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Accurate Food Allergy Tests?


laura4669

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laura4669 Apprentice

Hi everyone,

I was recently diagnosed with celiac disease, as well as other food allergies. I am new to this board, and I am thrilled with all of the information and support out there! I suspect that both of my children have issues with food allergies, and one specifically with gluten, and I am not sure which tests to request for them.

What is the most accurate gluten sensitivity test? blood/stool? (I was diagnosed originally with a stool analysis)

What is the most accurate food allergy test? One ped said blood tests were not accurate, and suggested a skin prick test, but another ped said the skin prick test was not accurate. I don't want to put my kids through unnecessary tests.

Thank you so much!

Laura


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Skylark Collaborator

None of the food allergy tests are that accurate. You have to use the tests to guide an elimination diet. Blood is somewhat better than skin prick.

As far as gluten, it's best for them to get a celiac blood test to start. If your child is not celiac, you can look to stool or simply try eliminating gluten. Eliminating gluten from the diet and seeing a good response is actually considerably more accurate than the stool testing.

laura4669 Apprentice

Thanks Skylark! I will try eliminating gluten to start and see what happens.

Skylark Collaborator

Thanks Skylark! I will try eliminating gluten to start and see what happens.

Do remember that celiac tests don't work gluten free. You'll probably want to get the celiac panel run on the child you suspect has gluten issues just to be sure it's not celiac.

Good luck and I hope you figure out the allergies/intolerances!

mushroom Proficient

I have to agree with Skylark. I don't believe food allergy testing results are worth the paper they're printed on. :unsure:

Once you have eliminated gluten as the source of problems, then you should look to the other top eight allergens, which for those with gluten problems probably lead off with dairy, soy and corn. And the best way to do this is with elimination and a food and symptom diary. Much more reliable than any medical testing.

Lisa79 Enthusiast

I wish it was as simple as a test, I am still battling to find what foods bother myself and my daughter. I have celiac disease and also intolerant to quite a few things. I also found they have improved slightly over time I think when you first begin the gluten-free diet you are so sensitive to anything and it takes a long time for the gut to heal.

If you are having your child tested for celiac disease, make sure your child is eating lots of gluten when testing.

You can also have the FM testing which is Hydrogen Breath Testing if you suspect Fructose is a problem.

Lactose is blood testing.

Apart from those, I think its trial and elimination.

Good luck!

laura4669 Apprentice

Thank you for all of your responses! I will try the elimination diet, but it is tough to do with 4-year olds! I thought I could do a blood test, and find out quickly what the problems were, so as not to needlessly remove common food from their diet, but it really seems like the elimination diet is the way to go.


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Skylark Collaborator

Thank you for all of your responses! I will try the elimination diet, but it is tough to do with 4-year olds! I thought I could do a blood test, and find out quickly what the problems were, so as not to needlessly remove common food from their diet, but it really seems like the elimination diet is the way to go.

If your insurance covers it, you can guide the elimination test with allergy tests. Either skin or blood will pick up possible food allergies depending on what your doctor prefers. What you don't want to do is assume things that are positive in the allergy tests are actually a problem. Not all foods that show up in blood and skin tests are actually a problem.

This is an LA Times article that talks about the issue. Open Original Shared Link

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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