some Champagne on Sat night, I forgot it is not wine.

Yick did I explode the next day. LOL.

BBT

BoydBT Apprentice
BoydBT
Posted

D war stories...

Thar reminds me of one of the delays in my DX. I had some kind of intestinal parasite confirmed with a stool check.

I took some med for it and the D just got worse and then never went away.

OMG... what is wrong with doctors blindness to celiac disease. I told them that I always have D for years.

I had some organic Champagne on Sat night, It is always advisable, however, to consult with the manufacture to make sure that the wine does not contain glutinous additives or if it was stored in barrels that were not shared with glutinous product. This is rare, but if uncomfortable, it better to be safe than sorry.

Yicks did I explode the next day. LOL. Wonder why now?

I think I better take Beano before some foods. I did have some spicy rice with a ........aaaaaaaaaaaaa...creamy sauce, Dairy relief where were you.

BBT

gfmylife Newbie
gfmylife
Posted

After ending up in ER for accidently getting glutened.

I went on a search to find something to help speed the process. My gasto doctor told me to try probiotics. I read about pineapple and pineapple juice helping. I started taking both. This did help. I have read about a product called Gluten FREEze. I haven't tried it yet but will get some on my next Whole Foods trip.

coltsjen Newbie
coltsjen
Posted
  • Author

Glad your contacting your doctor. You might want to get stool samples taken to make sure you have not got a case of food poisoning. I had salmonella for almost 3 weeks and my doctor thought it was just my IBS (I was prediagnosis then) acting up. Boy was she apologetic when those lab reports came back.

Am awaiting stool sample results and hoping to get some answers soon. At this point I can't eat anything and have spent much of the day in the restroom! Going to bed now and am hoping to be able to get some rest tonight!

Thanks again

MelindaLee Contributor
MelindaLee
Posted

After ending up in ER for accidently getting glutened.

I went on a search to find something to help speed the process. My gasto doctor told me to try probiotics. I read about pineapple and pineapple juice helping. I started taking both. This did help. I have read about a product called Gluten FREEze. I haven't tried it yet but will get some on my next Whole Foods trip.

My son tried the Gluten Freeze and didn't get any benefit. :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748
    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.