Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Bloodwork From Primary Care Dr


Staceyshoe

Recommended Posts

Staceyshoe Apprentice

We did genetic testing in our family and found that my son has DQ2, subtype 2.5 (I think I said that correctly)--so he has the gene for celiac. Since we are all eating gluten now, we are planning to get blood tests for my son, my husband, and myself (since my son must have gotten the gene from either my husband or myself) to see whether any of us have an active disease process. My husband and my son both have some very very mild digestive issues. I was planning to use our primary care drs for the testing. Just a couple of questions:

Is there any reason NOT to get bloodwork through our primary care drs?

What specific tests should I request? (I'm not sure how familiar our drs are with celiac, so thought I might want to mention what tests I want to have run to make sure they do a thorough evaluation.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nicho Bellissima Newbie

We did genetic testing in our family and found that my son has DQ2, subtype 2.5 (I think I said that correctly)--so he has the gene for celiac. Since we are all eating gluten now, we are planning to get blood tests for my son, my husband, and myself (since my son must have gotten the gene from either my husband or myself) to see whether any of us have an active disease process. My husband and my son both have some very very mild digestive issues. I was planning to use our primary care drs for the testing. Just a couple of questions:

Is there any reason NOT to get bloodwork through our primary care drs?

What specific tests should I request? (I'm not sure how familiar our drs are with celiac, so thought I might want to mention what tests I want to have run to make sure they do a thorough evaluation.)

There is a great deal of inaccuracy in bloodtests when it comes to Gluten, Milk, Soy, etc. The most accurate (and simple)test to have done is a stool antibody test. The website enterolab.com has a panel for $369, I believe that is the current price. Yes, if your son has the gene either your husband, you or both have the gene. DQ2 is not a true code for celiac sensitivity or gluten intolerance, I am unsure if you may have read the code wrong or posted wrong maybe? You will be amazed at the health issues caused by sensitivity, not just digestive. I have changed to Gluten free and have lost 30 pounds and no longer take migraine meds, I am also no longer diabetic. The antibodies take approximately 5 years to leave your body completely, but the changes can be seen as early as a week of being "clean". Watch out for "gluten free" claims, depending on your sensitivity, even secondary grains cause a reaction in the body. Quinoa, teft, "gluten free" oats, and other things can trigger reactions. Also, be wary of Soy... Lots of reasons for this. Especially for children and men or women with a history of breast cancer in their families.

Dixiebell Contributor

These are the tests for celiac you should ask for:

Total Iga Serum

Tissue Transglutamas Iga & Igg

Antigliadin Iga & Igg

Endomysial Antibodies

Also vitamin and mineral levels.

Your primary care Dr. will be able to do the tests.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748

    ashleyturner3696
    Newest Member
    ashleyturner3696
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.