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Tolerating Child's Cranky/whiny/irritable Behavior?


divamomma

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divamomma Enthusiast

We are still waiting for a scope and biopsy. Longest 2 weeks ever and I am sure we have more to wait. My 4 year old is constatly whiny, irritable, ugging her sister etc. I am sure most of it is due to not feeling well. Any advice on how to tolerate this? I know I should have more patience but this behavior is awful. It is also hard to tell my older daughter to ignore her sisters behavior or excuse it. I am also stressed and worried about my daughter and perhaps loosing my cool faster than I should. Any advice?? I so badly wish we could move forward with a gluten free diet.


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kareng Grand Master

That's tough! I recommend a time out, for Mom.

Can you and Dad take turns with cranky one? Maybe there is a grandma or friend that could give you a break?

I would try to keep the kids apart with separate activities and areas of the house if possible.

Hang in there!

srall Contributor

I have this issue. My daughter is actually now gluten free, dairy free and corn free. Corn especially just makes her CRAZY. I always feel bad when my husband harshly disciplines her during these crazy episodes because I personally know how food can make you feel insane. Not just pain management but really really out of your mind. So I try and make sure she keeps calm and holds it together when we have "accidents" because when she is eating properly her behavior really is lovely. I hope your daughter is able to go on her diet quickly and you see some positive changes.

dilettantesteph Collaborator

We had that problem with my son. My husband wanted to punish him severely, but nothing much worked until we got him off gluten. I really didn't think that he could help it. Now it only happens when he gets gluten by accident. It drives me crazy then, but at least I know that it will go away soon. Hang on to that thought.

Lunabell Apprentice

Hang in there! I agree with trying to find someone who can spell you, so you can get a break.

I ended up caving in on the whole endo thing. My daughter is having hers on December 29th. However, I did tell the GI that I was not going to keep feeding her gluten between now and then after her last painful episode. She felt that she would still find the damage in two weeks, so she agreed.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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