Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach/intestinal Pain....where Is Yours ?

NorthernElf

By NorthernElf
in Coping with Celiac Disease

Recommended Posts

NorthernElf Enthusiast
NorthernElf
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


greeneyes33 Newbie
greeneyes33
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

My pain has always been in the upper ab area. Sometimes over to the right side. I never had low intestional pain. I haven't been glutened in awhile, a good year I think....knock on wood!!!! I cant say whether there is a differece between straight glutening or cross contamination. I would think it would be the same. You are still getting glutened with cross contamination. Hope you feel better soon!

GFinDC Veteran
GFinDC
Posted

I get pain in my left side below the rib cage. That's the sharpest area, plus an all over generalized pain to round things out. I seldom have pain on the right side.

plumbago Experienced
plumbago
Posted

My pain is in the lower left, below the rib cage and just above the hip bone. When it's bad, and it hasn't been in a while, it is so severe that the only way to make the cramp go away is to grab that hunk of flesh. I don't know what that's doing when I do that, maybe some nerve, I don't know, but the pain goes away and then usually I can let go. It's awful, and it usually happens right before a BM (sorry).

I have a diagnosis since May, so I haven't noticed a difference yet between straight out consumption of gluten and CC.

(This to me represents a still unresolved issue of science and/or this forum: is there a difference in the quality and amount of gluten ingested. Some say yes, others say no that gluten is gluten no matter the source or the amount.)

shelly184 Newbie
shelly184
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

Hey Northern Elf,

That is exactly where I was getting pain, in my upper right side almost up under my bottom rib. Had the pain for about 9 years. Had colonoscopies, cat scan, nothing was found. I did not even know what Celiac disease was.

I finally changed doctors and was lucky enough to get a GI doc that actually did a biopsy during an endo for celiac disease and it came back positive. The doc asked me who else in my family has celiac disease and I was totally puzzled. Then I started reading and researching celiac disease and realized that my mother must have had it. She was told ulcerative colitis in the 1960s and she was always complaining about heartburn. Well she ended up dying from pancreatic cancer and 9 months later her first cousin died from the same thing. I truly believe it was undiagnosed celiac disease that killed them.

The pain in my side went away in 5 days and if I get accidentally glutened that knife stabs me in the side again.

Seashell01

MelindaLee Contributor
MelindaLee
Posted

I had the same pain, though more often in the upper right. They did a HIDA scan and during the process, it reproduced my pain. My GI decided I needed my gallbladder out, despite the fact that they said both the ultrasound and the HIDA scan was considered normal, becuase it reproduced this pain. It was during the endoscopy to rule out anything else (Cancer, etc.) before the gallbladder removal, that they found the celiac. I still had the gallbladder out, and feel much better (but also went on the diet at the same time)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Insomnia help

      I do believe that people are under so much pressure up have a sleeping pattern , with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same at night many times so I hope I live into my nineties also , I have found one thing...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      My journey is it gluten or fiber?

      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference. Thiamine HCl uses special thiamine transporters to get inside cells. I take it myself. Tryptophan will help heal the intestines. Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner. I take mine with magnesium before bedtime...
    3. Known1
      - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago. As a 51 year old male, I now take a couple of different gluten free vitamins. I have not noticed any reaction to either of these items. Both were purchased from Amazon. 1. Nature Made Multivitamin For Him with No Iron 2. Gade Nutrition Organic Quercetin...
    4. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir.
    5. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,362
    • Most Online (within 30 mins)
      7,748
    Jac3
    Newest Member
    Jac3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • nanny marley
      Insomnia help

      By nanny marley · Posted

      I do believe that people are under so much pressure up have a sleeping  pattern ,  with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same  at night many times so I hope I live into my nineties also , I have found one thing in life your body knows what's best so good to listen to wat it needs however unconventional that maybe 🤗
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Known1 · Posted

      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.