Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediatric Selective Igm Immunodeficiency


Roda

Recommended Posts

Roda Rising Star

Found this article interesting and it references celiac quite a bit. Found it researching information for my youngest son.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Found this article interesting and it references celiac quite a bit. Found it researching information for my youngest son.

Open Original Shared Link

that's really interesting.. how come it's not standard practice over here to screen for such things?? oh, because the drug companies would lose money if we were all healthier :angry:

and how come we never hear of this Igm? it wasnt till the past 2 years i even knew what Iga & Igg were... and my docs only tested my Iga which was low. how come they didnt test Igg or Igm?? it probably doesnt matter now that im gluten free and fairly healthy-> but it could have helped decades ago before i had a tonsilectomy .. before i had bronchitis for 6 weeks every year in my teens (while on a food pyramid diet w/ extra wheat germ on my morning cereal because it's "healthy fiber") :angry::angry::angry:

oh, and before i developed hypothyroid (which im assuming will turn out to be hashimotos)

ok, sorry for the rant... thanks for the interesting link

Roda Rising Star

I found the article while looking up IgG, IgA, IgE, and IgM. My youngest went for skin allergy testing last week (his third time and is almost 6) and everything was normal. I had him off his zyrtec for a week prior and he looked like crap when we went. He had congestion, red swollen eyes and the lovely raccoon eyes. Since then his symptoms have progressed, (has been taking xyzal, nasocort, singulair and astepro since last Wed. after testing) to more of the same, post nasal drip and a horrible cough. He was there Mon. for blood work for venom allergy testing and the celiac workup. The NP, upon hearing his symptoms wanted to check his IgG, IgA, IgE, and IgM to see if he had enough to fight whatever he has. I told him that given another week he would have a full blown sinus infection. So I am unsure if they are checking the total of all of those or using them for blood allergy testing which was also mentioned. We go back in two weeks. I did some other reading of case studies of Selective Igm Immunodeficiency and I swear it sounded like I was reading about my own son. It seems alot of people with this have alot of sinus, and upper and lower respiratory manifistations. My poor child has battled recurrent rhinosinusitis, reflux, RAD and MARSA in his tonsils. He started having issues when he was around two months old. The lingering thing has been the rhinosinusitis. It just keeps him down and I don't like having him on so many antibiotics. It seems also linked to autoimmunity and me being celiac really rang a bell with me. I'm going to inquire more about it when I talk to the NP. I think if any part of his celiac tests come back positive I will forgo the endo and go straight gluten free. However, I told the NP that I am seriously consdering putting him casin and gluten free regardless to see how he does. If I do that with him I am going to trial my oldest gluten free at the same time. He has alot of IgE allergies that he does allergy shots for and was diagnosed with asthma. The good thing about his asthma is that he doesn't take any meds for it and only mildly acts up upon extreme exercise. He is so active and loves to exercise that I think it helps control it and by managing his allergies with his injections.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...