Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Bloodwork From Primary Care Dr

Staceyshoe

By Staceyshoe
in Doctors

Recommended Posts

Staceyshoe Apprentice
Staceyshoe
Posted

We did genetic testing in our family and found that my son has DQ2, subtype 2.5 (I think I said that correctly)--so he has the gene for celiac. Since we are all eating gluten now, we are planning to get blood tests for my son, my husband, and myself (since my son must have gotten the gene from either my husband or myself) to see whether any of us have an active disease process. My husband and my son both have some very very mild digestive issues. I was planning to use our primary care drs for the testing. Just a couple of questions:

Is there any reason NOT to get bloodwork through our primary care drs?

What specific tests should I request? (I'm not sure how familiar our drs are with celiac, so thought I might want to mention what tests I want to have run to make sure they do a thorough evaluation.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nicho Bellissima Newbie
Nicho Bellissima
Posted

We did genetic testing in our family and found that my son has DQ2, subtype 2.5 (I think I said that correctly)--so he has the gene for celiac. Since we are all eating gluten now, we are planning to get blood tests for my son, my husband, and myself (since my son must have gotten the gene from either my husband or myself) to see whether any of us have an active disease process. My husband and my son both have some very very mild digestive issues. I was planning to use our primary care drs for the testing. Just a couple of questions:

Is there any reason NOT to get bloodwork through our primary care drs?

What specific tests should I request? (I'm not sure how familiar our drs are with celiac, so thought I might want to mention what tests I want to have run to make sure they do a thorough evaluation.)

There is a great deal of inaccuracy in bloodtests when it comes to Gluten, Milk, Soy, etc. The most accurate (and simple)test to have done is a stool antibody test. The website enterolab.com has a panel for $369, I believe that is the current price. Yes, if your son has the gene either your husband, you or both have the gene. DQ2 is not a true code for celiac sensitivity or gluten intolerance, I am unsure if you may have read the code wrong or posted wrong maybe? You will be amazed at the health issues caused by sensitivity, not just digestive. I have changed to Gluten free and have lost 30 pounds and no longer take migraine meds, I am also no longer diabetic. The antibodies take approximately 5 years to leave your body completely, but the changes can be seen as early as a week of being "clean". Watch out for "gluten free" claims, depending on your sensitivity, even secondary grains cause a reaction in the body. Quinoa, teft, "gluten free" oats, and other things can trigger reactions. Also, be wary of Soy... Lots of reasons for this. Especially for children and men or women with a history of breast cancer in their families.

Dixiebell Contributor
Dixiebell
Posted

These are the tests for celiac you should ask for:

Total Iga Serum

Tissue Transglutamas Iga & Igg

Antigliadin Iga & Igg

Endomysial Antibodies

Also vitamin and mineral levels.

Your primary care Dr. will be able to do the tests.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,995
    • Most Online (within 30 mins)
      7,748
    Itzeliimon
    Newest Member
    Itzeliimon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mettedkny
      Progesterone pills - are they gluten free??

      By Mettedkny · Posted

      Thank you for your response. I'd love to read more about your suggestion, everything I find online speaks to the opposite. Unfortunately I need the HRT due to many other factors (post menopause symptoms and osteoporosis) so stopping the estrogen would be very unfortunate. Vitamin D is pretty good, not great, but now below the norm at 36
    • Sarawiththeceliac
      Untreated celiac

      By Sarawiththeceliac · Posted

      I take a vitamin called 21 century it has everything magnesium potassium b12 and it's just a full supplement for the day ,then I have one that my mom brought which are gummies and then I tried centrum ,I also have range of different irons (iron sulphate,iron glyciatnate and others . My problem is that I live with my aunt and due to the circumstances in my home country ( war ) we live all in a small house and they don't cook food that is rich in food and I am not comfortable in cooking for my self like meat or something like that they get mad ,that I ate everything.so I mostly eat what they eat in the day which is just a big meal and then I make small snacks that i could eat I wanted to buy moringa powder or things that I can mix easily and put them in a water bottle.my family don't take things serious about celiac they just believe I am small because I eat rice which doesn't make you get fat as they believe.they also make fun of me when I say I am gonna eat alone due to your contamination I really struggle with them.also I have vitamin D ( it was the most absorbable vitamin for me ) my blood test went from 21 to 34 after i took 50000um I guess every week and that's it .can you recommend me vitamins I can buy from Amazon or anywhere 
    • Wheatwacked
      Progesterone pills - are they gluten free??

      By Wheatwacked · Posted

      Elevated estrogen or fluctuations in estrogen can contribute to leaky gut and cause elevated anti-gliadin IgG in people with celiac disease who are on a gluten-free diet,  High levels of progesterone have been shown to decrease gut permeability. Talk to your doctor about a vacation from the estrogen, from your decription it looks to be the culpret.  How is your vitamin D?
    • Wheatwacked
      Untreated celiac

      By Wheatwacked · Posted

      The very reason you take supplements is because you absorb poorly due to the villi inflammation.  You need these vitamins to heal and get stronger.  Could you give us a list of what you are taking and quantity? Iron supplements cause a lot of people discomfort.  Better to get iron and folate from food.  Heme iron sources rom animal products like red meat, poultry, and seafood with raise your iron. Some blood tests like magnesium, potassium, the body has a homeostasis level that they must be in the nomal range.  So don't worry about the ones in normal range. As an example from myself.  I started taking 10,000 IU of vitamin D in 2014.  It only took a few weeks until I really felt the benefit.  I was very deficient.  In 2019 my blood level of 25(OH)D was one 47 ng/ml (=117 nmol/L).  Two more years to get to 80ng/ml (=200 nmol/L) the homeostasis level for vitamin D. Whuch ones make your side hurt?  Perhaps there is an alternate.   What vitamins are you concerned about?
    • Treen
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Treen · Posted

      Hello. My younger sister was just diagnosed with Celiac disease. My older sister is type 1 diabetic. I suspect my mother had Celiac. I have suffered with gastrointestinal problems my entire life. I want to get tested, but I’m self employed and I purchase my insurance through the ACA marketplace. Thanks to the Big Beautiful (Terrible) Bill, the enhanced subsidies are set to expire at the end of 2025. The Republican legislature did not renew the enhanced subsidies. I will lose my health insurance at the end of 2025. I’m concerned that if I test positive for Celiac, I will not be able to find insurance coverage due to this pre-existing condition. So, I’m hoping to purchase my own test through WalkInLab (they offer the complete screen for $159). This way I’ll at least know if I have the disease. I won’t tell my doctor since there’s nothing he can do to help me anyway. Then I’ll cut gluten from my diet entirely, which will be easy. I hardly eat at all anymore. I just hope my insurance can’t somehow find out about the results of this screen, if it comes back positive. I’d be paying in full with a credit card.    Do any of you have any thoughts or advice?  Thanks for reading either way. 
×
×
  • Create New...