Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Burn And Glutened

kim307

By kim307
in Coping with Celiac Disease

Recommended Posts

kim307 Newbie
kim307
Posted

Hi,

I was diagnosed with Celiac four months ago. I have been really careful ever since my diagnosis. Prior to my diagnosis I had terrible "stomach burn" for months and months and horrible "d" of course. I went to the doc for heartburn, but he tested me for everything. After the blood tests and endoscopy, it was determined it was celiac.

My doctor told me the "stomach burn" was not from celiac, but I find this hard to believe. When I stopped eating gluten, the burn went away. However, now, for the first time in MONTHS...my stomach is on fire and I can't eat without having "d". Sometimes a burb helps relieve the burn a little. I also feel fatigued and totally out of it. Could this be "glutened"?

How can I make it stop!?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lynnelise Apprentice
lynnelise
Posted

I have gastritis and it makes my stomach burn. It has mostly gone away since I stopped eating gluten but will come back if I get CC.

GFinDC Veteran
GFinDC
Posted

You can try some peppermint tea or peppermint Altoids to relieve gas in the stomach. It helps you belch.

You can also try some Pepto Bismol to coat your intestine and possibly relieve some of the irritation if it is gluten.

You may also have a stomach ulcer. IF it doesn't clear up in a week after getting your diet right you could ask your doc to check for an ulcer.

If it is cross-contamination it should clear up by itself once you find and eliminate the cause.

kim307 Newbie
kim307
Posted
  • Author

Thanks! Is a headache normal too? Ironically, I have my first appointment at the Celiac Disease Center at Columbia University on Thursday. The doctor that diagnosed me never really told me my biopsy results. He told me I had a hiatal (sp) hernia and Celiac. He cannot however explain anything to me. I can't wait to find someone who will really help me.

Skylark Collaborator
Skylark
Posted

Yeah, I think you got glutened. :( Pepto Bismol helps me too. Did you start eating anything new or eating out somewhere different?

If you don't get a decent explanation from your doctor, feel free to ask questions here. A lot of us know a fair amount about celiac disease and other GI issues, having experienced them first-hand!

WheatChef Apprentice
WheatChef
Posted

Excessive carbohydrate consumption can also easily cause heartburn, no gluten required.

kim307 Newbie
kim307
Posted
  • Author

Thanks everyone! The pepto did help to ease the burn a little. I can't wait to have a real doctor help me tomorrow. The doctor who diagnosed me was awful:( I will let you know what she says.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bridgetm Enthusiast
bridgetm
Posted

Excessive carbohydrate consumption can also easily cause heartburn, no gluten required.

That explains it! In the last 2-3 weeks, I've increased my carb and protein intake in an effort to gain back a few pounds (lost 25 initially with the diet change and then another rather unhealthy 20 followed) and to aid my post-op recovery (I had a knee arthroscopy last week. Walking with an immobilizer is a great full-body workout, FYI). My acid reflux had finally improved, but has worsened again in the last few weeks and has not relented even with Prilosec. I assumed it was just holiday stress, unavoidable minor CC at home and the after-effects of the surgery, but it hit me with a vengeance tonight (a couple swigs of Pepto have yet to kick in) and I was starting to wonder if I had missed something.

Since Sunday afternoon I have eaten one whole loaf of Ener-G's white rice bread and a whole package of rice cakes.

Obviously, it's about time I re-evaluate this plan.

MelindaLee Contributor
MelindaLee
Posted

I had more heartburn once I went gluten-free, as I was eating more of the processed gluten-free foods. It did go away after a bit. I still get it back if I have gluten.

WheatChef Apprentice
WheatChef
Posted

That explains it! In the last 2-3 weeks, I've increased my carb and protein intake in an effort to gain back a few pounds (lost 25 initially with the diet change and then another rather unhealthy 20 followed) and to aid my post-op recovery (I had a knee arthroscopy last week. Walking with an immobilizer is a great full-body workout, FYI). My acid reflux had finally improved, but has worsened again in the last few weeks and has not relented even with Prilosec. I assumed it was just holiday stress, unavoidable minor CC at home and the after-effects of the surgery, but it hit me with a vengeance tonight (a couple swigs of Pepto have yet to kick in) and I was starting to wonder if I had missed something.

Since Sunday afternoon I have eaten one whole loaf of Ener-G's white rice bread and a whole package of rice cakes.

Obviously, it's about time I re-evaluate this plan.

Carbohydrates do quite a few bad things to your digestion including screwing with your stomach acid production which causes some big problems when you're eating anything that requires lots of stomach acids like say... anything besides carbohydrates. You could always try drinking some high quality heavy cream if you're looking at upping your calorie count some (assuming you tolerate dairy). I like to flavor it with some crushed herbs like stevia or tarragon or sometimes mix in a little fenugreek.

bridgetm Enthusiast
bridgetm
Posted

Carbohydrates do quite a few bad things to your digestion including screwing with your stomach acid production which causes some big problems when you're eating anything that requires lots of stomach acids like say... anything besides carbohydrates. You could always try drinking some high quality heavy cream if you're looking at upping your calorie count some (assuming you tolerate dairy). I like to flavor it with some crushed herbs like stevia or tarragon or sometimes mix in a little fenugreek.

I've been avoiding dairy, but I can now tolerate small amounts. My mom made fruit dip (Philly cream cheese and marshmallow) for a work event and it's an old favorite so I tried some. It didn't give me much of a problem. I even ate it two days in a row. I kept it minimal though-- I didn't eat it by the spoonful like I would have a few years ago-- so I am not sure how well I would handle something like heavy cream.

Thank you for the carb/stomach acid info though. Eating to gain weight is a new concept for me. I was always low-carb except for heavy workout/rehab days hoping to lose weight so I took the easy route and reversed that concept, never looked into its effect on my stomach.

Skylark Collaborator
Skylark
Posted

I had a lot of trouble with a box of Ener-G crackers. There may be something in Ener-G that is hard on sensitive stomachs.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had a lot of trouble with a box of Ener-G crackers. There may be something in Ener-G that is hard on sensitive stomachs.

I did also. I thought they were CC'd or something, which they are not. Turned out to be the soy in them as I was eating them before I realized I had an issue with soy. I go with the Glutino crackers now.

I don't think the bread has soy though I could be wrong. I thought it close to eating styrofoam so was very happy to find Kinnickinnick and Grainless Baker.

bridgetm Enthusiast
bridgetm
Posted

I did also. I thought they were CC'd or something, which they are not. Turned out to be the soy in them as I was eating them before I realized I had an issue with soy. I go with the Glutino crackers now.

I don't think the bread has soy though I could be wrong. I thought it close to eating styrofoam so was very happy to find Kinnickinnick and Grainless Baker.

It is soy free, but I agree; It's like a sponge. It's the best I can find in Mankato when I'm at school. At home I stock up on Udi's but I don't have enough room in my dorm fridge to keep more than one loaf so it's usually gone pretty fast. And then I'm left with an Ener-G sponge sandwich.

Actually I do think it is harder on my stomach than Udi's, but that's been one of those compromises I've been forced to make out of convenience.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.