Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leaky Gut Diet


Salax

Recommended Posts

Salax Contributor

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laura4669 Apprentice

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

cahill Collaborator

I am watching this thread in hopes of getting some ideas/information.

I am currently doing an elimination diet,,, and the way things are looking I am going to be pretty much eating Paleo wither I want to or not

mushroom Proficient

You may find this article on leaky gut syndrome helpful: Open Original Shared Link

LivesIntheSun Apprentice

Me too :-(

As if being gluen-free wasn't enough hard work I need to heal my gut and I'm fed up, especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

If anyone wants to study the issue or work together PM me.

Salax Contributor

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Jestgar Rising Star

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Why don't you choose skydiving, or something less challenging next time.......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

As if being gluen-free wasn't enough hard work I need to heal my gut... especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

AMEN! I'm with you on that!

I've been on this elimination/challenge diet with a list of food allergies I tested pos. to for one year now. Got some back but gained new allergies in the process and lost some. It's a revolving door, although the gains outweigh the losses,...I think. I'm going to give it one more year with the new allergies and trying to ditch some of the repeat offenders for a longer time period and see if I can ditch them. Then I may have to come up with a new plan. I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

missy'smom Collaborator

Why don't you choose skydiving, or something less challenging next time.......

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!

cahill Collaborator

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!

:lol:

I agree Skydiving would be easier!!!

cahill Collaborator

I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

I am right there with you

mushroom Proficient

:lol:

I agree Skydiving would be easier!!!

And a lot more thrilling :lol:

Salax Contributor

Why don't you choose skydiving, or something less challenging next time.......

I know right. Except I hate heights LOL, so no. :P Hehe.

  • 2 months later...
Mother of a Celiac Rookie

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

I am halfway thru the Paleo Solution book by Robb Wolf. It is one of the most eye opening books I've ever read. I started reading it because my daughter has Celiac and her symptoms have returned after being gluten free and symptom free for a year. Our whole family is now going Paleo. It is hard and is taking some time to get used to, but I'm hoping it is the answer to healing.

eatmeat4good Enthusiast

I wanna do Paleo, but I wanna keep chocolate too. ;)

  • 4 months later...
GottaSki Mentor

Hi All-

Bumping this back to the top as I have just started full elimination diet. I was dx'd Celiac in March 2009 - was very slow to get better, but did finally improve a great deal - felt healthy for the first time in years!

Unfortunately good health only lasted about 8 months - my digestive symptoms stayed at bay for a long time with mainly fibromyalgia symptoms worsening. Over the past six months I have become very sick again - muscle/joint pain, foggy is an understatement - my brain has been mush - severe memory problems and more. During the past few months my digestive symptoms have gotten nearly as bad as they were when I was dx'd Celiac and that was pretty darn bad.

Research finally brought me to Lectin Intolerance & Leaky Gut Syndrome (which I had heard before, but I thought it was just other names for Celiac).

In the past I've tried removing nightshades and dairy, but not all the problem lectin groups at once.

I just finished two days of green smoothie detox. Today was day three - I woke up still sluggish, but a couple hours later I felt wired (like I'd had several cups of coffee). Was able to stay vertical the majority of the day and my brain is still fairly clear at 10PM!!! As of today I'm eating meat/vegies/fruit only. In a week or a month (depending on improvement) I'll start challenging each group: eggs, nightshades, nuts, dairy and grains (really hope I get rice, corn and quinoa back).

Guess I'm curious to hear from others that:

1) isolated their Lectin Intolerance with elimination diet - which groups of foods you lost or re-gained?

2) had significant healing - how long did it take?

Thanks!

mushroom Proficient

I am a major lectin intolerant. I am glad that I tolerate dairy lectins, because I do not tolerate corn, soy, legumes. nightshades, citrus and of course gluten. I don't believe I will ever regain soy or corn, but I have recently been eating occasional slices of Udi's bread (potato starch) without any problems, so I am going to continue testing potato. After quitting gluten I acquired lectin intolerance to nightshades, legumes and citrus. and also had problems with quinoa and amaranth during my leaky gut syndrome period. I must say I was a little slow in making the lectin connection but I fit the pattern so perfectly. The nightshades came first so they were the first ones for reintroduction testing, but I am doing it REAL slow :P - don't want to slip back again and still not confident about leaky gut 100%.

I am almost four years post gluten, but only made a determined leaky gut cure effort a year ago when I continued to come up with more lectin intolerances. Up till then I was still using digestive enzymes quite consistently. I consulted with a nutritionist (Krispin Sullivan - I am sure you have read her Lectin Report) last summer and followed her supplement recommendations and believe it has helped. All the other commercial breads are so awful and I had so wanted to try Udi's and have been limiting it to every 3-4 days. Next I will try it more frequently. :)

Bubba's Mom Enthusiast

I asked my GI Dr about leaky gut after seeing it mentioned here. She had never heard of it!

I read the article that was posted and it seems like so many things would be eliminated..I'm wondering what we COULD eat?

I wish there was a treatment center we could just go to where they'd give us our meals and and suppliments and we'd focus on doing nothing but healing! :blink:

mushroom Proficient

I found that it was the things I was eating too frequently that became a problem for me. A rotational diet where you don't keep eating the same things over and over seems to work best with a leaky gut.

GottaSki Mentor

Mushroom-

Thank you so much for sharing - it is very encouraging to hear that you have been able to add a few things back carefully after a year.

Today - Day 4 - I feel like I'm coming out of a year long sleepwalk! I rode my bike and cleaned my kitchen - can't tell you how bad our house got over the past several months. Trying not to get too excited, but I am VERY hopeful for the first time in a very long time.

Yes, I've read Krispin's report - I'll include the link along with another that I found helpful for others reading this entry:

Open Original Shared Link

Open Original Shared Link

Bubba's Mom-

I'm eating meat, fruit and vegies now and will for about a month depending on improvement before I challenge each lectin group: nightshades, nuts, dairy and grains. It has been easy for the past several days, especially because I'm already seeing improvement - I'm sure I'll have a panic attack soon without rice and quinoa! As long as I improve it will be worth it as for the past several months I've had no life (about an hour in the morning functional) and had major symptoms for the past year.

Doctors can be extremely frustrating (no words to say how frustrating) with our symptoms. I've had mild versions of my Celiac and Fibromyalgia symptoms since my early 20s - took 23 years of going to docs for the same symptoms before they found Celiac - by that time I had only about 5-6 functional hours per day with severe digestive problems along with a whole host of other problems...the only thing that was "normal" about me was my bloodwork for every flipping thyroid and autoimmune disease - except celiac of course. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

Bubba's Mom Enthusiast

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

GottaSki Mentor

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

mushroom Proficient

. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based.

Sounds like the meal from h*ll - all those spices, legumes and nightshades :unsure:

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

Way to go, GottaSki. Either legumes or nightshades gotcha ;). I used to love chili over a baked potato!!!

GottaSki Mentor

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

You are absolutely right - I've had the there is nothing physically wrong with you, so it must be mental look from doctors so many times over the years I don't think I count them. I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

mushroom Proficient

I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

Well, you're right of course -- we can't expect strides, only baby steps. And they don't have as much invested in the issue as we do

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,878
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.