Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Mild Case?


domesticactivist

Recommended Posts

domesticactivist Collaborator

I'm wondering if anyone has confirmed Dermititis herpitiformis which is not symmetrical or widespread. My daughter is about to undergo some testing for celiac, and one of the things that could point to it is that she has always had little itchy spots. Sometimes they look like bug bites, but they are more like a blister. They are isolated, (just one blister in a spot), she scratches them, and they are usually on her ankles, face (hairline or chin), or upper chest.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

My hub only ever had the one outbreak, about an inch-long line of vertical blisters starting just below the hairline on one side of his forehead. It was enough to put the fear of God in him about cheating on the diet, so was a good thing. :D

eatmeat4good Enthusiast

My first sores were very much one tiny very painful spot. Mosquito bite looking. Took forever to heal. That one would heal and another would appear. Later got one large spot on leg...same pain...same took forever to heal. That one took one year. Later outbreak on face. Several small painful spots that grew larger as the glutening went on and before the diagnosis. My son had "mosquito bites" on his legs that were itchy and painful and didn't heal. Here, then there. It all went away when the gluten did. No antibiotic or antifungal did anything for them but sometimes they would disappear altogether, only to reappear later. This was our experience.

rosetapper23 Explorer

I can only address symmetry. I think very few studies (if any) have been done on DH, so this assumption that it has to be symmetrical is not accurate. For my adult son and me, we both break out on our faces (jaw, chin, and down the sides of the neck). However, I also break out on the sole of my RIGHT foot and on my LEFT hand. My son, on the other hand, breaks out on the sole of his LEFT food and on his RIGHT hand, just the opposite of my outbreaks. Very strange "symmetry," for sure.

Skylark Collaborator

I'm wondering if anyone has confirmed Dermititis herpitiformis which is not symmetrical or widespread. My daughter is about to undergo some testing for celiac, and one of the things that could point to it is that she has always had little itchy spots. Sometimes they look like bug bites, but they are more like a blister. They are isolated, (just one blister in a spot), she scratches them, and they are usually on her ankles, face (hairline or chin), or upper chest.

I have one area along my right index finger used to get intensely itchy and would sometimes have a blister or two. It baffled a doctor because there is no reason for me to have herpes whitlow and neither of us thought of DH. I'm pretty sure it's DH because it hasn't blistered in a few years now and when I got stuck eating CC'd food over a weekend trip it started itching intensely.

TexasLady54 Newbie

I have one area along my right index finger used to get intensely itchy and would sometimes have a blister or two. It baffled a doctor because there is no reason for me to have herpes whitlow and neither of us thought of DH. I'm pretty sure it's DH because it hasn't blistered in a few years now and when I got stuck eating CC'd food over a weekend trip it started itching intensely.

I have had Dermatitis Herpetiformis off and on again for about 10 years or longer. It does get blistery and insanely itchy. I have never had the perfectly symetrical pattern but maybe one elbow, one finger, one knee and then other times it would be both elbows, both knees. It's just a crazy disease. It waxes and wanes though and sometimes I can go for a period of weeks or months without a breakout. I have scratched until I bled. Now when the itchy patches come, I use an Rx from my Dermatologist, Pramazone lotion (which actually dries up the blisters) given a few days time.

Muffy Rookie

I also get the singular bumps, like a weird bug bite. I called them volcanoes for the longest time because they would erupt as I scratched and scracthed and would take forever to heal, my scratching didn't help. wink.gif

I get them on my hands, wrists, forearms, upper cest, neck, face, and knees. There is never any kind of symmetrical pattern. I have an itchy spot on one foot that comes and goes and drives me crazy, it is red sometimes. I never thought it was related but by reading the other replies I see that the mystery is finally solved. For a while I even thought maybe a I had a single paralyzed scabbie living there or something... blink.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shopgirl Contributor

That explains the weird, itchy spots I would get on one of my fingers that would come and go. I always assumed it was a tiny patch of eczema.

  • 2 weeks later...
Cypressmyst Explorer

I also get the singular bumps, like a weird bug bite. I called them volcanoes for the longest time because they would erupt as I scratched and scracthed and would take forever to heal, my scratching didn't help. wink.gif

I get them on my hands, wrists, forearms, upper cest, neck, face, and knees. There is never any kind of symmetrical pattern. I have an itchy spot on one foot that comes and goes and drives me crazy, it is red sometimes. I never thought it was related but by reading the other replies I see that the mystery is finally solved. For a while I even thought maybe a I had a single paralyzed scabbie living there or something... blink.gif

I just have to say that I love the image of a single paralyzed scabbie. :lol:

My DH is sometimes on my chest, sometimes on my back, stomach, arms, jawline, face, and is sometimes like a little zit, sometimes just red, sometimes itchy, sometimes not. No pattern, then again why should there be one? :P

It is how I know I am glutened as it always always shows up in addition to the brain fog, migraines, cecum pain etc..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.