Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take To Start Feeling Better

Dennis429

By Dennis429
in Coping with Celiac Disease

Recommended Posts

Dennis429 Rookie
Dennis429
Posted

I have been on a gluten free diet for a week and I still have a constant pain in my lower stomach. The diarrhea has stoped through. I still get alot of gas to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

quincy Contributor
quincy
Posted

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

Hi Dennis, welcome to the forum.

I was dx'd in April. I felt worse for the first few months after going gluten free. It's like your system is screwed up and it takes time to peak before the auto immune response starts to settle down. So just hang in. One week is only the beginning unfortunately... but i am doing SO much better but it took until the 5th month mark.

Dennis429 Rookie
Dennis429
Posted
  • Author

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

My Docter did some blood test last Wednesday and called me on Friday. He wanted me to try a gluten free diet for two weeks and gave me information on Celiac Disease. So I'm not 100% sure that it is celiac. I do have alot of the sysptoms though.

mushroom Proficient
mushroom
Posted

My Docter did some blood test last Wednesday and called me on Friday. He wanted me to try a gluten free diet for two weeks and gave me information on Celiac Disease. So I'm not 100% sure that it is celiac. I do have alot of the sysptoms though.

If it is celiac or gluten intolerance, healing will take a while. It is not like just flipping a switch off. It took a while to get where you are and it will take a while to recover.

Dennis429 Rookie
Dennis429
Posted
  • Author

Does any one knwo what the doc may after the two weeks are? Or what I should ask him.

Thank you.

nicole0392 Newbie
nicole0392
Posted

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

if you avoid dairy and soy what do you eat for breakfast? i love cheese and use soy milk for cereal.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Free-CountryGirl Apprentice
Free-CountryGirl
Posted

Well you can always have scrambled eggs, or a fruit salad, or, if your like me and your not picky, I'll make a tuna salad-yes, for breakfast-I just don't really care if I have lunch/dinner food for breakfast. Maybe even google some breakfast ideas :) Personally, i love having a mix of fresh fruit for breakfast

Dixiebell Contributor
Dixiebell
Posted

Dairy and soy are common offenders, that is why they are suggested to be removed.

Almond milk, coconut milk, rice milk and hemp milk. There might be more.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Don't hate me: It was a full 6 months before i had one completely symptom free day. But... I did see improvements. A few things improved right away like my anxiety attacks. But other stuff took awhile. i went through many weird phases too. Like there were a couple of weeks where I could not eat anything without feeling sick. Then it passed.

Give it time and read about withdrawals on this board so you know it's "normal."

Dennis429 Rookie
Dennis429
Posted
  • Author

I pretty sure dairy products cause a problem now I had a bowl of rice check's with milk and it caused gas and DH I also had broccoli and cheese yesterday and it caused the same problem so I'm pretty sure I will have to lay off dairy for a while.

sunshinen Apprentice
sunshinen
Posted

I could tell a difference within three days (but that's not always the case, as many have noted), but it was almost a year before I felt the full benefits of the diet.

There were so many benefits that I didn't know enough to hope for. I just thought I was getting older (even though I was plenty young).

It was just a slow gradual improvement, until one day I realized "Hey, I don't get canker sores anymore" or "Wow, I feel good in the mornings" or "My joints aren't hurting like they used to" -- and one day it was "I feel better than I've felt in 10 years."

sandsurfgirl Collaborator
sandsurfgirl
Posted

It was a full 6 months before I had ONE completely symptom free day. I did get small increments of healing and relief over time. I'm 11 months gluten free and a completely new person!

Celiac is an autoimmune disease which means your intestines look like a war zone in Iraq right now. It takes time to heal all that damage and destruction. You will go through phases and your body is working overtime to heal that mess.

Give it what it needs to succeed. Eat a clean healthy diet and get every speck of gluten out of your diet and out of your soaps and things. Soap and lotion get into your mouth somehow some way. You will get better but it takes time. Be patient and it WILL pay off! I promise.

Marz Enthusiast
Marz
Posted

The panic attacks/anxiety/depression stopped almost immediately :) It took a few months for the d and nausea to go away, because I kept accidentally getting gluten from seemingly "gluten-free" items, or at restaurants from ignorance/miscommunication. But even then, it was a lot better, usually something like 3 days feeling great, then "oops I got glutened again :(" and feeling sick for a few days until I recovered.

It took a while for some other random food intolerances to go away.

I still get very sick when I eat soy, but dairy is not a problem for me.

If you're keen, you can do a mini elimination diet - take out dairy and soy for a week, and then re-introduce only one of those for a week, and see if it makes a difference. If you're sensitive to soy, it should be *very* obvious ;)

Skylark Collaborator
Skylark
Posted

I'm the exact opposite as Marz. My nausea and D pretty much went away in a week but all the mental symptoms took more like a year. I had no idea the gluten was even causing them until I realized I was getting anxiety attacks when I got glutened.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,956
    • Most Online (within 30 mins)
      7,748
    Crismedin
    Newest Member
    Crismedin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.