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Anyone Else Have This Happen?


aljf

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aljf Apprentice

before i was diagnosed, i used to have diarrhea sometimes. now that i have been diagnosed, i feel like i get it MORE, and not just in reaction to gluten. i get it randomly, and like RIGHT after eating, and i can see pieces of whatever i've just eaten in it.

i know this is so so so gross, but this is the only place i can ask about it.

is this because my system has been "cleaned out" so much? or is it that my celiac disease was worsening as time went on and my body would react like this whether i had stopped eating gluten or not? and if this is happening whether i eat gluten or not, and literally RIGHT after eating, what else could be going on??


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Canadian Karen Community Regular

Don't worry, I can SO RELATE TO YOU!!!

I avoid as much as possible salads, fruits with skin, tomatoes, corn, mushrooms. All go through my system basically undigested.

The next time you see your doctor, ask him maybe to investigate the possibility of you having collagenous colitis. After a decade of permanent watery diarrhea, the top celiac guy in Canada finally figured out (by colonoscopy) that I also had collagenous colitis. Google it up, it might sound very familiar to you......

Good Luck!

Karen

pixiegirl Enthusiast

Add me to this list.... I love salads... bummer. I have been able to achieve some control over the D by using Metamucil or Citracil 2-3 times a day.

Susan

aljf Apprentice

i eat salads all the time, so i don't think it's due to them... last night (when i had another "episode") i also had a LOT of fat free whipped cream, which is basically skim milk and sugar. could a lactose issue cause this violent reaction?

mommida Enthusiast

Yes lactose intolerance could give you the"D".

L

jenvan Collaborator

I don't get extreme D all the time, but my food always comes out with undigested parts. Like "oh, there's what I ate for lunch." !

SueC Explorer

Does anyone still have floaters after being gluten-free for awhile?? I always thought this was normal..... and after 11 weeks gluten-free they still don't sink! :blink:

Sue


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Bonnie Explorer

Sue, so glad you asked that! I have been wondering the same thing. Also been gluten-free 11 weeks. Still chronically constipated and when I do go (with help) - still floaters! Does this ever change?

BamBam Community Regular

Lactose intolerance can definitely be your problem. What happened in my diagnosis was they thought I was lactose intolerant in the beginning cause I had the D all the time - several times a day. So I gave up dairy. It quieted down some but never truly went away. I finally gave up wheat/gluten and my system has quieted down a lot, still have a few problems, but I think everyone gets the D once in awhile. Now that I have given up wheat for good, my lactose intolerance problem may heal, because my intestines are healing and I should be able to digest dairy again at some point. I accidently ate butter a month or two ago, I had some grumblings and gas, but I never had to run to the bathroom like I did in the past.

I would give up all dairy for two weeks and see what happens, also look for dairy ingredients in the foods that you eat, cause it is in a lot of things. I can eat Yoplait and Dannon yogurt with no problem at all.

bambam

cgilsing Enthusiast

If I have a dietary acceident I'm usually C for several days, but then all of a sudden I'll have D.....It's a welcomed change by that point and usually I sign that I'm getting over it...

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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