Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety And Vulnerable Feeling When Glutened


rustycat

Recommended Posts

rustycat Rookie

I had an incident with accidental cross-contamination this week. When I realized what had happened, I watched carefully to see what was going on with my emotions because I had always suspected that there has been a major change in my emotions since going gluten free.

From 5PM when the incident happened, I tracked the following:

-felt fine until bedtime at 10PM

-woke up feeling a little vulnerable and sensitive

-by about noon, I was convinced that everyone I work with thought I was a hopeless incompetent and an awful person. This made me withdraw and feel very defensive.

-by late afternoon, the full anxiety hit full force and didn't go away until about 9PM. The anxiety is debilitating and makes it hard to make logical decisions.

-the next day I felt fine

Wow, I can't believe I spent most of my life feeling that way. I had no idea how abnormal it was to feel so much anxiety. I get excellent ratings at work, so my thoughts were far from the truth.

Has anyone else experienced that similar changes in their emotions with/without gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Yep. I used to be bipolar from the effects of gluten on my mind.

Nowadays if I get into gluten I wake up at 3 in the morning frightened of a noise in the house or I can't stop worrying about something stupid.

Muffy Rookie

I have also been CC'd this week and noticed the big change in my mood. I get anxiety with hopeless dark moods as well. And I also get really paraniod and have serious brian fog. It gets increasingly severe if I get CC'd frequently and don't have a lot of time to get it out of my system in between - a cumulative effect. dry.gif

eatmeat4good Enthusiast

That has been my biggest relief on going gluten free: Finding out that the internal angst, underlying sense of despair, and a grief-stricken sense of loss for no reason have all gone away. Anxiety no longer happens unless I get glutened.

rustycat Rookie

Yep. I used to be bipolar from the effects of gluten on my mind.

Nowadays if I get into gluten I wake up at 3 in the morning frightened of a noise in the house or I can't stop worrying about something stupid.

That's something else that I used to have, now that I think of it.

I have also been CC'd this week and noticed the big change in my mood. I get anxiety with hopeless dark moods as well. And I also get really paraniod and have serious brian fog. It gets increasingly severe if I get CC'd frequently and don't have a lot of time to get it out of my system in between - a cumulative effect. dry.gif

Paranoid feelings have been with me from the gluten, as well. I was scared to share that with anyone because I don't think I ever wanted anyone else to know how bad it was and the paranoia, of course, made that all worse. Cutting back on gluten made it less severe, but it didn't go away until the gluten was banished.

That has been my biggest relief on going gluten free: Finding out that the internal angst, underlying sense of despair, and a grief-stricken sense of loss for no reason have all gone away. Anxiety no longer happens unless I get glutened.

I thought those types of feelings were a part of my being. It's all that I had ever known. Now, I just need to learn coping skills for when cc happens again.

Now I find out that I'm actually a pretty happy, upbeat person. Who knew? :)

revenant Enthusiast

feeling vulnerable... woah! I have a fear of vulnerability, I can look back on my childhood and feel a horror filled vulnerable feeling for no reason, and have always wondered where it came from.. But, looking back, I always felt that way too!! Thankyou for sharing :) Good that it only lasted a day

  • 1 month later...
OasisFlyer Newbie

Yep. I used to be bipolar from the effects of gluten on my mind.

Nowadays if I get into gluten I wake up at 3 in the morning frightened of a noise in the house or I can't stop worrying about something stupid.

How interesting! I'm new here (untested and undiagnosed, hoping to change that at the doc tomorrow), but have been diagnosed with bipolar in the past (currently untreated) and wonder if going gluten free could help with my mental troubles as well. This forum is amazing!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Ever since I was a kid I had had a knot in the pit of my stomach. Social anxiety disorder, clinical depression, no matter what kind of anti depressants I was on that knot never went away. After kicking out the gluten, soy and dairy everything went away even the knot that I thought was natural. 6 months after kicking everything out of my system I tried to do a gluten challenge. Oh lord, everything came back with a vengeance even the knot, except mine lasted a whole week. I never want to experience that again.

  • 2 weeks later...
aliasyncope Newbie

Oh my Goodness!!! There are people out there like me!!! I just started switching from gluten filled food to gluten free food. I noticed almost right away that I can control my emotions and not get confused, angry, cry, and every other unwanted emotion in the world. I am so amazed at what not eating Gluten filled foods have changed my life!!! I have two other people who witnessed this change as well. I used to get upset if I couldn't find a hair tie at times and other times panic because of someone not wanting to speak to me or something so irrational it wasn't even funny. The days or following day after eating gluten filled foods, make me more able to cry if someone says something that is hurt full. It is amazing how "normal" I act after trying to avoid gluten. Milk doesn't seem to have any effect on me as of yet when I do have it. If I eat a little gluten I can at times still control my emotions but I have to be so careful now with it. I think my Mother is gluten intolerant too. Not eating gluten has changed the darkness into light so far. I am about two weeks into this food restriction and feeling great!!! I was looking on a nutritionist Guru Gary Null's website www.garynull.com. It said that those with bipolar most likely need to reduce gluten and dairy if not totally cut it out of their systems. I have yet to try anything else yet. But this has helped me so far and I am slowly working up to adding the vitamins and minerals that I need to help this disorder. Just with these to things being carefully limited has made an incredible different in my life. I am just amazed.

eatmeat4good Enthusiast

Welcome! I'm so glad eliminating gluten is doing good things for you! It is important for you to know that once it is out of your system, you might become ever more sensitive to it. Many of us have had this happen. So limiting gluten may not be enough. You will need to watch for cross contamination and even a little speck of flour dust can make you have a reaction if your are truly gluten intolerant. Limiting it helps, but being really strict about it helps even more. I just wanted to warn you about this because it may not be obvious to you that it could be tiny cross contamination happening if you do start to react again.

Yes! There are people out here like you! I'm so glad you found out about gluten. It will change your life and certainly your emotions for the better!

  • 4 months later...
Sheriinwi Newbie

I wanted to reply to this post because for years I have been going back and forth about the whole gluten thing. First of all, I have been constipated for nearly all my life and it was detrimental for me as a child because I never felt like I was like everyone else. Things started to change at age 25 when I had my son. There were periods of time when I would eat and I would be so sick and nauseous that all I could do was rock back and forth to try and eliminate it. I finally headed off to the GI specialist where he told me I had IBS. I was always a very thin person up until I had my kids and now I am so much heavier and miserable. This brought me to try the South Beach Diet where I eliminated all carbs for 2 weeks. I felt really great up until I started adding in "healthy carbs." Immediately after eating a healthy bagel did I realize it wasn't going down so well. I did at one point get tested for celiac but was avoiding it and it came back negative. Overall, I have avoided gluten because it makes me feel so much better but every now and then I will fall off and eat gluten. You think I would learn by now but no. As of right now, I am going through terrible irritability and can't even stand myself and my throat and ear hurts. I can't wait until this is over. Also when I eat it, especially at night, I will wake up with the sorest tender stomach and I can't even touch it. My medical history also includes endometriosis (hysterectomy at 31) and thyroid nodules. I am wondering if anyone else suffers from severe PMS when on gluten. My daughter has really bad PMS also where she is paranoid, moody and it really affects her.

  • 2 weeks later...
Austin Guy Contributor

I recently dealt with CC and while driving was paranoid that I would die in an auto accident. I was scared of every car on the road.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,909
    • Most Online (within 30 mins)
      7,748

    Hmart
    Newest Member
    Hmart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.